Let's Talk Period! Preliminary results of an online bleeding awareness knowledge translation project and bleeding assessment tool promoted on social media

Reynen, Emily; Grabell, Julie; Ellis, Anne K.; James, Paula

doi:10.1111/hae.13271

Cited by 22 publications

(26 citation statements)

References 15 publications

(36 reference statements)

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“…It is likely that bleeding symptoms in men are more of a red flag to both clinicians and patients than in women, leading to faster presentation and diagnosis. It is suggested that 15% of women with heavy menstrual bleeding have an underlying inherited bleeding disorder, most commonly VWD, but remain undiagnosed, given barriers such as lack of understanding regarding the difference between normal and abnormal bleeding and social stigma . Menorrhagia was one of the most predictive symptoms of VWD in all regression models, highlighting the importance of screening women with unexplained menorrhagia for underlying bleeding disorders.…”

Section: Discussionmentioning

confidence: 99%

Bleeding assessment tools to predict von Willebrand disease: Utility of individual bleeding symptoms

Spradbrow

Letourneau

Grabell

et al. 2020

Research and Practice in Thrombosis and Haemostasis

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This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. AbstractBackground: Bleeding assessment is part of the diagnostic workup of von Willebrand disease (VWD). Bleeding assessment tools (BATs) have standardized obtaining this information but have been criticized because they are time consuming.Objective: To use our legacy data to determine which questions from BATs are the strongest predictors of a VWD diagnosis.Patients/Methods: Bleeding score data from 3 different BATs were used. Patients aged <12 years were excluded. Questions on BATs relate to different bleeding symptoms, and each symptom is scored by severity. Scores for each symptom were sorted based on whether they indicated clinically significant bleeding, and nonsignificant scores were set as the reference category. Multivariable logistic regression was used to determine the symptoms that were the strongest predictors of a laboratory-confirmed VWD diagnosis. Results:A total of 927 participants were included; 144 (16%) were patients with VWD, and 783 (84%) were healthy controls. The top 3 symptoms for which a clinically significant positive response increased the likelihood of VWD were hemarthrosis (odds ratio [OR], 19.2; 95% confidence interval [CI], 3.7-100.4), postsurgical bleeding (OR, 15.2; 95% CI, 5.9-38.9), and menorrhagia (OR, 10.3; 95% CI, 4.9-21.9).With each increase in number of bleeding symptom categories with clinically significant scores, subjects had a stepwise increase in odds of a VWD diagnosis. Conclusions:Our results suggest that most of the bleeding symptoms on BATs are significant predictors of VWD, and there is value in assessing multiple bleeding symptoms when eliciting a bleeding history. Certain bleeding symptoms are more useful predictors than others. Future BAT revisions may consider adding a relative weighting to each symptom.

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Section: Discussionmentioning

confidence: 99%

Bleeding assessment tools to predict von Willebrand disease: Utility of individual bleeding symptoms

Spradbrow

Letourneau

Grabell

et al. 2020

Research and Practice in Thrombosis and Haemostasis

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“…The women would appreciate it if their gynaecologists and haematologists could involve them in decision‐making regarding type of surgery and complication rate. Reynen et al showed that the use of an online website could be an effective method to increase awareness of a bleeding disorder when women are faced with HMB.…”

Section: Discussionmentioning

confidence: 99%

Women prefer proactive support from providers for treatment of heavy menstrual bleeding: A qualitative study in adult women with moderate or severe Von Willebrand disease

Eising

Sanders

Meris³

et al. 2018

Haemophilia

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“…Women should be given professional guidance to websites that are useful and accurate (EC), such as pamphlets from the American College of Obstetricians and Gynecologists (ACOG) 23 at acog.org/patient‐resources/faqs or misforwomen.com 24 ●Social media platforms have been shown to increase awareness of undiagnosed bleeding disorders 17 . Women could be directed to social media groups or platforms that might increase their awareness (EC). ●Telephone or video chat counseling of patients has been demonstrated to increase patient satisfaction, lower anxiety score, and not alter treatment complication or outcomes 12 .…”

Section: Resultsmentioning

confidence: 99%

“…24 • Social media platforms have been shown to increase awareness of undiagnosed bleeding disorders. 17 Women could be directed to social media groups or platforms that might increase their awareness (EC).…”

Section: Counseling On Aub In Telemedicinementioning

confidence: 99%

Guidance for gynecologists utilizing telemedicine during COVID‐19 pandemic based on expert consensus and rapid literature reviews

Grimes

Balk

Dieter

et al. 2020

Intl J Gynecology & Obste

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Background: COVID-19 has impacted delivery of outpatient gynecology and shifted care toward use of telemedicine. Objective: To rapidly review literature and society guidelines and create expert consensus to provide guidance regarding management of outpatient gynecology scenarios via telemedicine. Search strategy: Searches were conducted in Medline and Cochrane databases from inception through April 15, 2020. Selection criteria: Literature searches were conducted for articles on telemedicine and abnormal uterine bleeding, chronic pelvic pain, endometriosis, vaginitis, and postoperative care. Searches were restricted to available English language publications. Data collection and analysis: Expedited literature review methodology was followed and 10 943 citations were single-screened. Full-text articles and relevant guidelines were reviewed and narrative summaries developed. Main results: Fifty-one studies on the use of telemedicine in gynecology were found. Findings were reported for these studies and combined with society guidelines and expert consensus on four topics (abnormal uterine bleeding, chronic pelvic pain and endometriosis, vaginal discharge, and postoperative care). Conclusions: Guidance for treating gynecological conditions via telemedicine based on expedited literature review, review of society recommendations, and expert consensus is presented. Due to minimal evidence surrounding telemedicine and gynecology, a final consensus document is presented here that can be efficiently used in a clinical setting.

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Let's Talk Period! Preliminary results of an online bleeding awareness knowledge translation project and bleeding assessment tool promoted on social media

Cited by 22 publications

References 15 publications

Bleeding assessment tools to predict von Willebrand disease: Utility of individual bleeding symptoms

Bleeding assessment tools to predict von Willebrand disease: Utility of individual bleeding symptoms

Women prefer proactive support from providers for treatment of heavy menstrual bleeding: A qualitative study in adult women with moderate or severe Von Willebrand disease

Guidance for gynecologists utilizing telemedicine during COVID‐19 pandemic based on expert consensus and rapid literature reviews

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