Life Experiences of Hepatitis Patients Waiting for Liver Transplantation

Aghahosseini, Shima Sadat; Nayeri, Nahid Dehghan; Shahsavari, Hooman; Tosi, Mohsen Nasiri

doi:10.5812/hepatmon.57775

Cited by 3 publications

(4 citation statements)

References 18 publications

(23 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Information obtained from unreliable sources caused them bewilderment. In line with our findings, 2 earlier studies showed that transplant recipients sought transplantation-related information from unreliable sources (26,27). Seeking information from unreliable sources such as peers results in the dissemination of misconceptions among patients, negatively affects their approach to care and treatment, shifts them to other therapies, and thereby endangers their lives.…”

Section: Discussionsupporting

confidence: 92%

Patients’ Experiences of Life Challenges After Liver Transplantation: A Qualitative Study

Taher

Toossi

Jafarian

et al. 2021

Journal of Patient Experience

View full text Add to dashboard Cite

Patients experience a new life with different challenges after liver transplantation (LT). Identifying these challenges can facilitate the improvement of their quality of life. This study aimed to explore patients’ experiences of post-LT life challenges. This qualitative study was performed in 2019 through the content analysis approach. Participants were liver transplant recipients purposively recruited from a LT clinic. Semistructured interviews were conducted for data collection. Data were analyzed through Graneheim and Lundman’s conventional content analysis approach. Meaning units were identified and coded, and the codes were grouped into subcategories and categories according to their similarities. In total, 18 transplant recipients were interviewed. Their age mean was 51 years and their transplant age ranged from 4 months to 12 years. Their post-LT life challenges were categorized into 4 main categories, that is, self-care deficit, the need for seeking information, fears and concerns, and hope–despair duality. Nurses and members of LT team are recommended to assess transplant recipients’ life challenges and develop comprehensive plans for managing their challenges and problems and improving their quality of life.

show abstract

Section: Discussionsupporting

confidence: 92%

Patients’ Experiences of Life Challenges After Liver Transplantation: A Qualitative Study

Taher

Toossi

Jafarian

et al. 2021

Journal of Patient Experience

View full text Add to dashboard Cite

show abstract

“…Other studies suggest that education affects the outcomes of treatment and promotes the quality of life (18). Several studies conducted in Iran showed that intervening and providing education eliminates the lack of compliance with the treatment regimen and increase the quality of life in patients with cirrhosis, which is caused by insufficient knowledge and information in this field (11).…”

Section: Insurance Discussionmentioning

confidence: 99%

“…In the first stage of the intervention, patients' need assessment was performed by in-depth individual interviews (11), so that a care program could be developed based on its result. Then, the content of the care program was developed by reviewing the latest articles and books and performing a search on internet websites, in accordance with the patients' needs and level of education.…”

Section: Methodsmentioning

confidence: 99%

“…Literature shows that patients who follow the suggestions of the transplant team experience fewer problems and overcome the constraints of their disease sooner, while they do not have much information on prevention and compliance with a medication regimen, etc., (10). Results of a qualitative study that was conducted in Iran in 2018 on patients waiting for liver transplant showed that they were suffering from a number of problems, including lack of knowledge about their illness and their treatment plan (11). As it is known, patients awaiting liver transplant and their families need to have sufficient knowledge and information about the factors associated with noncompliance with the treatment regimen and related care methods in order to improve their quality of life.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The Effect of Care Program on the Quality of Life of Patients Awaiting Liver Transplantation

Aghahosseini¹,

Nayeri²,

Tosi³

2020

ACTA

Self Cite

View full text Add to dashboard Cite

Quality of life of patients in need of liver transplantation is impaired due to many reasons, and this affects the pre and post outcomes and complications of transplantation. Therefore, the aim of this study was to evaluate the effect of a care program on the quality of life of patients awaiting liver transplantation. This quasi-experimental study was conducted in 2017 on 117 patients awaiting liver transplantation in Imam Khomeini Hospital of Tehran. Based on entry criteria, the samples were selected purposefully, and their quality of life was evaluated. Then, a care program in 6 one-hour-long sessions for 2 months was implemented for them. This program was according to patients' needs, including disease and transplant process education with using multiple educational methods. The data collection tool was a quality of life questionnaire (1999), which was completed before and six weeks after the intervention. The results showed that the overall quality of life and its entire aspects improved after the implementation of care program in patients waiting for liver transplantation, and the most change was related to the aspect of systemic (P<0.01). Also, the demographic variables had no significant relationship with the aspects of quality of life. The results of this study indicated a positive effect of the care program on improving the quality of life of patients awaiting liver transplantation. Eliminating the problems of these patients requires the attention and support of planners and the cooperation of managers in order to develop care programs that can be used by healthcare professionals, especially nurses.

show abstract

Identifying opportunities for hepatic encephalopathy self-management: A mixed methods systematic review and synthesis

Ismond

Spiers

Tandon

2023

Canadian Liver Journal

View full text Add to dashboard Cite

Background: Hepatic encephalopathy (HE) in cirrhosis is an extremely challenging complication for patients and care partners. To identify potentially modifiable factors to enhance HE self-management strategies, we conducted a synthesis of quantitative and qualitative research about real-world HE behaviours, knowledge, and experiences. Methods: Using the EPPI-Centre’s mixed methods synthesis procedure, a systematic literature search in five databases was completed; methods of selected articles underwent critical appraisal followed by descriptive analysis and coded line-by-line of content. Through refutational translation, the findings from the quantitative and qualitative syntheses were juxtaposed to highlight congruencies, incongruencies, or gaps. These findings informed generation of cross-analytical themes that were transformed into action statements. Results: The quantitative narrative review of synthesis ( n = 17) generated four themes (patients had low awareness of HE and low treatment adherence rates, physicians had a non-uniform approach to non-pharmaceutical therapies). Meta-aggregation of qualitative data from six articles yielded three themes (patients and care partners had low levels of HE awareness, were unfamiliar with HE self-management, and were adherent to treatments). Comparison of findings revealed three congruencies, two gaps, and one incongruency. The combined synthesis yielded two self-management themes: universal patient-oriented cirrhosis HE education and ensuring each health care encounter systematically addresses HE to guarantee health care is continuously modified to meet their needs. Conclusions: By drawing on elements of Bloom’s Taxonomy and distributed knowledge networks, deliberate patient-oriented HE messaging at all health care encounters is greatly needed to improve health outcomes and reduce care burdens related to HE.

show abstract

Life Experiences of Hepatitis Patients Waiting for Liver Transplantation

Cited by 3 publications

References 18 publications

Patients’ Experiences of Life Challenges After Liver Transplantation: A Qualitative Study

Patients’ Experiences of Life Challenges After Liver Transplantation: A Qualitative Study

The Effect of Care Program on the Quality of Life of Patients Awaiting Liver Transplantation

Identifying opportunities for hepatic encephalopathy self-management: A mixed methods systematic review and synthesis

Contact Info

Product

Resources

About