Leveraging Telehealth to improve access to care: a qualitative evaluation of Veterans’ experience with the VA TeleSleep program

Nicosia, Francesca; Kaul, Bhavika; Totten, Annette M; Silvestrini, Molly; Williams, Katherine; Whooley, Mary A.; Sarmiento, Kathleen

doi:10.1186/s12913-021-06080-5

Cited by 15 publications

(6 citation statements)

References 28 publications

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“…Transcripts were first summarized into a framework matrix using a standardized template with 12 key domains based on the interview guide 22–25 . Investigator triangulation 26 was achieved through two undergraduate students independently summarizing each transcript, comparing summaries, resolving any discrepancies, and then developing a final summary.…”

Section: Methodsmentioning

confidence: 99%

“…Transcripts were first summarized into a framework matrix using a standardized template with 12 key domains based on the interview guide. [22][23][24][25] Investigator triangulation 26 was achieved through two undergraduate students independently summarizing each transcript, comparing summaries, resolving any discrepancies, and then developing a final summary. After 50% of the summaries were completed in pairs and a consistent summary technique was established, the undergraduate researchers then independently summarized the remaining transcripts.…”

Section: Introductionmentioning

confidence: 99%

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Learning the full impact of migraine through patient voices: A qualitative study

et al. 2021

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Objective: To better characterize the ways that migraine affects multiple domains of life.Background: Further understanding of migraine burden is needed. Methods: Adults with migraine randomized to mindfulness-based stress reduction or headache education arms (n = 81) in two separate randomized clinical trials participated in semistructured in-person qualitative interviews conducted after the interventions. Interviews queried participants on migraine impact on life and were audio-recorded, transcribed, and summarized into a framework matrix. A master codebook was created until meaning saturation was reached and magnitude coding established code frequency. Themes and subthemes were identified using a constructivist grounded theory approach. Results: Despite most participants being treated with acute and/or prophylactic medications, 90% (73/81) reported migraine had a negative impact on overall life, with 68% (55/81) endorsing specific domains of life impacted and 52% (42/81) describing impact on emotional health. Six main themes of migraine impact emerged: (1) global negative impact on overall life; (2) impact on emotional health; (3) impact on cognitive function; (4) impact on specific domains of life (work/career, family, social); (5) fear and avoidance (pain catastrophizing and anticipatory anxiety); and (6) internalized and externalized stigma. Participants reported how migraine (a) controls life, (b) makes life How to cite this article:

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Learning the full impact of migraine through patient voices: A qualitative study

et al. 2021

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“…The research team, including the PI, analyzed the data during weekly meetings (August 2019-January 2022), beginning with summarizing and analyzing transcripts into a framework matrix of 12 key domains extrapolated from the interview guides (see Supporting Information). [19][20][21][22] Investigator triangulation 23 was achieved for 50% of the transcripts until a consistent technique was established. All final summaries were cross-checked against the original transcripts to ensure accuracy.…”

Section: Qualitative Data Analysesmentioning

confidence: 99%

Mechanisms of mindfulness in patients with migraine: Results of a qualitative study

et al. 2023

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Objective: To understand the mechanisms of mindfulness' impact on migraine.Background: Promising mindfulness research demonstrates potential benefit in migraine, but no data-driven model exists from the lived experiences of patients that explains the mechanisms of mindfulness in migraine.Methods: Semi-structured qualitative interviews were conducted with adults with migraine who participated in two mindfulness-based stress reduction (MBSR) clinical trials (n = 43). Interviews were audio-recorded, transcribed, and summarized into a framework matrix with development of a master codebook. Constructivist grounded theory approach was used to identify themes/subthemes. Results:Participants who learned mindfulness techniques through MBSR experienced altered pain perception, altered response to migraine attacks and disease, increased awareness of external and internal experiences, improved overall well-being, and group benefits. Mindfulness resulted in earlier stress-body awareness and increased interoceptive awareness resulting in earlier attack recognition, leading to earlier and more effective management. Interictal factors of self-blame, guilt, and stigma decreased while migraine acceptance, hope, empowerment, self-efficacy, and selfcompassion increased. Improved emotion regulation resulted in decreased fear of migraine, pain catastrophizing, anticipatory anxiety, and pain reactivity. Although taught as prevention, mindfulness was used both acutely and prophylactically. We created a conceptual model hypothesizing that MBSR skills led to an infusion of mindfulness in daily life, resulting in altered pain perception and experience, ultimately leading to improvement in overall well-being, which may positively feed back to the infusion of mindfulness in daily life. The therapeutic benefit of learning mindfulness in a group setting may moderate these effects. Conclusions:This study identified several new potential mechanisms of mindfulness' effect on migraine. After learning MBSR skills, participants reported altered pain and

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“…High-quality health care can be achieved through delivery using an RPM model for a wide range of clinical conditions [14,[23][24][25][26][27][28]. Reductions in health care costs, hospital readmission, and increased access to care with better clinical outcomes and patient satisfaction are some of the potential benefits associated with this innovative strategy of offering health care outside of traditional clinical settings [16,19,21,[29][30][31].…”

Section: Principal Findingsmentioning

confidence: 99%

Patient Satisfaction With a Multisite, Multiregional Remote Patient Monitoring Program for Acute and Chronic Condition Management: Survey-Based Analysis

Haddad¹,

Maita²,

Ávila³

et al. 2023

J Med Internet Res

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Background Remote patient monitoring (RPM) is an option for continuously managing the care of patients in the comfort of their homes or locations outside hospitals and clinics. Patient engagement with RPM programs is essential for achieving successful outcomes and high quality of care. When relying on technology to facilitate monitoring and shifting disease management to the home environment, it is important to understand the patients’ experiences to enable quality improvement. Objective This study aimed to describe patients’ experiences and overall satisfaction with an RPM program for acute and chronic conditions in a multisite, multiregional health care system. Methods Between January 1, 2021, and August 31, 2022, a patient experience survey was delivered via email to all patients enrolled in the RPM program. The survey encompassed 19 questions across 4 categories regarding comfort, equipment, communication, and overall experience, as well as 2 open-ended questions. Descriptive analysis of the survey response data was performed using frequency distribution and percentages. Results Surveys were sent to 8535 patients. The survey response rate was 37.16% (3172/8535) and the completion rate was 95.23% (3172/3331). Survey results indicated that 88.97% (2783/3128) of participants agreed or strongly agreed that the program helped them feel comfortable managing their health from home. Furthermore, 93.58% (2873/3070) were satisfied with the RPM program and ready to graduate when meeting the program goals. In addition, patient confidence in this model of care was confirmed by 92.76% (2846/3068) of the participants who would recommend RPM to people with similar conditions. There were no differences in ease of technology use according to age. Those with high school or less education were more likely to agree that the equipment and educational materials helped them feel more informed about their care plans than those with higher education levels. Conclusions This multisite, multiregional RPM program has become a reliable health care delivery model for the management of acute and chronic conditions outside hospitals and clinics. Program participants reported an excellent overall experience and a high level of satisfaction in managing their health from the comfort of their home environment.

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Leveraging Telehealth to improve access to care: a qualitative evaluation of Veterans’ experience with the VA TeleSleep program

Cited by 15 publications

References 28 publications

Learning the full impact of migraine through patient voices: A qualitative study

Learning the full impact of migraine through patient voices: A qualitative study

Mechanisms of mindfulness in patients with migraine: Results of a qualitative study

Patient Satisfaction With a Multisite, Multiregional Remote Patient Monitoring Program for Acute and Chronic Condition Management: Survey-Based Analysis

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