Life care planning and long-term care for individuals with brain injury in the UK

Abstract

In the UK, Life Care Planning is only undertaken by Care Experts in a one-off assessment for the litigation process for individuals claiming compensation; and, by those acting as Case Managers with a specialism in brain injury, who review or provide clinical work with clients on a long-term basis.

Living with traumatic brain injury in a rural setting: supports and barriers across the continuum of care

“…Researchers examining case management services for people with TBI reported positive outcomes in functional competence, independence, and social networking [8,30]. Baptiste and colleagues[2]summarized the research supporting the effectiveness of case management in life care planning for those with TBI, and found that people with TBI who live in institutional settings or group homes are more likely to use case management services than those who live alone.…”

“…While this type of system is available in some countries (e.g. [2,8,24]and in some urban areas in the United States (e.g. [28], it is missing in rural regions, likely due in part to the challenges inherent in linking professional case managers to patients in rural areas.…”

Accepting what we do not know: A need to improve professional understanding of brain Injury in the UK

“…paying mortgages and maintaining tenancies), employment and education, and increase the likelihood of anti‐social behaviours by those with ABI (Materne, Lundqvist, & Strandberg, 2017; Olson‐Madden, Brenner, Corrigan, Emrick, & Britton, 2012). The difficulties that ABI survivors face means that integration back into the community can be challenging and the need for long‐term community rehabilitation and support is essential (Clark‐Wilson et al., 2016; Clark‐Wilson & Holloway, 2015). Following discharge from hospital, rehabilitation and support services may be focused on improving the physical and functional abilities of individuals and addressing any psychosocial difficulties faced by ABI survivors.…”

Experiences of challenges and support among family members of people with acquired brain injury: a qualitative study in the UK

“…Service provision varies internationally but difficulties in adequately meeting need are noted even in countries which invest more in health and social care services [22,23].…”