Les besoins exprimés par les parents d’enfants ayant un TSA : une étude exploratoire franco-québécoise

Cappe, Émilie; Poirier, Nathalie

doi:10.1016/j.amp.2015.06.003

Cited by 18 publications

(5 citation statements)

References 18 publications

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“…[ 22 ], who reports that parents of children with ASD often use the Internet to search for information. In addition, they refer to discussion forums to confide in, seek advice or help from other parents who are experiencing the same reality [ 23 ]. This information concerns, according to the declarations of the mothers, the nature of autism (what is autism?…”

Section: Discussionmentioning

confidence: 99%

Challenges and unmet needs of mothers of preschool children with autism spectrum disorders in Tunisia: a qualitative study

Abid¹,

Hassine²,

Gaddour³

et al. 2022

Pan Afr Med J

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Introduction Autism spectrum disorder (ASD) is a life-changing condition, not only for the child but also for the mother and the usual caregiver. In fact, a child recently diagnosed with ASD is a real challenge to mothers´ adaptation, involves their resources, and gives rise to a set of needs. This study explores the unmet needs and experiences of mothers of ASD children in the Tunisian context. Methods a qualitative phenomenological design was chosen for this study and a semi-structured interview was used for eight mothers raising an autistic preschooler child. Results the results indicate significant denial and rejection following the announcement of the diagnosis. To cope with this, reliance on religion has helped foster acceptance. Although informal support (from family and friends) has sometimes been mentioned, an increased need for training, social and financial support has been expressed and is a major concern given the high cost of TSA services. Conclusion this study provides a deeper understanding of mothers' needs following the announcement of the diagnosis of ASD. These unmet needs should be taken into account when designing interventions strategies for children with ASD to help mothers cope and parent a child with ASD.

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Section: Discussionmentioning

confidence: 99%

Challenges and unmet needs of mothers of preschool children with autism spectrum disorders in Tunisia: a qualitative study

Abid¹,

Hassine²,

Gaddour³

et al. 2022

Pan Afr Med J

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“…La plupart des mères affirment que les interventions des professionnels des divers services sociaux ne sont pas adaptées aux besoins de leur fils. Tant les parents québécois que les parents français souhaitent obtenir des conseils de la part des professionnels et des services adaptés aux besoins de leur enfant présentant un TSA (Cappe et Poirier, 2015). Bien souvent les parents qui éduquent un enfant ayant un TSA font face à des comportements inadéquats ou dérangeants, mais surtout gênants devant les autres.…”

Section: Discussionunclassified

La qualité de vie et le processus d’adaptation (coping) de mères haïtiennes de garçons présentant un trouble du spectre de l’autisme

Paquette

Poirier

Cappe

2019

psyedu

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Cette étude exploratoire a pour but d’examiner les conséquences du trouble du spectre de l’autisme (TSA) (American Psychiatric Association [APA], 2013) sur la qualité de vie des mères issues de l’immigration haïtienne et leurs différentes stratégies d’adaptation. Douze mères d’origine haïtienne ont été interviewées. Leurs garçons sont âgés de 5 à dix-huit ans et présentent un TSA. Les mères ont répondu à 6 questionnaires conçus et adaptés par Cappe (2009) sur : 1) des informations concernant leur enfant et leur situation familiale; 2) le stress perçu; 3) le soutien social perçu; 4) le contrôle perçu; 5) les stratégies d’adaptation et 6) la qualité de vie. Les résultats ont été analysés selon une méthode quantitative descriptive et ils ouvrent des pistes de recherche et d’intervention auprès des mères d’enfants qui présentent un TSA. Certaines données qualitatives recueillies enrichissent ou appuient nos résultats. Les mères d’origine haïtienne perçoivent généralement leur sentiment de contrôle lors de l’apparition et pendant l’évolution du TSA de leur enfant dans le cadre de leur croyance religieuse. Cette étude a démontré que leur qualité de vie peut être considérée moyenne et que leurs stratégies d’adaptation sont principalement axées sur la résolution de problème ou sur la recherche d’un soutien social. Des recherches ultérieures devraient se pencher sur la question de l’élément religieux dans ce processus d’adaptation chez les parents d’origine haïtienne. Des études sur les outils permettant de mesurer ce type d’adaptation seraient profitables. D’autre part, il importe grandement que les interventions destinées à cette population tiennent compte des valeurs et du système de pensée de ces familles eu égard au TSA.

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“…Unfortunately, available research suggests that the social support needs of parents of children with ASD are often unmet (Bromley et al, 2004;Brown et al, 2012;Cappe & Poirier, 2016;Kiami & Goodgold, 2017). This seems to particularly be the case for mothers (Hartley & Schultz, 2015) who are most often the child's primary caregiver.…”

Section: Introductionmentioning

confidence: 99%

From Close Connections to Feeling Misunderstood: How Parents of Children with Autism Spectrum Disorder Perceive Support from Family Members and Friends

Laroche¹,

Rivières-Pigeon²

2022

CJFY

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This qualitative study examines the social support of parents of children with ASD living in Québec, Canada. Eighteen parents described their social support experiences before and after their child’s first signs of ASD. The results of this study indicate that parents recall many unhelpful support experiences after their child’s first signs of ASD. The results also suggest that the parents’ support needs greatly outweigh the support they perceive from family and friends. To our knowledge, this study is the first to recognise that receiving adequate social support requires significant involvement from parents who find themselves having to compensate for the lack of knowledge about autism in the general population. The results of this study put forth the active role that parents play in the reshaping of their support relationships and highlight the changes that occur in these relationships over time. Implications for practice and future research are discussed.

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Les besoins exprimés par les parents d’enfants ayant un TSA : une étude exploratoire franco-québécoise

Cited by 18 publications

References 18 publications

Challenges and unmet needs of mothers of preschool children with autism spectrum disorders in Tunisia: a qualitative study

Challenges and unmet needs of mothers of preschool children with autism spectrum disorders in Tunisia: a qualitative study

La qualité de vie et le processus d’adaptation (coping) de mères haïtiennes de garçons présentant un trouble du spectre de l’autisme

From Close Connections to Feeling Misunderstood: How Parents of Children with Autism Spectrum Disorder Perceive Support from Family Members and Friends

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