Life changed existentially: a qualitative study of experiences at 6–8 months after mild stroke

Taule, Tina; Råheim, Målfrid

doi:10.3109/09638288.2014.904448

Cited by 52 publications

(129 citation statements)

References 40 publications

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“…As for stroke severity, 68.9% suffered mild stroke, 27.8% moderate and 3.3% severe. According to the FIM, 70% of DISCUSSION Suffering Stroke is an unexpected episode and it brings abrupt changes in the survivor's life (18) , with high potential to be experienced in a stressful way, since it represents threat to the sense of personal control. Our findings suggest that the perceived stress of stroke survivors is related to functional independence and depressive symptoms.…”

Section: Resultsmentioning

confidence: 99%

“…The relationship between stress and the functional independence is quite plausible. The total or partial loss of independence is one of the most difficult transition experiences for stroke survivors (6,(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18) . For them, participation in activities of daily living is something more than the fulfilment of their routine; it represents their identity/existence and satisfaction in a dynamic process (7) .…”

Section: Resultsmentioning

confidence: 99%

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Perceived stress in elderly stroke survivors after hospital discharge to home

Santos

Rodrigues

Marques

et al. 2015

Rev. esc. enferm. USP

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Objective: To evaluate the relationship between perceived stress and comorbidities, neurological deficit, functional independence and depressive symptoms of stroke survivors after hospital discharge. Method: Cross-sectional study with 90 elderly stroke survivors. The National Institutes of Health Stroke Scale instrument, the Functional Independence Measure instrument, the Geriatric Depression Scale and the Perceived Stress Scale were used. Bivariate Pearson correlation, independent t test and multiple regression analysis were used to evaluate the relationship between perceived stress and other variables. Results: The final regression model showed that higher perceived stress was related to less functional independence (p= 0.022) and more depressive symptoms (p <0.001). Conclusion: At hospital discharge, interventions should be planned for the treatment of depressive symptoms and to create adaptation strategies to the reduction of functional independence, in order to reduce the stress of the survivors.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Perceived stress in elderly stroke survivors after hospital discharge to home

Santos

Rodrigues

Marques

et al. 2015

Rev. esc. enferm. USP

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“…In the next step, it was decided to incorporate Antonovsky's theory of coping as an underlying theoretical basis to guide our analysis, while hope seemed important to the participants in our study. The participants' experiences of the current situation as comprehensible and/or meaningful are discussed in a previously published paper elucidating how stroke affected the participants' existential dimensions of life . The interviews also included more concrete experiences related to how professionals' behaved and acted, and how this influence their rehabilitation experience, which is elucidated in the current study.…”

Section: Methodsmentioning

confidence: 99%

Striving for a life worth living: stroke survivors' experiences of home rehabilitation

Taule

Strand

Skouen

et al. 2015

Scandinavian Caring Sciences

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Scand J Caring Sci; 2015; 29; 651-661 Striving for a life worth living: a qualitative study of experiences of stroke survivors undergoing home rehabilitation Background: For mild-to-moderate stroke survivors, early supported discharge from hospital, followed by home rehabilitation is preferred over conventional care. How this mode of service contributes to recovery from stroke survivors' perspective needs further investigation. Aim: The aim of this study was to explore mild-tomoderate stroke survivors' experiences with home rehabilitation after early supported discharge from hospital. Methods: A qualitative interpretive interview design was used in the context of a randomised controlled trial. A purposive sample of eight participants (45-80 years) was followed by an ambulant team, and a specific healthcare team provided home rehabilitation. Data were analysed using interpretive description, systematic text condensation and coping theory.Findings: A crucial determinant for the participants' hopes for a life worth living was the mutual confidence expressed in encounters with healthcare professionals and the participants' ability to make sense of their nowaltered body. The professional caretakers' communication qualities and their ability to attend to individual needs were important. Help in processing the emotional reactions caused by a changed body and in socialising was requested by participants. Professional caretakers providing home rehabilitation should strive for a more flexibleand individually tailored service and should seek increased cooperation among stakeholders. Conclusion: The focus on therapeutic communicative qualities, bodily changes, emotional processes, social concerns and long-term follow-up should be increased in order to achieve a more beneficial experience for stroke survivors.

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“…This review emphasised that the social and personal lives of people in this population are impacted by the repercussions of the health event, but it was unable to draw mild stroke-specific conclusions as only six articles focussed on people with mild stroke (Crowfoot et al, 2018). These six articles also had methodological limitations, with four being cross-sectional studies which limit the longitudinal understanding of the experience (Carlsson, Moller & Blomstrand, 2009;Hillsdon, Kersten & Kirk, 2013;Taule & R aheim, 2014;Tellier, Rochette & Lefebvre, 2011), while four had a narrow focus of the mild stroke experience, including: return to work (Gustafsson & Turpin, 2012), experiences of a particular intervention (Hillsdon et al, 2013), experiences of spouses (Tellier et al, 2011) and exclusively male experiences (Green & King, 2009). Conclusions from the literature review posited that there was a need for further qualitative research in order to understand the complex processes that underpin experiences of this population (Crowfoot et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Unveiling the complexities of mild stroke: An interpretative phenomenological analysis of the mild stroke experience

Hodson

Gustafsson

Cornwell

2019

Aus Occup Therapy J

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Introduction Limited research has been conducted from a longitudinal and qualitative perspective on the experience of life after mild stroke. This restricts the knowledge held in this area. This study aimed to answer the question: How do people with mild stroke understand their experiences in the first 6 months after hospital discharge? Methods Interpretative Phenomenological Analysis, involving five Australians with mild stroke, interviewed at 1‐, 3‐ and 6 months post‐hospital discharge. Results Two themes emerged about the transitional journeys post‐mild stroke: (i) Understanding and representation of stroke and (ii) Underlying relationship dynamics revealed. The first theme had two subthemes: (i) Society defines the stroke experience, and (ii) The past determines the present. The first of these reflected the impact that societal perceptions of ‘stroke’ had on participants’ views of their mild stroke, including feelings of being ‘lucky’ even when experiencing hidden difficulties that were viewed as liveable repercussions. The second explores how previous health conditions acted as a mediator for participants’ experiences of the mild stroke and how personal attributes assisted adaption to post‐mild stroke changes. The final theme highlights how participants’ relationships were either strengthened or weakened after the mild stroke, dependent on previous relationship dynamics. Conclusion Current societal perceptions of stroke are centred on ‘observable’ symptoms; however, more subtle symptoms common in the mild stroke population remain widely unknown by the general public impacting post‐mild stroke experiences. Previous health conditions and personal attributes have an impact on how people react to their mild stroke and help to explain the individualist nature of mild stroke outcomes. Relationship dynamics prior to mild stroke can impact on post‐mild stroke family functioning, and should be screened for, and supported by health professionals. All of these factors emphasise the need for a patient‐centred and multidisciplinary approach when determining interventions.

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Life changed existentially: a qualitative study of experiences at 6–8 months after mild stroke

Cited by 52 publications

References 40 publications

Perceived stress in elderly stroke survivors after hospital discharge to home

Perceived stress in elderly stroke survivors after hospital discharge to home

Striving for a life worth living: stroke survivors' experiences of home rehabilitation

Unveiling the complexities of mild stroke: An interpretative phenomenological analysis of the mild stroke experience

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