“Let me touch him”: Perceptions and experiences of family caregivers of nursing home residents during the COVID-19 outbreak in Israel

Dolberg, Pnina; Lev, Sagit; Even-Zahav, Ronit

doi:10.1016/j.jaging.2023.101115

Cited by 5 publications

(13 citation statements)

References 49 publications

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“…Government planning, policymaking, and developmental strategies contribute significantly to the provision of appropriate healthcare services [ 51 ]. Government regulations play a critical role in governing healthcare settings [ 52 ], and the quality of services is contingent on how effectively the government provides guidance to organizations [ 53 ]. Government strategies address the demands of both employers and employees [ 54 ].…”

Section: Discussionmentioning

confidence: 99%

“Patient dignity can be ensured by providing adequate health care”: A phenomenological analysis on survival strategies of military nurses

Parvin,

Sharmi,

Kayesh

et al. 2024

Heliyon

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Section: Discussionmentioning

confidence: 99%

“Patient dignity can be ensured by providing adequate health care”: A phenomenological analysis on survival strategies of military nurses

Parvin,

Sharmi,

Kayesh

et al. 2024

Heliyon

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“…The literature points to a worsening in mental health conditions (such as higher levels of depression and anxiety, but also isolation and loneliness [ 33 ]) and a deterioration in behavioral symptoms due to reduced social contact during the pandemic [ 47 ]. A qualitative study exploring how family caregivers of nursing home residents experienced the COVID-19 crisis in nursing homes in Israel found that nursing homes neglected residents’ emotional and social needs, which led to cognitive, physical, and mental deterioration [ 48 ]. Another qualitative study found that the closure of social support services led to the faster deterioration of patients with Alzheimer’s, who also became more dependent [ 49 ].…”

Section: Discussionmentioning

confidence: 99%

Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy

De Vincenzo,

Marian,

Piol

et al. 2023

Behavioral Sciences

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Older adults and their family caregivers experience nursing home placement as a particularly critical time of life. The present study explored the experiences of family caregivers of nursing home residents taking part in a self-help group for caregivers. The sample was composed of six caregivers of older adults residing in a nursing home in the northeast of Italy. The respondents, aged 57 to 71, were part of a self-help group set up by the facility between 2017 and 2019. In this qualitative methodological design, we applied the principles of interpretative phenomenological analysis. Two main themes emerged from the interviews: (a) challenges in constructing experience as caregivers; and (b) shared experiences as stabilizing tools. The findings highlight the importance of self-help groups in fostering the well-being of caregivers of older adults living in nursing homes. The self-help group enabled caregivers to deal with nursing home placement and the sense of guilt deriving from it; understand and accept the disabilities affecting their loved one; comprehend the experience of ambiguous loss; and learn to listen to their own needs, thus avoiding physical and emotional exhaustion.

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“…Our findings contribute to a small international literature about family carers' experiences of care home restrictions (Hartigan et al, 2021;Nash et al, 2021;Chu et al, 2022Chu et al, , 2023Cornally et al, 2022;Giebel et al, 2022;Hanna et al, 2022;Chirico et al, 2023;Dolberg et al, 2023;Herron et al, 2023). To meet policy needs during the pandemic, these were commonly rapidly conducted and descriptive, and four papers drew upon two datasets, in the United Kingdom (UK) and Canada.…”

Section: Introductionmentioning

confidence: 89%

Family carers’ experiences of care home visiting restrictions during the COVID-19 pandemic: a relational autonomy perspective

Dixon,

Stubbs

2024

Ageing and Society

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Care home residents were vulnerable to severe effects from Covid-19 infection and experienced high mortality, especially early in the pandemic. In response, many countries introduced visiting restrictions to limit transmission. These often proved extensive and prolonged, drawing fresh attention to issues of autonomy and human rights in long-term care. We conducted in-depth interviews with 27 family carers in England with relatives living in a care home during the pandemic. Adopting a relational autonomy lens, conceptualised using the capability approach, we examined how family carers considered their relatives’ capabilities to have been impacted by visiting restrictions and how relational support could be strengthened. Family carers were concerned for their relative’s fundamental capabilities, including physical health, emotional well-being, and feeling connected to significant others. Capability deprivations were associated with family separation, ‘adapted’ visits that were inappropriate for their relative’s needs, and lack of opportunity for family carers’ to provide emotional support, help staff identify their relative’s emotional and physical needs, monitor care standards or advocate for their relative. Optimising relational support during a public health emergency requires effective collaboration between care homes and family carers. Specific measures include (1) ensuring there is clarity, a sense of shared purpose, clear accountability and confidence in visiting restrictions, (2) providing family carers regular, personalised updates about their relative using a range of digital communication tools, (3) allowing choice about visiting arrangements where possible, and ensuring visits are appropriate for residents with dementia and (4) ensuring that family carers feel welcomed, involved and enabled to resume in-person visits at the earliest opportunity. Consultation with care homes, families and residents, and workforce and digital readiness should be prioritised.

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“Let me touch him”: Perceptions and experiences of family caregivers of nursing home residents during the COVID-19 outbreak in Israel

Cited by 5 publications

References 49 publications

“Patient dignity can be ensured by providing adequate health care”: A phenomenological analysis on survival strategies of military nurses

“Patient dignity can be ensured by providing adequate health care”: A phenomenological analysis on survival strategies of military nurses

Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy

Family carers’ experiences of care home visiting restrictions during the COVID-19 pandemic: a relational autonomy perspective

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