Life Course Stage and Social Support Mobilization for End-of-Life Caregivers

LaValley, Susan; Gage‐Bouchard, Elizabeth A.

doi:10.1177/0733464818766666

Cited by 8 publications

(2 citation statements)

References 21 publications

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“…Study results and research from within and outside of Taiwan all showed that most primary caregivers are family members that live with the patients. When the caregiver is the spouse, there is a responsibility to care for the family, and they are thus susceptible to more anxiety; due to long periods of caring for the patient, the caregiver can experience fatigue, insomnia, decrease in stamina, etc., and psychologically develop negative emotions such as frustration, sadness, anger, and depression [15,17,30,31,44].…”

Section: Lived With the Patientsmentioning

confidence: 99%

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Exploring the Feeling Experienced by the Families of Terminally Ill Patients in Intensive Care Units When Signing Do-Not-Resuscitate Consent

Lin¹,

Huang²

2023

Preprint

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All humans will experience the process of birth, old age, illness, and death. However, when faced with life-sustaining decisions, the families of patients are often faced with medical decisions as surrogates. In recent years, the families of patients have started to value the importance of the right to palliative care, although this often requires lengthy discussions. Therefore, this study explored the predictability of factors that affect the feeling experienced by patients’ families when signing Do-Not-Resuscitate Consent. This study used a cross-sectional study and interviewed 90 family members using a structural questionnaire. The study hypotheses were tested using a t-test, one-way analysis of variance, product–moment correlation, and hierarchical regression analysis. Attribute variables of family members, such as gender and whether they live with the patient, are predictors that affect the family member’s feeling experience when signing Do-Not-Resuscitate Consent. The emotional support from medical professionals to family members helps the family member to express their negative feelings on signing Do-Not-Resuscitate Consent; more informational support information provided to family members by medical professionals can alleviate negative feelings felt by family members when signing Do-Not-Resuscitate Consent. This study identified that family members’ knowledge about Do-Not-Resuscitate acquired from medical professionals is relatively low. It is suggested that critical care units regularly conduct training on hospice palliative care, implement standard care procedures of hospice palliative care at critical care units, and provide detailed medical information about advanced decisions to family members so as to reduce their emotional stress. This will ensure that intensive care units can also achieve the goal of critically ill hospice palliative care.

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Section: Lived With the Patientsmentioning

confidence: 99%

“…Psychological and physical health impacts from the quality of care are very damaging to caregivers and care receivers. Research indicates that more help received from neighbors, professional medical personnel, or family and friends can reduce the stress on caregivers, demonstrating the importance of social support [17].…”

Section: Introductionmentioning

confidence: 99%