Level of Parent–Asthmatic Child Agreement on Health-Related Quality of Life

Petsios, Konstantinos; Priftis, Kostas Ν.; Tsoumakas, Constantinos; Hatziagorou, Elpis; Tsanakas, John; Galanis, Petros; Αntonogeorgos, George; Matziou, Vasiliki

doi:10.3109/02770903.2011.555031

Cited by 45 publications

(55 citation statements)

References 29 publications

(42 reference statements)

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“…Parental reports of wheezing are widely accepted in epidemiological studies and reliably reflect the incidence of wheezing in preschool children [30]. When children do not have the cognitive ability to report their own HRQOL, proxy reports by parents are appropriate sources of information about HRQOL [31]. Both overestimation and underestimation of HRQOL scores may have occurred.…”

Section: Discussionmentioning

confidence: 99%

The impact of preschool wheezing patterns on health-related quality of life at age 4 years

Groen

Mohangoo²,

Landgraf³

et al. 2012

Eur Respir J

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We assessed whether dynamic preschool wheezing patterns affect health-related quality of life (HRQOL) at age 4 years.The study included 3878 children participating a prospective cohort study. Information on preschool wheezing was obtained by questionnaire and children were categorised into: never, early, late and persistent wheezing. At age 4 years HRQOL was measured using the Child Health Questionnaire (CHQ).Persistent wheezing was associated with reduced scores for nine out of 13 CHQ scales. No differences in psychosocial CHQ scores (p.0.05), but lower physical CHQ scores were found in children with late and persistent wheezing, compared to children who never wheezed (p,0.001). Mean scores on general health perceptions were, respectively, eight and 12 points lower (on a 0-100 scale) in children with late and persistent wheezing (p,0.001), and children with one to three episodes and four or more episodes of wheezing in the fourth year respectively scored seven and 24 points lower (p,0.001), compared to children who never wheezed.Persistent wheezing during preschool age independently affects a child's HRQOL, particularly general health perceptions and physical domains at age 4 years. HRQOL was more affected by frequent wheezing episodes in the fourth year of life, rather than by the duration of wheezing at age 0-4 years.

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Section: Discussionmentioning

confidence: 99%

The impact of preschool wheezing patterns on health-related quality of life at age 4 years

Groen

Mohangoo²,

Landgraf³

et al. 2012

Eur Respir J

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show abstract

“…27 Besides, a high level of disagreement was observed between children's self-assessment and that of fathers, which is contradictory to what previous studies suggested that fathers served better as proxies than mothers. 29 However, that study was conducted among children with asthma, whose capabilities are not as limited as in our target population.…”

Section: Discussionmentioning

confidence: 99%

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

2017

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Introduction. The assessment of health-related quality of life (HRQoL) serves to detect changes over time in patients' health status and allows to do a cost-effectiveness analysis of treatments. When children with special health features cannot perform a self-assessment, it is possible to assess their HRQoL through their parents or caregivers. To date, the discrepancy in the assessment of HRQoL using the EQ-5D-Y questionnaire among children with cerebral palsy (CP) and their parents has not been analyzed. The objective of this study was to analyze the level of agreement in the HRQoL assessment using the EQ-5D-Y questionnaire and its proxy version among children with CP and their parents or caregivers. Population and methods. Children and adolescents with CP, and their parents, from a special education school in the region of Extremadura (Spain) participated in the study. The EQ-5D-Y questionnaire was used for children and the EQ-5D-Y proxy version, for parents. Interviews were conducted in the first quarter of 2015. The level of agreement in the responses was analyzed using the Cohen's kappa coefficient for the five domains of the EQ-5D-Y and the intraclass correlation coefficient for the visual analogue scale. Results. Sixty-two children with CP and mild and/or moderate functional capacity impairment, and their parents, participated in the study. The level of agreement was poor in the HRQoL assessment between children and parents in all the questionnaire domains (<0.20) and fair or poor (<0.60) in the visual analogue scale. Conclusions. A high level of parent-child disagreement was observed in the HRQoL assessment in the population with CP using the EQ-5D-Y questionnaire.

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“…The correlation between child and parent reported quality of life improves with increasing age of the child (Annett et al, 2003). Although the agreement between child self-report and parent proxy report on health related quality of life has been showed as satisfactory, according to Petsios et al (2011), parents may overestimate health related quality of life of their children with asthma. This has to be taken into account when interpreting results from parent reported health related quality of life questionnaires, in comparison with child selfreports.…”

Section: Health Related Quality Of Life Instruments and Childhood Asthmamentioning

confidence: 99%

“…The most prominent asthma-specific health related quality of life questionnaires are the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) , the How Are You (HAY) (Le Coq et al, 2000) instrument and the Childhood Asthma Questionnaire (CAQ) (Christie et al, 1993). If children are unable to report about their own experience reliably, parents are appropriate sources of information about health related quality of life (Petsios et al, 2011). One study suggests that fathers may be better proxy reporters than mothers (Petsios et al, 2011).…”

Section: Health Related Quality Of Life Instruments and Childhood Asthmamentioning

confidence: 99%

“…If children are unable to report about their own experience reliably, parents are appropriate sources of information about health related quality of life (Petsios et al, 2011). One study suggests that fathers may be better proxy reporters than mothers (Petsios et al, 2011). The correlation between child and parent reported quality of life improves with increasing age of the child (Annett et al, 2003).…”

Section: Health Related Quality Of Life Instruments and Childhood Asthmamentioning

confidence: 99%

See 1 more Smart Citation

Asthma and Health Related Quality of Life in Childhood and Adolescence

Groen¹,

Raat²

2012

Allergic Diseases - Highlights in the Clinic, Mechanisms and Treatment

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Level of Parent–Asthmatic Child Agreement on Health-Related Quality of Life

Cited by 45 publications

References 29 publications

The impact of preschool wheezing patterns on health-related quality of life at age 4 years

The impact of preschool wheezing patterns on health-related quality of life at age 4 years

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

Asthma and Health Related Quality of Life in Childhood and Adolescence

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