Lebensqualität oder Lebenserwartung? Kriterien und Informationsquellen für die Entscheidungsfindung bei Patienten im Vorfeld von Aortenklappenoperationen/ Quality of life or life expectancy? Criteria and sources of information in the decision-making of patients undergoing aortic valve surgery

Schmied, Wolfram; Barnick, S; Heimann, D; Hj, Schäfers; Köllner,

doi:10.13109/zptm.2015.61.3.224

Cited by 7 publications

(18 citation statements)

References 18 publications

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“…In the case of heart valve surgery, studies show that there is not only the question regarding the type of procedure, but also the choice between biological and mechanical valve; too little knowledge and ability to assess information were seen as causes for difficulties in weighing up a decision [ 37 , 38 ]. Additionally, the peer-group exchange of information and individual experiences concerning, e.g., comorbidities or therapy side-effects, is perceived as helpful (which is in contrast to the findings of Schmied et al (2015), that social support or peers were sources to which little recourse was made) [ 39 ]. Its promotion may indirectly contribute to the development of individual HL, especially in the context of existing comorbidities (since there is evidence that comorbidities among patients with implantable cardioverter defibrillators and pacemakers are associated with inadequate HL [ 40 ]).…”

Section: Discussionmentioning

confidence: 99%

“…In contrast to this aspect, other findings suggested that participants did not want to be part of the direct decision but rather, in general, be emotionally supported by friends [ 37 , 58 ]. Then again, some studies showed that health professionals were valued in the decision-making process as “co-deciders” who take part in the decision or even take it from the patient [ 39 , 53 , 59 ]. Astin et al (2017) recommend to explore patients’ beliefs and preferences concerning quality and quantity of life in consultations [ 13 ].…”

Section: Discussionmentioning

confidence: 99%

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Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Hübner

Lorke

Buchholz

et al. 2022

IJERPH

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The continuous development of medical implants offers various benefits for persons with chronic conditions but also challenges an individual’s, and the healthcare system’s, ability to deal with technical innovation. Accessing and understanding new information, navigating healthcare, and appraising the role of the implant in body perceptions and everyday life requires health literacy (HL) of those affected as well as an HL-responsive healthcare system. The interconnectedness of these aspects to ethically relevant values such as health, dependence, responsibility and self-determination reinforces the need to address HL in implant care. Following a qualitative approach, we conducted group discussions and a diary study among wearers of a cochlear, glaucoma or cardiovascular implant (or their parents). Data were analysed using the documentary method and grounded theory. The data reveal the perceptions of implant wearers regarding the implant on (1) the ability to handle technical and ambiguous information; (2) dependence and responsibility within the healthcare system; and (3) the ethical aspects of HL. Knowing more about the experiences and values of implant wearers is highly beneficial to develop HL from an ethical perspective. Respective interventions need to initially address ethically relevant values in counselling processes and implant care.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Hübner

Lorke

Buchholz

et al. 2022

IJERPH

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“…If the abstract missed inclusion details then the method paper of the study was screened. Inclusion criteria were studies that had (1) assessed the QoL of older adults, (2) had a minimum of one population group of people with epilepsy aged 60 and older, (3) and used at least one standardised QoL measure (either specific to epilepsy or general). The types of study designs included for review were randomised controlled trials (RCT), cohort, cross-sectional, observational and case reports.…”

Section: Study Selectionmentioning

confidence: 99%

The quality of life of older adults with epilepsy: A systematic review

Baranowski

2018

Seizure

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The aim of this systematic review is to identify and synthesise the current literature on the quality of life (QoL) of older adults with epilepsy. Studies were included if they (1) assessed the QoL of older adults (2) had a minimum of one population group of people with epilepsy aged 60 and older and (3) used a standardised QoL measure. Databases searched were PubMed, Scopus, Cochrane Library and PubPsych. A total of 201 abstracts were screened, of which 10 articles met the criteria. A 17-item standardised checklist was used to analyse the methodological quality of the studies. This checklist was derived from other systematic reviews which analysed the QoL of those with other health conditions and modified to suit the purpose of this review. The findings were synthesised to compare the overall QoL of older adults in comparison to younger age groups and to identify which QoL factors were the most and least negatively impacted by the presence of epilepsy and old age. Predictors of QoL were identified from findings that used a regression analysis and were rated regarding their strength of evidence. No clear differences for overall QoL were found between older and younger people with epilepsy. Participants reported energy/fatigue to be the most negatively impacted factor. Seizure frequency was a strong predictor of QoL, and comorbidity and depression were moderate predictors. The modest number of studies available for synthesis is a reflection of the gap in current literature on this topic. Future research needs to include more variables within their regression analysis to identify more predictors of QoL, and needs to compare QoL changes over the trajectory of older age.

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“…1 ), step three – information about treatment options, was most widely described and mentioned within twelve studies. Ten studies reported the means by which information was delivered (decision aid [ 27 , 33 , 34 ] or through HCP [ 28 , 29 , 32 , 36 , 37 , 39 , 41 ]) while two studies did not make any clear specifications [ 31 , 40 ]. A second most widely applied SDM step was the exploration of patient wishes and concerns in the decision-making process (step 4)[ 27 , 29 , 32 – 34 , 36 , 37 ].…”

Section: Resultsmentioning

confidence: 99%

Shared decision making and advance care planning: a systematic literature review and novel decision-making model

Rosca,

Karzig-Roduner,

Kasper

et al. 2023

BMC Med Ethics

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Background and Aims Shared decision making (SDM) and advance care planning (ACP) are important evidence and ethics based concepts that can be translated in communication tools to aid the treatment decision-making process. Although both have been recommended in the care of patients with risks of complications, they have not yet been described as two components of one single process. In this paper we aim to (1) assess how SDM and ACP is being applied, choosing patients with aortic stenosis with high and moderate treatment complication risks such as bleeding or stroke as an example, and (2) propose a model to best combine the two concepts and integrate them in the care process. Methods In order to assess how SDM and ACP is applied in usual care, we have performed a systematic literature review. The included studies have been analysed by means of thematic analysis as well as abductive reasoning to determine which SDM and ACP steps are applied as well as to propose a model of combining the two concepts into one process. Results The search in Medline, Cinahl, Embase, Scopus, Web of science, Psychinfo and Cochrane revealed 15 studies. Eleven describe various steps of SDM while four studies discuss the documentation of goals of care. Based on the review results and existing evidence we propose a model that combines SDM and ACP in one process for a complete patient informed choice. Conclusion To be able to make informed choices about immediate and future care, patients should be engaged in both SDM and ACP decision-making processes. This allows for an iterative process in which each important decision-maker can share their expertise and concerns regarding the care planning and advance care planning. This would help to better structure and prioritize information while creating a trustful and respectful relationship between the participants. PROSPERO 2019. CRD42019124575

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Lebensqualität oder Lebenserwartung? Kriterien und Informationsquellen für die Entscheidungsfindung bei Patienten im Vorfeld von Aortenklappenoperationen/ Quality of life or life expectancy? Criteria and sources of information in the decision-making of patients undergoing aortic valve surgery

Abstract: Preoperative counseling by a physician plays an essential role in the decision-making process prior to cardiac surgery. Patients want to be involved in decision-making, though they do not want to bear the full responsibility.

Cited by 7 publications

References 18 publications

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

Health Literacy in the Context of Implant Care—Perspectives of (Prospective) Implant Wearers on Individual and Organisational Factors

The quality of life of older adults with epilepsy: A systematic review

Shared decision making and advance care planning: a systematic literature review and novel decision-making model

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