Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

Hemsley, Bronwyn; McCarthy, Shaun; Adams, Natalie; Georgiou, Andrew; Hill, Sophie; Balandin, Susan

doi:10.3109/13668250.2017.1294249

Cited by 13 publications

(20 citation statements)

References 27 publications

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“…In particular, the attitudinal exploration of GPs and CPs towards CP led interventions on the choice, dose, and dose regimen of antimicrobial prescriptions, collaborative AMS approaches, and relevant policy changes would be an important observation to explain the opportunities of collaboration in AMS in future. Additionally, the perception regarding the AMS system structure such as the use of 'My Health Records' (Hemsley et al, 2018), eTG and telehealth will help to predict implementation feasibility of some evidence-based AMS strategies. Eventually, assimilation of the results of quantitative (practice and attitudinal issues), qualitative (barriers and facilitators), attitudinal modeling, and empirical feasibility assessment will be a strong scientific evidence to design a GPPAS model in the context of Australian primary care.…”

Section: Strengthmentioning

confidence: 99%

Development of an antimicrobial stewardship implementation model involving collaboration between general practitioners and pharmacists: GPPAS study in Australian primary care

Saha

Kong

Thursky

et al. 2021

Prim Health Care Res Dev

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Background: Rising antimicrobial resistance (AMR) in primary care is a growing concern and a threat to community health. The rise of AMR can be slowed down if general practitioners (GPs) and community pharmacists (CPs) could work as a team to implement antimicrobial stewardship (AMS) programs for optimal use of antimicrobial(s). However, the evidence supporting a GP pharmacist collaborative AMS implementation model (GPPAS) in primary care remains limited. Aim: With an aim to design a GPPAS model in Australia, this paper outlines how this model will be developed. Methods: This exploratory study undertakes a systematic review, a scoping review, nationwide surveys, and qualitative interviews to design the model. Medical Research Council (MRC) framework and Normalization Process Theory are utilized as guides. Reviews will identify the list of effective GPPAS interventions. Two AMS surveys and paired interviews of GPs and CPs across Australia will explore their convergent and divergent views about the GPPAS interventions, attitudes towards collaboration in AMS and the perceived challenges of implementing GPPAS interventions. Systems Engineering Initiative for Patient Safety (SEIPS 2.0) model and factor analyses will guide the structure of GPPAS model through identifying the determinants of GPPAS uptake. The implementable GPPAS strategies will be selected based on empirical feasibility assessment by AMS stakeholders using the APEASE (Affordability, Practicability, Effectiveness and cost-effectiveness, Acceptability, Side-effects and safety, Equity) criteria. Discussion: The GPPAS model might have potential implications to inform how to better involve GPs and CPs in AMS, and, to improve collaborative services to optimize antimicrobial use and reduce AMR in primary care.

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Section: Strengthmentioning

confidence: 99%

Development of an antimicrobial stewardship implementation model involving collaboration between general practitioners and pharmacists: GPPAS study in Australian primary care

Saha

Kong

Thursky

et al. 2021

Prim Health Care Res Dev

View full text Add to dashboard Cite

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“…Such considerations have prompted many to advocate for fundamental data governance structural changes to address today's data sharing reality. 4 20 21 This involves major discussions about how data is collected, stored, aggregated, linked, and transmitted. 22 For instance, when data is collected and stored for future use, it is impossible to anticipate all the potential future uses.…”

Section: Data Governance Requirementsmentioning

confidence: 99%

The Safe and Effective Use of Shared Data Underpinned by Stakeholder Engagement and Evaluation Practice

et al. 2018

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“…To safeguard patient privacy or personal data, there exist privacy standards in different regions of the world such as General Data Protection Regulation (GDPR) in Europe [13], [14], Health Insurance Portability and Accountability Act (HIPAA) in the United States (US) [15] and My Health Record (MHR) in Australia [16], [17]. These standards provide legislation to protect personal data but with fast paced advancement in Data Analytics (DA) and Artificial Intelligence (AI) [18], [19] poses new challenges for such standards.…”

Section: Introductionmentioning

confidence: 99%

Secondary Use of Electronic Health Record: Opportunities and Challenges

Shah¹,

Khan²

2020

IEEE Access

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In the present technological era, healthcare providers generate huge amounts of clinical data on a daily basis. Generated clinical data is stored digitally in the form of Electronic Health Record (EHR) as a central data repository of hospitals. Data contained in EHR is not only used for the patients' primary care but also for various secondary purposes such as clinical research, automated disease surveillance and clinical audits for quality enhancement. Using EHR data for secondary purposes without consent or in some cases even with consent creates privacy issues. Secondly, EHR data is also made accessible to various stakeholders including different government agencies at various geographical sites through wired or wireless networks. Sharing of EHR across multiple agencies makes it vulnerable to cyber attacks and also makes it difficult to implement strict privacy laws as in some cases data is shared with organization that is governed by specific regional law. Privacy of an individual could be severely affected when their sensitive private information contained in EHR is leaked or exposed to the public. Data leaks can cause financial losses or an individual may encounter social boycott if their medical condition is exposed in public. To protect patients personal data from such threats, there exists different privacy regulations such as General Data Protection Regulation (GDPR), Health Insurance Portability and Accountability Act (HIPAA) and My Health Record (MHR). However, continually evolving state-of-the-art techniques in Machine Learning (ML), Data Analytics (DA) and hacking are making it even more difficult to completely protect an individual's / patient's privacy. In this article, we have systematically examined various secondary uses of EHR with the aim to highlight how these secondary uses affect patients' privacy. Secondly, we have critically analyzed GDPR & HIPAA regulations and highlighted their possible areas of improvement, considering escalating use of technology and different secondary uses of EHR. INDEX TERMS Electronic Health Records (EHR), ethical concerns, General Data Protection Regulation (GDPR), privacy, secondary uses of EHR.

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Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia

Cited by 13 publications

References 27 publications

Development of an antimicrobial stewardship implementation model involving collaboration between general practitioners and pharmacists: GPPAS study in Australian primary care

Development of an antimicrobial stewardship implementation model involving collaboration between general practitioners and pharmacists: GPPAS study in Australian primary care

The Safe and Effective Use of Shared Data Underpinned by Stakeholder Engagement and Evaluation Practice

Secondary Use of Electronic Health Record: Opportunities and Challenges

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