Lessons Learned From a Life With Type 1 Diabetes: Adult Perspectives

Freeborn, Donna; Dyches, Tina Taylor; Roper, Susanne Olsen

doi:10.2337/ds16-0032

Cited by 12 publications

(15 citation statements)

References 32 publications

(26 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…1-3 This disease is globally widespread, affecting 1 in every 300 persons, with a steadily increasing frequency of incidence of approximately 3% every year. 4,5 There is sufficient proof to show that glycemic control greatly minimizes the risk of microvascular and macrovascular complications, as evident from long-term follow-up investigations. 6,7 Although intensive glycemic control provides great advantages, a wide gap continues to exist between evidence and practice in which a large percentage of patients fail to achieve the goal by neglecting self-monitoring through finger pricks (self-monitoring of blood glucose [SMBG]).…”

Section: Introductionmentioning

confidence: 99%

Acceptability of the FreeStyle Libre Flash Glucose Monitoring System: The Experience of Young Patients With Type 1 Diabetes

Hayek

Robert

Dawish

2020

Clin Med Insights Endocrinol Diabetes

View full text Add to dashboard Cite

Background: In the current era of modern technology, the development of smart devices such as the flash glucose monitoring (FGM) systems helps patients with diabetes to effortlessly monitor their glucose levels more frequently. In this study, we determine the user acceptability of FGM among young patients with type 1 diabetes (T1D). Methods: A cross-sectional study was performed among 67 young patients with T1D in the age group of 13 to 19 years and who were managed on the FGM method for self-testing the glucose levels for a minimum of 6 months. The participants acceptability measures that were collected with a standard questionnaire and where they rated their experience with the system on a scale of 1 (strongly agree/painless) to 5 (strongly disagree/severe pain). In addition to the demographic and clinical parameters, a closed/structured questionnaire was administered, in order to record the prior and present skin issues, over a 6-month period. Results: From the patient statements regarding sensor application, 95.5% of the study population strongly agreed that the sensor application caused less pain than the routine finger-stick. Similarly, 85% of the users strongly agreed that using the sensor was comfortable, while 94% strongly agreed that they found the small size of the FGM made it easy to wear, 47.8% strongly agreed that wearing the sensor did not attract attention, 70.1% reported no discomfort under the skin, 80.6% stated that the sensor could be scanned without anyone noticing it, 89.6% felt that the sensor did not affect their daily activities, 91% strongly agreed that the sensor was very compatible with their lifestyle, 79.1% reported ease with taking a glucose reading with the scan, 89.6% reported that taking glucose readings with this system would not disrupt their daily activities, and 76.1% participants were excited to share with other individuals their experiences with this system. A comparison of the self-monitoring of blood glucose and freestyle techniques demonstrated that 83.6% participants strongly agreed that it was less painful to get glucose readings from the freestyle sensor, and that it was a more discreet (83.6%), more comfortable (85.1%), easier (95.5%), faster (82.1%), simpler (79.1%), more private (88.1%), and less stressful (77.6%) method, with minimal hassle (74.6%). It is notable here that 86.6% of the participants reported absolutely no pain when the freestyle sensor was applied; also, the majority of the participants (91%) reported no pain symptoms when scanning the sensor. Conclusion: The findings of this study clearly showed that the study population had a high level of acceptability of the FGM.

show abstract

Section: Introductionmentioning

confidence: 99%

Acceptability of the FreeStyle Libre Flash Glucose Monitoring System: The Experience of Young Patients With Type 1 Diabetes

Hayek

Robert

Dawish

2020

Clin Med Insights Endocrinol Diabetes

View full text Add to dashboard Cite

show abstract

“…As shown in other studies, patients and families feel strongly that clinicians should emphasize the positive rather than use threats to motivate optimal self-care behaviors aimed at reducing risks of LTCs (7,19,20). This finding was further highlighted in a study eliciting guidance on provider conversations from adults commenting retrospectively on their experience growing up with type 1 diabetes, where "It's going to be OK" and "Teach them, don't scare them" emerged as major themes (21). Indeed, threats rarely serve as motivation to alter adolescent behaviors (22).…”

