Life Participation for Parents: A Tool for Family-Centered Occupational Therapy

Fingerhut, Patricia

doi:10.5014/ajot.2013.005082

Cited by 16 publications

(9 citation statements)

References 18 publications

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“…Grajo and Boisselle [1] suggested that the lack of consensus and clarity around definition of occupational adaptation has resulted in a lack of measures of occupational adaptation, and therefore a lack of research using occupational adaptation as an outcome measure. Six papers were identified which involved the development of measures of occupational adaptation, however two were refinements of the same tool, and so only five tools were reported in the literature [93,[117][118][119][120][121]. Occupational adaptation was used as an outcome measure in three papers [95,101,122], and others such as Kratz, Söderback [123],…”

Section: Pragmatic Considerationsmentioning

confidence: 99%

Occupational adaptation – analyzing the maturity and understanding of the concept through concept analysis

Walder

Molineux

Bissett

et al. 2019

Scandinavian Journal of Occupational Therapy

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BackgroundOccupational adaptation is a key occupational therapy concept, yet lacks clarity and consensus, impacting on its application in practice, theory and research. Concept analysis is a rigorous methodology which enables identification of unique features, gaps in knowledge, and the need for further concept refinement. AimsThis study aimed to determine the conceptual maturity of occupational adaptation, and identify steps needed to understand and use occupational adaptation. MethodsFour databases were searched using the term 'occupational adaptation' and a principle-based concept analysis was conducted from epistemological, pragmatic, linguistic, and logical perspectives. A mapping of the concept's evolution and analysis of the maturity of its structural features also occurred. Results748 papers were identified, which reduced to 161 after abstract and full-text review. A diverse range of applications and two primary theoretical frames of reference were identified. The definition, attributes, preconditions, outcomes, and boundaries of the concept lacked maturity, limiting clinical utility.

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Section: Pragmatic Considerationsmentioning

confidence: 99%

Occupational adaptation – analyzing the maturity and understanding of the concept through concept analysis

Walder

Molineux

Bissett

et al. 2019

Scandinavian Journal of Occupational Therapy

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“…The items that had factor loadings distributed in more than one factor with the difference between these loads being less than or equal to 0.10 were excluded from the analysis. After testing the 80 items, a total of 20 items were excluded from the scale, 19 of which (1,3,6,8,17,25,36,39,41,42,47, 50, 51, 55, 62, 65, 67, 75, 82) did not load on any factor (<0.40) and one of which (item 56) was distributed in two factors with the difference being less than 0.10. In the second round, the factor loadings of 11 items (2,7,9,13,19,30,33,35,46, 64, 69) were less than 0.45 and one item (item 80) had a difference of less than 0.10.…”

Section: Resultsmentioning

confidence: 99%

“…of which(1,3,6,8,17,25, 36, 39, 41, 42, 47, 50, 51, 55, 62, 65, 67, 75, 82) did not load on any factor (<0.40) and one of which (item 56) was distributed in two factors with Demographics of the participants.…”

mentioning

confidence: 99%

“…For this reason, family-centered assessments should take into account the importance of the role of the family in rehabilitation [13,14]. Previous studies have presented some assessment tools for investigating physical, emotional, or psychological influences and the needs and social participation of parents after having a child with special needs [15][16][17][18]. In addition, there are commonly used generic measures assessing various aspects of family functioning such as the Impact on Family Scale [19], which measures parents' perception of the effects of the child's condition on family life, and the Family Environment Scale [20], which is used to assess the family environment from different perspectives within the family.…”

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confidence: 99%

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Development and psychometric testing of the Family Functioning Questionnaire in Rehabilitation (FFQR)

