Le vécu de mères d’enfants atteints de drépanocytose en contexte d’hospitalisation au Cameroun

Nsangou, Hassan Njifon

doi:10.1016/j.cahpu.2022.01.010

Cited by 2 publications

(2 citation statements)

References 2 publications

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“…Although prevalent in other regions of the world with projections of a stabilization at 8% of the world population from the 2014 decades and onward, sickle cell has this prevalence in Sub-Saharan Africa. This is the most affected region by this disease (Njifon where more than 75% of affected children die before the age of 5 (Njifon Nsangou & Scelles, 2019) due to lack of a diagnosis and early care as well as a technical platform consisting of hospitals where the care of affected children is costly for patients and their families (Njifon Nsangou, 2022b;.…”

Section: Introductionmentioning

confidence: 99%

“…Sickle cell disease is culturally thought of as the manifestation and/or consequence of the transgression of an ancestral norm by the patient or by a member of their family group (Njifon Nsangou, 2022a, 2022bNjifon Nsangou & Scelles, 2021). Most often, it is the mother who is designated as the main responsible for this illness, she is often accused, as in most cases of child disability in the sub-Saharan African context (Tsala Tsala, 1996), of having transgressed an ancestral norm during pregnancy (Njifon Nsangou, 2022a;Tsala Tsala, 2009a).…”

Section: Introductionmentioning

confidence: 99%

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The psychological experience of sickle cell disease in a Cameroonian adolescent living with her grandparents

Nsangou,

Mboe

2024

Nusant. J. Behav. and. Soc. Sci

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Sickle cell disease, the most widespread genetic disorder globally, is characterized by chronic and painful crises and high treatment costs, particularly in the Sub-Saharan African context where the disease is often associated with imminent death. This study aims to understand the experiences of an adolescent in Cameroon living with this disease and residing with her grandparents. Through in-depth interviews, we reveal how therapy non-compliance—particularly evident in medication delays—and the ambivalent behavior of her grandparents impact her disease management. The grandparents exhibit behaviors that are sometimes overprotective and at times aggressive, which not only affect how this adolescent understands and manages her condition but also hinder the process of subjectivation of her disease. These findings highlight the need to provide a space for grandparents to express their understanding of their granddaughter's illness and to assume their role in the care process. This study extends our understanding of family dynamics in managing sickle cell disease and demonstrates the importance of supporting grandparents as crucial resources in healthcare within this context.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The psychological experience of sickle cell disease in a Cameroonian adolescent living with her grandparents

Nsangou,

Mboe

2024

Nusant. J. Behav. and. Soc. Sci

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Vécu des pères d’enfants atteints de trouble du spectre de l’autisme en contexte camerounais : une étude clinique exploratoire

Njifon Nsangou,

Dongmo Nguefack

2024

Dialogue

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Le trouble du spectre de l’autisme se manifeste par des difficultés d’interaction, de communication sociale et des comportements répétitifs commençant tôt dans la vie d’un enfant. Ce texte explore, à travers des entretiens, le vécu de quatre pères d’enfants atteints de ce trouble au Cameroun. Les résultats de cette étude montrent la souffrance des pères et leur sentiment d’impuissance, qui engendre chez eux une blessure narcissique tout en renforçant leur sentiment d’étrangeté concernant ce handicap et l’enfant atteint. L’étude montre la nécessité d’un soutien psychologique des pères dans le processus de soin des enfants atteints pour en faire, au même titre que les mères, une ressource pour les professionnels du soin et pour l’enfant atteint.

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Le vécu de mères d’enfants atteints de drépanocytose en contexte d’hospitalisation au Cameroun

Cited by 2 publications

References 2 publications

The psychological experience of sickle cell disease in a Cameroonian adolescent living with her grandparents

The psychological experience of sickle cell disease in a Cameroonian adolescent living with her grandparents

Vécu des pères d’enfants atteints de trouble du spectre de l’autisme en contexte camerounais : une étude clinique exploratoire

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