Section: Discussionmentioning

confidence: 84%

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

et al. 2021

View full text Add to dashboard Cite

AIMS | Conversations about diabetes complications with adolescents and parents can be difficult and emotionally charged. To better inform conversations between providers and families, we sought adolescent and parent perspectives regarding their knowledge of long-term complications (LTCs), where they receive this information, and what they would like to learn from clinicians.METHODS | Adolescents with type 1 diabetes and parents of adolescents with type 1 diabetes participated in semistructured interviews querying knowledge of LTCs, sources of information, and preferred ways for providers to discuss LTCs. Interview transcripts were coded and categorized into central themes by content analysis.RESULTS | Participants included 22 adolescents (17.4 6 1.7 years of age, diabetes duration 9.7 6 4.0 years) and 25 parents (41-60 years of age, 84% mothers). Five themes related to complications were identified: 1) "Limited Adolescent Knowledge of Complications," 2) "Discussing Complications Is Important but Not Now or Not for Me," 3) "Outside Sources Overestimate Risk," 4) "Avoid Scare Tactics" and 5) "Emphasize Prevention." Adolescent and parent perspectives were similar, although parents showed greater understanding of complications.CONCLUSION | When discussing complications, individualized, factual, positive, and prevention-focused conversations may be better received by adolescents with type 1 diabetes and their families.

show abstract

“…One of them, Number 7, challenged us because, although they exhibited clear evidence of leadership, becoming an awarded YLD, they continued to struggle with accepting their diagnosis and engaging in self-management. In NCDs, and specifically type 1 diabetes, daily selfmanagement commitment can be challenging (Freeborn et al, 2013(Freeborn et al, , 2017La Banca et al, 2020) and, eventually, individuals who seemed to have overcome the initial shock and have maintained proper self-care, may relapse (Graber et al, 1992;Ruggiero, 2000). Therefore, this participant remained at the same pre-YLD training Self position (first step of Stage 1) while also moving to the Narrow Leadership position at Stage 2 (the community stage).…”

Section: Discussionmentioning

confidence: 99%

The Empowerment Ladder: Understanding transition across leadership stages in individuals with type 1 diabetes and other noncommunicable diseases

Barone

Chaluppe²,

Ripoli

et al. 2021

Health Education Journal

View full text Add to dashboard Cite

Background: Acceptance and adjustment to lifelong noncommunicable diseases (NCDs) pose a great challenge for individuals living with these conditions. Diabetes is one of the most prevalent NCDs, with type 1 diabetes usually diagnosed during childhood. Self-leadership is linked to internal and external factors that may motivate individuals with NCDs to play an active role as changemakers in their community or society. The Young Leaders in Diabetes (YLD) training, created to equip young people with skills that would benefit the population to which they belong, uses the Empowerment Ladder as a framework to identify their position relative to three leadership stages (self, community and society). Objective: To describe the stages and the ‘climbing’ process of the Empowerment Ladder and assess its suitability as a framework for use in a leadership training context. Method: From among 29 youth leaders who participated, 15 were selected (5 men and 10 women) and had their community engagement and activity analysed before and after training. Individuals were positioned on the Empowerment Ladder according to their past and current roles and activities. The difference between pre- and post-training test grades (delta scores) was calculated. Results: Post-training scores were significantly higher than pre-training scores (8.9 ± 0.54 vs 7.6 ± 1.08, p = .00084). Most individuals moved to a higher step on the Empowerment Ladder; however, three individuals, with delta scores lower than the median (0.1, 0.15 and 0.85) remained at their pre-YLD training level. Only one individual moved from Stage 1 (self) to Stage 3 (society). Another individual occupied two different steps at Stages 1 and 2 simultaneously because, although they demonstrated community leadership, they had not yet accepted their own health condition. Conclusion: The Empowerment Ladder proved a useful tool for identifying stages from self to broader levels of leadership in individuals living with type 1 diabetes. These initial findings need to be validated with a larger population, which includes other NCD groups.

show abstract

Lessons Learned From a Life With Type 1 Diabetes: Adult Perspectives

Cited by 12 publications

References 32 publications

Acceptability of the FreeStyle Libre Flash Glucose Monitoring System: The Experience of Young Patients With Type 1 Diabetes

Acceptability of the FreeStyle Libre Flash Glucose Monitoring System: The Experience of Young Patients With Type 1 Diabetes

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

The Empowerment Ladder: Understanding transition across leadership stages in individuals with type 1 diabetes and other noncommunicable diseases

Contact Info

Product

Resources

About