Life satisfaction and aphasia: an integrative review with recommendations for future research

Ellis, Charles; Peach, Richard K.

doi:10.1080/02687038.2016.1154500

Cited by 11 publications

(11 citation statements)

References 49 publications

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“…Approximately 30% of stroke patients are diagnosed with aphasia, a communication disorder affecting the production and comprehension of language (Engelter et al 2006). Aphasia negatively influences social participation, emotional health, psychological well-being and life satisfaction (Cruice et al 2013, Ellis andPeach 2017). Moreover, among stroke survivors, people with aphasia (PWA) have an increased risk of developing a depression (Mitchell et al 2017).…”

Section: Introductionmentioning

confidence: 99%

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Speech language therapists’ experiences with subjective well‐being in people with aphasia

Ewijk

Bootsma²,

Rijssen

et al. 2021

Intl J Lang & Comm Disor

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Background: Subjective well-being (SWB) and quality of life (QOL) are intricately related constructs. Recent research shows both constructs share some facets, but are distinct entities. It is unclear, both internationally and in the Netherlands, if and how SLTs address SWB in clinical practice. The current study was set up to explore Dutch SLTs' perceptions of SWB in relation to the management of people with aphasia. Aims: To describe how Dutch SLTs, working with people with aphasia in a private practice or a healthcare setting, address patient's SWB during diagnosis and treatment, and to identify barriers and facilitators they experience when addressing SWB. Methods & Procedures: A qualitative research design with a phenomenological approach was used. SLTs from private practices and healthcare settings were invited to participate in individual interviews and a focus group. The data were analysed thematically using a combination of inductive and deductive methods.Outcomes & Results: Eight SLTs participated in the study. The SLTs' experiences were captured in four themes that emerged from the data: (1) SWB is a multifaceted concept and depends on patient-specific factors: premorbid factors, life priorities and time post-stroke; (2) SLTs experience more responsibility for patients' SWB than their profession allows; (3) collaboration between SLTs and patients, patients' network and other healthcare professionals is required to address SWB during diagnosis and treatment; and (4) misinterpretations are inevitable when SLTs or the patients' network address patients' SWB. Conclusions & Implications:The results showed that SLTs feel responsible for addressing SWB in the management of people with aphasia. Their perception of the concept of SWB is similar to the definition used in the literature and is multifaceted. They feel responsible for the part of SWB that is related to communicative functioning, but less so for the more heuristic aspects of SWB. This is related to their experienced limitation of influence on SWB, which for some leaves them feeling out of depth and uncertain about boundaries between professionals. Addressing SWB in a multidisciplinary team is therefore considered important in order to adequately and fully capture someone's SWB and reduce to clinicians' experienced burden and responsibility.

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Section: Introductionmentioning

confidence: 99%

“…Aphasia negatively influences social participation, emotional health, psychological well‐being and life satisfaction (Cruice et al . 2013, Ellis and Peach 2017). Moreover, among stroke survivors, people with aphasia (PWA) have an increased risk of developing a depression (Mitchell et al .…”

Section: Introductionmentioning

confidence: 99%

Speech language therapists’ experiences with subjective well‐being in people with aphasia

Ewijk

Bootsma²,

Rijssen

et al. 2021

Intl J Lang & Comm Disor

View full text Add to dashboard Cite

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“… Achten et al (2012) found that patients with Broca and mixed non-fluent aphasia reported worse quality of life than patients with anomic aphasia. As there are few reports on this kind of long-term changes in this aspects, this hypothesis still requires empirical verification ( Ellis and Peach, 2017 ). In our previous studies we found aphasias type to be a significant factor in marital communication changes ( Orłowska, 2012 ).…”

Section: Introductionmentioning

confidence: 99%

Marriage and Post-stroke Aphasia: The Long-Time Effects of Group Therapy of Fluent and Non-fluent Aphasic Patients and Their Spouses

Rasmus

Orłowska

2020

Front. Psychol.

