Les biothèques de transfusion sanguine en France : un outil de santé publique

Lefrère, Jean‐Jacques; Coudurier, N.

doi:10.1016/j.tracli.2009.03.019

Cited by 2 publications

(1 citation statement)

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“…While the debate over this issue in the USA has possibly delayed research progress and handed the competitive edge to the Europeans, even if only temporarily, the Dutch government supported the existing biobanks (151), while the UK government invested in the entirely new “UK Biobank” with at least 500 000 participants (152,153). In France, an interesting idea was proposed that a massive biobank could be developed very quickly and cost-effectively by recruiting people who volunteer to give blood in transfusion centers, as they would also be likely to take part in biobanking research (154). Other ideas included setting up biobanks as charitable trusts (155).…”

Section: Resultsmentioning

confidence: 99%

Ethical aspects of human biobanks: a systematic review

et al. 2011

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AimTo systematically assess the existing literature on ethical aspects of human biobanks.MethodWe searched the Web of Science and PubMed databases to find studies addressing ethical problems in biobanks with no limits set (study design, study population, time period, or language of publication). All identified articles published until November 2010 were included. We analyzed the type of published articles, journals publishing them, involvement of countries/institutions, year of publication, and citations received, and qualitatively assessed every article in order to identify ethical issues addressed by the majority of published research on human biobanking.ResultsHundred and fifty four studies satisfied our review criteria. The studies mainly came from highly developed countries and were all published in the last two decades, with over half of them published in 2009 or 2010. They most commonly discussed the informed consent, privacy and identifiability, return of results to participants, importance of public trust, involvement of children, commercialization, the role of ethics boards, international data exchange, ownership of samples, and benefit sharing.ConclusionsThe focus on ethical aspects is strongly present through the whole biobanking research field. Although there is a consensus on the old and most typical ethical issues, with further development of the field and increasingly complex structure of human biobanks, these issues will likely continue to arise and accumulate, hence requiring constant re-appraisal and continuing discussion.

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