Abaoğlu¹,

Akı²

2019

Turk J Med Sci

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Introduction Children with special needs are children who are at risk or have physical, developmental, behavioral, or emotional conditions that require health and related services in a type or amount that is beyond the needs of children in general [1]. To meet the needs of care, education, and rehabilitation of these children who depend on their families in every aspect of daily life is a long, tedious, and challenging process [2,3]. Having a child with special needs affects the roles and responsibilities of the family. Family members try to adapt to the stress, physical effort, role and identity changes, and financial and psychological problems that arise as a result of the child's health status. They also undertake responsibilities such as interacting with various professionals including physicians, physiotherapists, occupational therapists, and special education specialists; providing environmental modifications, equipment, or assistive devices; and supporting skill training and other intervention programs [3-5]. Families know their children well and want the best for them. A supportive family and society positively influence the child's functioning, quality of life, and social participation. Parents are constantly in contact with health professionals and are part of the team in choosing, implementing, and maintaining education and treatment programs for children with special needs. Especially in recent years, it has been emphasized that family has an important role in understanding and meeting the needs and abilities of children with special needs [5,6]. Family-centered approaches that increase the quality of life of the child, as well as the quality of life of the family, have gradually become the focus of pediatric rehabilitation. Family-centered practice is a dynamic process that adapts to the changing situation, needs, and priorities of the child and the family. These interventions enhance the child's physical, emotional, social, and cognitive functions; promote meaningful activities and social participation and improve engagement in treatment programs; and Background/aim: The present study aimed to develop a reliable and valid assessment tool for measuring family functioning in rehabilitation. Materials and methods: Semistructured interviews were performed with 100 rehabilitation professionals working in pediatrics to identify the feature to be measured. The items determined with the qualitative analysis of the data were presented to 14 experts and content validity was provided. The questionnaire created based on the judgments of the experts was administered to 440 parents of children with special needs. Results: After validity and reliability analysis, the final version of the questionnaire comprised 48 items with four factors identified as awareness, attitude and behavior, social participation, and engagement in rehabilitation. These factors explained 49.94% of the total variance and the factor loadings ranged from 0.492 to 0.773. Internal consistency reliability calculated with the Cronbach alpha coef...

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“…By reframing the theoretical alignment and focusing on occupation, progress can be measured through occupational function/dysfunction, and approaches to intervention can be provided along an occupation-guided continuum including adaptations needed for occupational performance. Within the realm of pediatric occupational therapy practice, it is also pivotal that therapists incorporate the family into all facets of service delivery to incorporate meaningful occupations and co-occupations of the child and the family (Fingerhut, 2013; Kolehmainen et al, 2013). Pediatric occupational therapists must synthesize occupation into all facets of service delivery and must be mindful of the type of assessment tool selected to remain holistic, client-centered, and occupation-based.…”

Section: Discussionmentioning

confidence: 99%

Occupation-Based Assessments in Pediatric Occupational Therapy Practice

Skuthan

Stav

2023

OTJR: Occupational Therapy Journal of Research

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In pediatric occupational therapy, there is insufficient evidence examining assessment tool selection by occupational therapists and how assessment tools contribute to occupation-based practice. To examine the perceptions of occupation-based assessment tool selection by pediatric occupational therapists, a phenomenological research study was conducted with six pediatric occupational therapy practitioners. Three themes emerged from participants’ perspectives: the centrality of occupation, selecting the just right tool, and practice implications. Participants recognized the need to integrate occupation-based assessments into practice but reported decreased opportunities secondary to training, available supplies, lack of awareness of foundational constructs, and organizational expectations. The use of occupation-based assessments positively enhances pediatric occupational therapists’ clinical practice by upholding the core occupational beliefs of the profession throughout all phases of service delivery.

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Life Participation for Parents: A Tool for Family-Centered Occupational Therapy

Abstract: The LPP is a reliable and valid instrument for measuring satisfaction with parental participation in life occupations.

Cited by 16 publications

References 18 publications

Occupational adaptation – analyzing the maturity and understanding of the concept through concept analysis

Occupational adaptation – analyzing the maturity and understanding of the concept through concept analysis

Development and psychometric testing of the Family Functioning Questionnaire in Rehabilitation (FFQR)

Occupation-Based Assessments in Pediatric Occupational Therapy Practice

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