Less reduction of psychosocial problems among adolescents with unmet communication needs

Jager, Margot; Reijneveld, Sijmen A.; Almansa, Josué; Metselaar, Janneke; Knorth, Erik J.; Winter, Andrea F. de

doi:10.1007/s00787-016-0901-y

Cited by 7 publications

(24 citation statements)

References 37 publications

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“…The coproduction of health and its constituent elements have positive outcomes. In particular, psychosocial comorbidities such as emotional symptoms, conduct problems, hyperactivity/inattention, peer problems, and the lack of prosocial behavior are reduced when communication needs regarding information and options are met 11 . Mack and colleagues conducted a study with AYAs who have experienced cancer, examining factors affecting decision‐making preferences, engagement, and regret.…”

Section: Introductionmentioning

confidence: 99%

“Living life as if I never had cancer”: A study of the meaning of living well in adolescents and young adults who have experienced cancer

Schreiner

Grossoehme

Friebert

et al. 2020

Pediatric Blood & Cancer

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Background Cancer diagnoses pose challenges to adolescents’ and young adults’ (AYA) physical, mental, and emotional health, and developmental tasks. In order for AYAs, caregivers, clinicians, and other collaborators to optimize health outcomes (coproduction of health), understanding what living well means for AYAs who have experienced cancer is necessary. The objective was to develop an empirical definition of “living well” for AYAs who have experienced cancer to broadly understand AYA values and priorities. This definition may ultimately guide future conversations between caregivers and AYAs, eliciting thorough, personal definitions of living well from individual AYAs. Such conversations may enhance AYA participation in coproducing their health. Procedure Qualitative analysis using a phenomenological approach of N = 30 structured Respecting Choices interviews conducted with AYAs (14‐21 years; mean 84.2 [SD 69] months postcancer diagnosis with 21% on active treatment) from four tertiary pediatric hospitals in the context of a primary study of a pediatric advance care planning intervention trial. Results AYAs who have experienced cancer conceptualized “living well” as maintaining physical, mental, and emotional health, as well as engaging in purposeful, age‐appropriate activities with people important to them. Living well had three components: living mindfully, living an identity as a healthy AYA, and spending time with friends and family. Conclusions Conversations with AYAs who have experienced cancer elicited rich, complex concepts of “living well.” Provider initiation of discussions about living well may facilitate personalized goals of care conversations. This study may serve as the basis to design and prototype future clinical interventions to enhance AYA engagement.

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Section: Introductionmentioning

confidence: 99%

“Living life as if I never had cancer”: A study of the meaning of living well in adolescents and young adults who have experienced cancer

Schreiner

Grossoehme

Friebert

et al. 2020

Pediatric Blood & Cancer

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“…The professionals in this study may have been sufficiently patient-centred to cope with the low health literacy in this group, thus preventing the worsening of relative outcomes over time, as suggested by the other studies [40]. Adequate patient-centred communication, an important determinant of treatment outcomes in psychosocial care for adolescents, may have contributed here [9]. Patient-centred communication strategies may be especially helpful for patients with an inadequate literacy level [41].…”

Section: Discussionmentioning

confidence: 77%

“…Treatment processes, i.e., treatment adherence and learning processes, were measured at 3 months, 1 year, and 2 years after intake. The assessment of these treatment processes was based on the previous studies using the Take Care data [9,23]. Treatment adherence was measured by the agreement of the professional with the statement 'the adolescent demonstrated adherence in between therapy sessions', on a scale of 0-10 with higher values indicating stronger adherence.…”

Section: Methodsmentioning

confidence: 99%

“…The total difficulties score (TDS) ranges from 0 to 40, with higher scores indicating more problems. Studies have shown that detection of adolescent psychopathology improves by combining multi-informant data [ 30 – 32 ], and the TDSs of adolescents and their parents were added and divided by two, resulting in a mean TDS across two informants, and following the same procedure as previously applied to this data [ 9 ].…”

Section: Methodsmentioning

confidence: 99%

“…Client health literacy may be pivotal in the interpersonal communication between adolescent and professional, and in turn affect treatment outcomes [9]. The National Institute of Health (NIH) defines health literacy as the "degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions" [10].…”

Section: Introductionmentioning

confidence: 99%

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The role of functional health literacy in long-term treatment outcomes in psychosocial care for adolescents

Beukema

Reijneveld

Jager

et al. 2020

Eur Child Adolesc Psychiatry

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Although among adolescents with psychosocial problems low health literacy may increase the risk of poor treatment outcomes, the contributing mechanisms within treatment remain unclear. A better understanding of these mechanisms could contribute to improved treatment processes and outcomes. This study aims to examine the relationship between functional health literacy, treatment processes (treatment adherence, learning processes), and treatment outcome (level of psychosocial problems) in adolescents in psychosocial care. We used data from a prospective cohort study among adolescents aged 12-18 (N = 390), collected in four successive measurements: at entry into care, and 3, 12, and 24 months thereafter. We used a mixed effect model to investigate the association between level of functional health literacy (adequate vs. inadequate) and treatment processes (treatment adherence, learning processes) and treatment outcome (level of psychosocial problems). Between adolescents with adequate and inadequate functional health literacy, we found no differences or change over time in adherence or learning processes. The level of psychosocial problems significantly declined over time (β = − 1.70, 95% CI [− 2.72, − 0.69], p = .001) to a similar degree in both groups, though, in all measurements, the level was consistently higher for adolescents with inadequate health literacy. We conclude that health literacy levels did not affect change in treatment processes nor in outcomes of psychosocial treatment. However, the consistently higher level of psychosocial problems among adolescents with inadequate health literacy suggests an unaddressed need in psychosocial care.

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Care improves self-reported daily functioning of adolescents with emotional and behavioural problems

Verhage

Reijneveld

Wunderink

et al. 2021

Eur Child Adolesc Psychiatry

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Emotional and behavioural problems (EBP) have a negative impact on various life domains of adolescents. Receiving care for EBP may improve the functioning of adolescents with EBP, but evidence on long-term outcomes in real-life settings is lacking. We, therefore, investigated self-reported functioning in different life domains of adolescents with various EBP, and the role of care during a three-year period. We used data from the TAKECARE study, which consist of a care and community cohort. We followed adolescents aged 12 and over (n = 733) during 3 years over five assessment rounds. Using the Strengths and Difficulties Questionnaire, self-reported functioning was measured in four life domains: home life, friendships, classroom learning and leisure activities. We categorized the respondents into four groups: (1) adolescents without emotional and behavioural problems (n = 298); (2) adolescents with emotional problems (n = 192); (3) adolescents with behavioural problems (n = 80); and (4) adolescents with both emotional and behavioural problems (n = 163). The development of functioning over time was analyzed using longitudinal ordinal (probit) regression analyses. Adolescents with both emotional and behavioural problems reported poorer functioning at baseline in all domains and adolescents who received care reported poorer functioning at baseline compared to adolescents who did not receive care. Regarding the change in functioning during the 3 years, adolescents who received care showed improved functioning in all domains. We found improved functioning after care, even if the problems may not have been solved. Psychosocial care can contribute to the functioning of adolescents with EBP, which can have major effects on their future life.

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Less reduction of psychosocial problems among adolescents with unmet communication needs

Cited by 7 publications

References 37 publications

“Living life as if I never had cancer”: A study of the meaning of living well in adolescents and young adults who have experienced cancer

“Living life as if I never had cancer”: A study of the meaning of living well in adolescents and young adults who have experienced cancer

The role of functional health literacy in long-term treatment outcomes in psychosocial care for adolescents

Care improves self-reported daily functioning of adolescents with emotional and behavioural problems

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