Leveraging Social Media to Explore Black Women's Perspectives on HIV Pre-exposure Prophylaxis

Hill, Bianca S.; Patel, Viraj V.; Haughton, Lorlette J.; Blackstock, Oni J.

doi:10.1016/j.jana.2017.06.010

Cited by 20 publications

(14 citation statements)

References 17 publications

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“…Finally, although there are no data in the literature to quantify the actual impact on PrEP uptake, anecdotally there are concerns that misleading lawyer advertisements about lawsuits concerning F/TDF in the USA may play into patients’ concerns around PrEP side effects, leading them to discontinue or refuse PrEP medication [ 92 ]. Similarly, discussion of side effects on social media platforms could influence perceptions about PrEP and limit uptake [ 93 – 95 ].…”

Section: Side Effects/medication Interaction Concerns As a Barrier Tomentioning

confidence: 99%

Barriers to the Wider Use of Pre-exposure Prophylaxis in the United States: A Narrative Review

2020

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Antiretroviral pre-exposure prophylaxis (PrEP) to prevent HIV transmission was first approved by the US Food and Drug Administration in 2012. Despite correlations of decreases in new HIV infections being greatest where PrEP has been deployed, the uptake of PrEP is lagging, particularly among populations with disproportionate HIV burden. This narrative review seeks to identify individual and systemic barriers to PrEP usage in the USA. A comprehensive search of recent literature uncovered a complex array of structural, social, clinical, and behavioral barriers, including knowledge/awareness of PrEP, perception of HIV risk, stigma from healthcare providers or family/partners/friends, distrust of healthcare providers/systems, access to PrEP, costs of PrEP, and concerns around PrEP side effects/medication interactions. Importantly, these barriers may have different effects on specific populations at risk. The full potential of PrEP for HIV prevention will not be realized until these issues are addressed. Strategies to achieve this goal should include educational interventions, innovative approaches to delivery of HIV care, financial support, and destigmatization of PrEP and PrEP users. Until then, PrEP uptake will continue to be suboptimal, particularly among those who need it most.

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Section: Side Effects/medication Interaction Concerns As a Barrier Tomentioning

confidence: 99%

Barriers to the Wider Use of Pre-exposure Prophylaxis in the United States: A Narrative Review

2020

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“…Emerging research that focuses on use of various technological advancements, including interactive media (e.g. video/ audio-embedded presentations, social media, gaming), for education and training suggest that computer-based interventions may meet the needs of women in this population [32].…”

Section: Focus Populations and Prep As Hiv Preventionmentioning

confidence: 99%

The pre-exposure prophylaxis (PrEP) consciousness of black college women and the perceived hesitancy of public health institutions to curtail HIV in black women

et al. 2020

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Background: Consistent use of Pre-Exposure Prophylaxis (PrEP), a biomedical intervention for HIV seronegative persons, has been shown to significantly decrease HIV acquisition. Black women are a viable population segment to consider for PrEP use as their HIV incidence is overwhelmingly higher than all other women groups. Methods: We developed and piloted a cultural-and age-appropriate PrEP education intervention to determine Black college women's: 1) perceptions of and receptivity to PrEP use; and 2) preferences for PrEP information delivery. Results: We recruited N = 43 Black college women. Most of our sample were sophomore and Juniors of whom identified as heterosexual (83%) and single (67%). Over 50% of young women had never been HIV tested and only 28% had been tested in the last 6 months; however, 100% of the women believed their HIV status was negative. Prior to participating in the study, most Black college women (67%) had not heard about PrEP and were unsure or apprehensive (72%) to initiate PrEP. The Black college women indicated that our educational intervention was extremely helpful (67%) for understanding and learning about PrEP. Post participating in our PrEP education module, regardless of delivery modality, participants reported being likely (62.55-70%) to initiate PrEP in the future. Conclusions: Results indicate that Black college women would strongly consider PrEP when provided with basic knowledge, regardless of delivery modality. Participants also showed greater appreciation for in-person delivery and found it to be significantly more helpful and of greater quality for learning about PrEP; comprehension or perceived usefulness of PrEP-related content was relatively the same between groups. PrEP content delivery-via in-person or online methodsis contingent on learning style and presentation. Trial registration: This study has been registered under the ISRCTN Registry as of July 6, 2020. The trial registration number is ISRCTN14792715. This study was retrospectively registered.

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“…Black women experience multiple barriers that impact PrEP uptake, including low levels of PrEP knowledge and awareness, misinformation surrounding PrEP, stigma related to PrEP use, and limited access to PrEP in their geographic areas [1,10]. It is possible that the high rates of PrEP misinformation, stigma, and lack of awareness may be due to the fact that marketing for PrEP has largely focused on men who have sex with men (MSM) and transgender populations, with limited focus on Black cisgender women [10,12,13]. Due to inadequate representation of Black cisgender women in PrEP messaging campaigns, Black cisgender women report not being cognizant of PrEP as an available HIV prevention method that could potentially benefit them [7,[14][15][16].…”

Section: Introductionmentioning

confidence: 99%

“…Due to inadequate representation of Black cisgender women in PrEP messaging campaigns, Black cisgender women report not being cognizant of PrEP as an available HIV prevention method that could potentially benefit them [7,[14][15][16]. The consistent messaging gap in PrEP marketing and communication can inadvertently influence Black women's acceptability and uptake of PrEP [12]. Furthermore, insufficient communication between patients and health care providers may limit PrEP uptake among Black cisgender women.…”

Section: Introductionmentioning

confidence: 99%

Let Me Prep You to PREP Me: Amplifying the Voices of Black Women and Their Providers to Consider PrEP as an HIV Prevention Option

Chandler

Guillaume

Wells

et al. 2022

IJERPH

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Despite the high efficacy of pre-exposure prophylaxis (PrEP) in preventing HIV acquisition, PrEP uptake among Black cisgender women remains low. Our qualitative study assessed Black cisgender women’s perspectives, attitudes, and acceptability towards PrEP, in addition to exploring PrEP-related attitudes, facilitators, and barriers to PrEP access among health care staff. This study was conducted to ascertain data to inform the development of our HIV prevention app—Savvy HER—which is being designed for Black cisgender women. Our findings indicated that Black women had low levels of PrEP acceptability and high levels of misconceptions, inaccurate knowledge, and stigma towards PrEP. Health care providers in our sample confirmed barriers of stigma, misconceptions, and knowledge among their patients coupled with difficulty accessing PrEP due to structural barriers. Our study indicated that there is a critical need to heighten Black cisgender women’s PrEP knowledge and HIV risk perception in order to increase PrEP acceptability and uptake.

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Leveraging Social Media to Explore Black Women's Perspectives on HIV Pre-exposure Prophylaxis

Cited by 20 publications

References 17 publications

Barriers to the Wider Use of Pre-exposure Prophylaxis in the United States: A Narrative Review

Barriers to the Wider Use of Pre-exposure Prophylaxis in the United States: A Narrative Review

The pre-exposure prophylaxis (PrEP) consciousness of black college women and the perceived hesitancy of public health institutions to curtail HIV in black women

Let Me Prep You to PREP Me: Amplifying the Voices of Black Women and Their Providers to Consider PrEP as an HIV Prevention Option

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