Length of home hospice care, family-perceived timing of referrals, perceived quality of care, and quality of death and dying in terminally ill cancer patients who died at home

Yamagishi, Akemi; Morita, Tatsuya; Kawagoe, Shohei; Shimizu, Masaharu; Ozawa, Taketoshi; An, Emi; Kobayakawa, Makoto; Tsuneto, Satoru; Shima, Yasuo

doi:10.1007/s00520-014-2397-7

Cited by 28 publications

(24 citation statements)

References 40 publications

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“…One potential reason may be how older adults in the United States are using hospice and palliative care services. [18][19][20] Between 2000 and 2009, there has been a striking increase in the number of short hospice stays. 2 Palliative care services remain underdeveloped in the outpatient setting.…”

Section: Discussionmentioning

confidence: 99%

Is Care for the Dying Improving in the United States?

Teno

Freedman

Kasper

et al. 2015

Journal of Palliative Medicine

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Background: Striking changes occurred in health care in the United States between 2000 and 2013, including growth of hospice and hospital-based palliative care teams, and changes in Medicare payment policies. Objective: The aim of this study was to compare informants' reports and ratings of the quality of end-of-life care for decedents between 2000 and 2011-2013. Methods: The study design comprised retrospective national surveys. Subjects were decedents age 65 years and older residing in the community from two time periods. Similar survey questions were asked at the two time periods. Bivariate and multivariate analyses were conducted, using appropriate survey weights to examine response differences between time periods, after adjusting for the decedent's age, race, pattern of functional decline, and the presence of a cancer diagnosis, as well as the respondent's relationship to the decedent.

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Section: Discussionmentioning

confidence: 99%

Is Care for the Dying Improving in the United States?

Teno

Freedman

Kasper

et al. 2015

Journal of Palliative Medicine

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“…A AD tem um potencial inovador, já que há maior permeabilidade das equipes aos diferentes aspectos vivenciados pelos pacientes e suas famí-lias e pela construção de um cuidado ampliado, não se restringindo aos aspectos biológicos da doença, principalmente quando se trata de terminalidade (7) . Estudos (8)(9)(10) Oriente, os estudos (11)(12) abordam a visão do cuidador familiar no processo de morte e morrer no domicílio, enquanto o paciente ainda passa pelo processo. Deste modo, a discussão foca especialmente a expectativa do paciente em relação ao lugar de morte, isto é, antes do acontecimento.…”

Section: Introductionunclassified

Visão Do Familiar Cuidador Sobre O Processo De Morte E Morrer No Domicílio

Oliveira

Santos

et al. 2016

Rev. baiana enferm

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Objetivo: conhecer a visão do cuidador familiar que vivenciou o processo de morte e morrer no domicílio. Método: estudo qualitativo descritivo com dez cuidadores familiares de pacientes oncológicos que estiveram internados no Programa de Internação Domiciliar Interdisciplinar e vivenciaram o processo de morte e morrer no domicílio. A coleta de dados, por meio de entrevista semiestruturada, ocorreu entre agosto e setembro de 2015. Na análise dos dados, recorreu-se à análise temática de conteúdo. Resultados: acompanhar o processo de morte e morrer no domicílio produziu tristeza, impotência e receio em relação às lembranças do acontecimento nesse espaço. No entanto, o suporte da equipe de atenção domiciliar e a religiosidade fortaleceram os cuidadores. Conclusão: a sobrecarga, o estado do paciente, os suportes técnico, social e espiritual que transcorrem no processo de morte e morrer, podem produzir experiências potentes ou aversivas ao domicílio como local de morte.

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“…In 2011, the National Hospice and Palliative Care Association estimated almost half (44.6%) of all deaths in the United States were under the care of hospice; however, about one-third of hospice beneficiaries did not enroll until their last week of life 6 , 7 . Although a short hospice episode is not necessarily an indication of delayed use, many families perceive the timing of hospice enrollment as late, and this perception is more common with stays of less than 4 weeks 8 , 9 . The perception of delayed hospice enrollment is associated with more unmet needs, higher reported concerns, and lower satisfaction 10 .…”

Section: Introductionmentioning

confidence: 99%

Are Trends in Hospitalization Prior to Hospice Use Associated With Hospice Episode Characteristics?

Kaufman

Chen

Windham

et al. 2016

Am J Hosp Palliat Care

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This study expands current knowledge of factors associated with initiation of hospice care by examining prehospice patterns of medical care leading to Medicare hospice use and the relationships to hospice episode characteristics. Data from the Atherosclerosis Risk in Communities (ARIC) study cohort offer the ability to control for measures that are not available in Medicare claims data, including marital status, nursing home residency, and education. For 1248 ARIC participants who used hospice (2006–2012), participant level trends in the number of hospital days per 30-day period over the year prior to hospice initiation were generated using a fixed-effects model. Logistic regression was used to estimate the associations between increasing hospital use over the year prior to hospice enrollment with key patient characteristics (diagnosis, age, and comorbidity) and episode characteristics (short hospice stay ending in death, long hospice stay, and live discharge). Participants with severe comorbidity (measured as a Charlson comorbidity index score greater than 5) had higher odds of increasing hospital use prior to hospice (odds ratio [OR] = 3.28, confidence interval [CI] = 2.25–4.78). Increasing hospital use did not vary by diagnosis but was associated with reduced odds of a live hospice discharge (OR = 0.55, CI = 0.34–0.88) or long stay in hospice (OR = 0.44, CI = 0.24–0.79) and increased odds of a short stay in hospice (OR = 1.92, CI = 1.36–2.71). The evidence that care patterns prior to hospice use are associated with hospice outcomes could facilitate development of interventions to improve timely hospice referral.

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Length of home hospice care, family-perceived timing of referrals, perceived quality of care, and quality of death and dying in terminally ill cancer patients who died at home

Cited by 28 publications

References 40 publications

Is Care for the Dying Improving in the United States?

Is Care for the Dying Improving in the United States?

Visão Do Familiar Cuidador Sobre O Processo De Morte E Morrer No Domicílio

Are Trends in Hospitalization Prior to Hospice Use Associated With Hospice Episode Characteristics?

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