Life After Discharge: What Parents of Preterm Infants Say About Their Transition to Home

Boykova, Marina

doi:10.1053/j.nainr.2016.03.002

Cited by 34 publications

(69 citation statements)

References 49 publications

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“…However, parents experienced anxiety regarding the impact of preterm birth, and their focus shifted to monitoring their infant's development. Previous research has reported that mothers of preterm infants experience anxiety regarding developmental delay (Boykova, ; Phillips‐Pula, Pickler, McGrath, Brown, & Dusing, ), perceive their infants as vulnerable and fragile (Teti et al., ), and compare their infant's development to full‐term infants (Hall et al., ). In the present study, both mothers and fathers monitored their infant's development and experienced anxiety about the long‐term impact of preterm birth.…”

Section: Discussionmentioning

confidence: 99%

“…Infant, parent, and environmental characteristics associated with preterm birth also may impact parental ability to engage in didactic caregiving due to parent–infant separation (Raiskila et al., ) and focus on the infant's survival (Hall, Kronberg, Aagaard, & Brinchmann, ). Therefore, didactic caregiving may be more relevant for parents of preterm infants postdischarge when their infants’ health condition has improved and parents assume full responsibility of care (Boykova, ). Similarly, parents of preterm infants also may have little opportunity to engage in material caregiving during NICU admission, which also may be more relevant postdischarge.…”

Section: Introductionmentioning

confidence: 99%

“…This study focused on parents’ experiences during infancy, as the impact of preterm birth on parental psychological distress and family functioning is considered highest at this time (Treyvaud, ), parenting responsibilities are considered greatest, and the child is most dependent on parental caregiving (Bornstein, ). Although recent research has expanded to include fathers’ experiences, in some cases where parental experiences are explored, only mothers were included in the sample (Pohlmann, ); when both parents were included, often the number of fathers was considerably smaller (Boykova, ). Thus, fathers’ experiences of preterm birth remain underrepresented in the literature.…”

Section: Introductionmentioning

confidence: 99%

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“Weathering the storm:” Mothers’ and fathers’ experiences of parenting a preterm infant

O'Donovan

Nixon

2019

Infant Mental Health Journal

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Parenting preterm infants is a unique experience distinct from parenting full‐term infants, characterized by a delayed transition to parenthood and limited caregiving opportunities. This study explored mothers’ and fathers’ lived experiences of parenting during infancy in the context of preterm birth. Semistructured qualitative interviews were conducted with 13 parents (6 fathers, 7 mothers) of preterm infants. Data were analyzed using interpretative phenomenological analysis. Four superordinate themes emerged: (a) An unnatural disaster: The traumatic nature of preterm birth, (b) The immediate aftermath: Disconnected and displaced, (c) Breaking the ice: Moving from frozen to melted, and (d) Aftershocks: Transitioning home. Both parents experienced preterm birth as traumatic. Similarities and differences in mothers’ and fathers’ experiences were identified. Preterm birth posed challenges for nurturant and social caregiving and resulted in anxiety, hypervigilance, and overprotective parenting behavior. The results highlight the need for trauma‐informed care and further research developing and testing empirically based interventions.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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“Weathering the storm:” Mothers’ and fathers’ experiences of parenting a preterm infant

O'Donovan

Nixon

2019

Infant Mental Health Journal

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“…Parents who are about to be discharged from the NICU experience high levels of stress and anxiety, as well as joy, related to taking their infants home. The psychological stress is due to causes such as reinjury, posttraumatic stress disorder, and lack of parenting confidence (Boykova, 2016;Stacey, Osborn, & Salkovskis, 2015). The parents' depression and anxiety issues at the time of discharge are related to poor prognosis of the infant's health condition (Stacey et al, 2015), and the increased risk of failure to form a proper parent-infant attachment (Meijssen et al, 2011).…”

Section: Discussionmentioning

confidence: 99%

Parental anxiety regarding premature infants and factors affecting parental concern

Lee

Yeon

et al. 2019

Specialist Pediatric Nursing

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Purpose Premature births have a great impact on the parents. The purpose of this study was to investigate the anxieties of parents of premature infants regarding infantile diseases and to help medical staff better communicate with parents of premature infants. Design and Methods This study included premature infants <37 weeks of age who were admitted to the Neonatal Intensive Care Unit of Kosin University Gospel Hospital between August 1, 2017, and December 31, 2017. The eligible subjects included 51 premature infants with their 75 parents (45 mothers and 30 fathers) listed in the children's medical records. Parental anxieties regarding the infants were determined by retrospective interviews at various time points as follows: before and after the birth, on postnatal Days 3 and 7, before discharge, in the first week after discharge, and at “whenever” time point. Results The highest parental anxiety during all time points was regarding the respiratory system of the premature infants. Parental concerns regarding the metabolic–endocrine system of their infants significantly correlated with the presence of maternal diabetes mellitus. Parental anxiety significantly differed depending on the use of resuscitation after birth. A statistically significant difference in parental anxiety was observed in relation to the birth weight before discharge. The premature infants with bronchopulmonary dysplasia showed a significant difference in the level of parental anxiety concerning the infant's illness in the first week after discharge. Conclusions The parents of the premature infants were greatly concerned about their infants’ respiratory system. Careful prenatal counseling and support are needed for mothers with diabetes.

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“…En Estados Unidos, Canadá, Australia y Nueva Zelanda se sintetizó y describió las experiencias de los padres de bebés prematuros después del alta de la UCIN en su transición al hogar, un proceso que requiere apoyo para mejorar la confianza, máxime que la crianza de los hijos prematuros es desafiante, físicamente exigente, altera el rol de los padres, puede ser socialmente perturbadora y se complica aun más por la crianza sobreprotectora 8,9 . Por lo tanto, las enfermeras de UCIN deben esforzarse por proporcionar un apoyo adecuado para los padres a fin de aumentar su confianza en el cuidado después del alta.…”

Section: Introductionunclassified

Efectividad de la atención domiciliaria de enfermería en el seguimiento de prematuros después del alta hospitalaria

Molina

2018

Revenf

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Los prematuros con alta hospitalaria de la Unidad de Cuidado Intensivo Neonatal (UCIN), deben admitirse a un programa de seguimiento para prevenir que tengan complicaciones durante la transición al hogar y se produzcan reingresos hospitalarios. Además, los padres de infantes prematuros experimentan diversos sentimientos y desafíos cuando estos llegan al hogar. El objetivo de este protocolo de práctica clínica basada en la evidencia es analizar la mejor evidencia científica disponible respecto de la efectividad de los programas de atención domiciliaria de enfermería (ADE) para el seguimiento de prematuros egresados de la UCIN. Se utilizó como metodología la práctica clínica basada en la evidencia: inicialmente se planteó una pregunta clínica de tipo pronóstico y se planteó objetivos acordes a esta, a partir de los que se identificó un conjunto de descriptores con los que se realizó la búsqueda de evidencia científica en diferentes bases de datos científicas.

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Life After Discharge: What Parents of Preterm Infants Say About Their Transition to Home

Cited by 34 publications

References 49 publications

“Weathering the storm:” Mothers’ and fathers’ experiences of parenting a preterm infant

“Weathering the storm:” Mothers’ and fathers’ experiences of parenting a preterm infant

Parental anxiety regarding premature infants and factors affecting parental concern

Efectividad de la atención domiciliaria de enfermería en el seguimiento de prematuros después del alta hospitalaria

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