Lessons from a comparative study of user involvement

Gutman, Carolyn; Ramon, Shulamit

doi:10.4324/9781351232630-4

Cited by 4 publications

(7 citation statements)

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“…Finally, user involvement in professional education has benefits for both sides. For professionals, to expand their knowledge base and for users to increase their confidence, self-respect, and feelings of empowerment that support their ability to become active partners ( 40 , 41 ).…”

Section: Discussionmentioning

confidence: 99%

SDM Training Modules for Health and Social Care Professionals in Israel

2021

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While the strategy of Shared Decision Making (SDM) originated in the medical field and was later adopted into the mental health arena, little attention has been paid to practice in the broader fields of the allied health and social care professions. These professions are grounded in the recognition of a need for practice that reflects the partnership and collaboration of the professional and the service user working together to further the health and well-being of the user. A pilot training module was developed to introduce and support students in their journey from exposure to the co-production ideology and the SDM strategy into clinical practice in the allied health and social care professions. The aim of the present article is to describe the students' experiences while learning about SDM and their use of this knowledge in their field practice in Israel. The students' experiences highlighted the complexity of integrating SDM into practice both at the individual student level as well as the macro environment. Moreover, it pointed to the need to further develop this co-production paradigm and the SDM strategy into the education of the allied health and social care professions.

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Section: Discussionmentioning

confidence: 99%

SDM Training Modules for Health and Social Care Professionals in Israel

2021

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“…While there would appear to be widespread consensus on a growing interest in service-user involvement in social work research (Cossar and Neil, 2015; Fleming et al., 2014; Gutman and Ramon, 2016; Littlechild et al., 2015), as recent as 2013 Boxall and Beresford (2013) concluded that service users are not central to social work research and there remains a need for further development. There are examples of participatory research within social work research; however, these are not commonplace (Branom, 2012) and are predominantly academic led.…”

Section: Evolution Of Service-user Researchmentioning

confidence: 99%

“…Particularly in the context of research with children, participatory research provides a medium for operationalisation of Article 12 of the UN Convention on the Rights of the Child which calls for children to have a voice in all that concerns them (Horgan, 2017). The experience is considered a powerful learning experience (Fleming et al., 2014), and empowerment is supplemented by the more tangible increase in knowledge, awareness and skills (Gutman and Ramon, 2016) and associated confidence and self-esteem, remuneration and employability (McLaughlin, 2010). Researching in their own service arena or community affords service users the opportunity to meet others in similar situations and become active in their community; establish a sense of purpose for themselves within their community and improve community capacity for addressing needs; participation can put service users in the position of being a meaningful part of positive outcomes for their own lives (Gutman and Ramon, 2016) and being part of social and political change (see Vignette 4).…”

Section: Why Engage In Participatory Research?mentioning

confidence: 99%

“…A number of challenges underpin this apparent anomaly. A first challenge facing potential participatory social work researchers is the fact that there is limited evaluation of participatory research (Gutman and Ramon, 2016; Hanley, 2005; Sheely, 2018). Indeed, Beresford (2002: 95) concluded that evaluation of service-user engagement was typically uncritical, erring on the benefits and thus depriving researchers considering participatory research of a solid evidence-based foundation upon which to build.…”

Section: Weighing Up Participatory Researchmentioning

confidence: 99%

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Considering a participatory approach to social work – Service user research

Flanagan

2019

Qualitative Social Work

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Service-user involvement in social work research is much vaunted and considered desirable. Yet, it is not common. This is despite the fact that research-funding bodies are increasingly mandating inclusion of service users in the research process. It would seem timely for the profession to look again at participatory research as an approach to working collaboratively with service users in the co-production of research. This article reviews the arguments for service-user collaboration in social work research; it considers the evolution of service-user engagement and its current status in practice. Building on the foundations of social work research methodologies, the article considers the practicalities of participatory research and the potential barriers. The article draws on vignettes of published participatory research to illustrate this type of research in social work.

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“…Out of the 12 selected articles, 9 articles spoke of service users and carer involvement within undergraduate social work education, the majority of which extolled the benefit to student learning. Two of these studies (Angelin 2015; Gutman and Ramon, 2016) considered the benefit to service users and carers requiring more training and inclusion for co-production in research. The remaining three studies (Biskin et al , 2013; Cossar and Neil, 2015; Loughran and McCann, 2015) discussed co-production with service users and carers in adoption, drugs, and education, respectively, using participatory action research methodology.…”

Section: Introductionmentioning

confidence: 99%

Does training in co-production lead to any real change in practice? Reflections from practitioners in Northern Ireland

Patton

McGlade

Elliott

2020

JICA

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PurposeThis paper explores the perceptions of a small cohort of participants in the “Involving People” programme. This 35-week course recruited staff from across statutory, voluntary and charity sectors who aimed to lead and develop change initiatives within their respective organisations. The study captured staff views on the extent to which their training in co-production enabled them to deliver sustainable service improvement within their organisations.Design/methodology/approachThis was a small scale, qualitative study, using a purposive sampling approach. Of the 18 staff participants, 5 agreed to participate in face-to-face semi-structured interviews. Through a process of free text analysis, several themes and sub-themes were identified.FindingsSeveral barriers and opportunities were highlighted coupled with suggestions on changes to public service delivery based on equal and reciprocal relationships between professionals, service users and their families. Organisational structures and silo working still act as an inhibiter for real change.Research limitations/implicationsAdditionally, it was demonstrated that training in the area of co-production can act as a catalyst for wider service improvements. It can enhance staff confidence to profile the importance of service user involvement, persuading their colleagues of its benefits and challenging practice where co-production is not happening. However, a collective leadership and a shared language on co-production are still needed to develop inclusive organisational cultures.Originality/valueThis was the first study of its kind in Northern Ireland which highlighted that there was a need for a collective leadership and a shared language on co-production to develop inclusive organisational cultures.

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Lessons from a comparative study of user involvement

Cited by 4 publications

References 0 publications

SDM Training Modules for Health and Social Care Professionals in Israel

SDM Training Modules for Health and Social Care Professionals in Israel

Considering a participatory approach to social work – Service user research

Does training in co-production lead to any real change in practice? Reflections from practitioners in Northern Ireland

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