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Background Studies of therapy influence on after-aphasia marital relations are lacking. Much needs to be learned about the range of factors associated with couples benefiting from therapy. Understanding these issues is key to facilitating optimal post-aphasia outcomes from the perspective of the patient and his caretaking spouse. This paper reports an evaluation of a group therapy intervention conducted with aphasic people and their life partners. Methods The intervention comprised of 10 sessions of approximately 90 min duration and included two groups of couples, with fluent and non-fluent aphasic partner. The therapy program consisted of basic communication activities within the group which encouraged sharing of personal experience but mostly relied on psychoeducation, gaining knowledge about after-stroke aphasia. The respondents were interviewed and completed neuropsychological assessment. Quality of marriage was determined using Dyadic Adjustment Scale. Marital adjustment was measured twice, before intervention and after 6 months. Long-time effects of therapy included a significant mean difference in quality of marriage between therapy attendants and controls. Marital relationship decline seems to be worse amongst control subjects, who were not involved in any kind of psychological support. In spite of initial non-distressed relationship they report deterioration of their bond in half a year’s time. We also showed changes in dynamics of quality of marriage during this time in all investigated groups. The implications of these findings for counseling services are discussed.

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“…Even SLPs who have not had the benefit of specific training in PPA possess extensive knowledge of the assessment and management of communication, cognitive rehabilitation, activities of daily living, and designing person-centered interventions, and this makes them uniquely positioned to enhance the communication, coping, and quality of life of persons with PPA. [15][16][17] Nevertheless, PPA referral rates to SLP services remain low [18][19][20] and the role of SLPs working with communication in dementia syndromes is underrecognized. 21 Speech-language pathologists also provide vital support for swallowing difficulties in dementia syndromes (see the studies [22][23][24] for further discussion of this issue); however, this article focuses on communication support.…”

Section: Introductionmentioning

confidence: 99%

How Evidence-Based Practice (E³BP) Informs Speech-Language Pathology for Primary Progressive Aphasia

Ruggero

Croot

Nickels

2020

Am J Alzheimers Dis Other Demen

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Amelioration of communication impairment in primary progressive aphasia (PPA) is an area of clinical importance and current research. Speech-language pathologists (SLPs) have a range of skills and interventions to support communication in PPA; however, underrecognition of their role and low referral rates is an ongoing concern. The E3BP conceptualization of evidence-based practice comprises 3 components: research-based evidence, practice-based evidence, and informed patient preferences. Here, we will describe how evidence for managing the communication difficulties experienced by individuals with PPA exists at all 3 levels of the (E3BP) model, highlighting how this allows SLP interventions to be both evidence based and patient centered. We encourage health professionals to value and utilize the wide range of services that SLPs can offer when working with individuals with PPA, to educate, remediate everyday linguistic skills, increase daily participation, and maximize overall quality of life.

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Life satisfaction and aphasia: an integrative review with recommendations for future research

Cited by 11 publications

References 49 publications

Speech language therapists’ experiences with subjective well‐being in people with aphasia

Speech language therapists’ experiences with subjective well‐being in people with aphasia

Marriage and Post-stroke Aphasia: The Long-Time Effects of Group Therapy of Fluent and Non-fluent Aphasic Patients and Their Spouses

How Evidence-Based Practice (E³BP) Informs Speech-Language Pathology for Primary Progressive Aphasia

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Life satisfaction and aphasia: an integrative review with recommendations for future research

Cited by 11 publications

References 49 publications

Speech language therapists’ experiences with subjective well‐being in people with aphasia

Speech language therapists’ experiences with subjective well‐being in people with aphasia

Marriage and Post-stroke Aphasia: The Long-Time Effects of Group Therapy of Fluent and Non-fluent Aphasic Patients and Their Spouses

How Evidence-Based Practice (E3BP) Informs Speech-Language Pathology for Primary Progressive Aphasia

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Resources

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How Evidence-Based Practice (E³BP) Informs Speech-Language Pathology for Primary Progressive Aphasia