Le travail de la souffrance au cours d’une situation de handicap : le cas de la drépanocytose

Dong, Thierry; Nsangou, Hassan Njifon

doi:10.1016/j.amp.2021.11.001

Cited by 1 publication

(2 citation statements)

References 2 publications

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“…These results show that this patient registers her illness in a Western medical register from which she gives it meaning. This relationship to illness and care contrasts with that described by recent literature (Dong & Njifon Nsangou, 2022;Njifon Nsangou, 2022a;Njifon Nsangou & Scelles, 2021), who discuss the conflict between traditional beliefs and modern medical practices in the treatment of sickle cell disease in Cameroon. Contrary to studies that suggest a high level of acceptance of biomedical treatment among urban populations (Richard, Mubiri, & Bioy, 2014), our study reveals persistent reliance on traditional beliefs in rural settings, complicating compliance and overall disease management.…”

Section: Discussioncontrasting

confidence: 63%

“…This illness is also represented in terms of persecution, not only of the patient, but more of his family group, by a persecuting third party; a sorcerer, an evil spirit. It is, in this sense, thought of as an evil that inhabits the family (Dong & Njifon Nsangou, 2022). Furthermore, families of children affected by this disease are often stigmatized and experience a feeling of shame, for having given birth to an affected child, indicating the transgression of an ancestral norm of which they feel guilty (Njifon .…”

Section: Introductionmentioning

confidence: 99%

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The psychological experience of sickle cell disease in a Cameroonian adolescent living with her grandparents

Nsangou,

Mboe

2024

Nusant. J. Behav. and. Soc. Sci

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Sickle cell disease, the most widespread genetic disorder globally, is characterized by chronic and painful crises and high treatment costs, particularly in the Sub-Saharan African context where the disease is often associated with imminent death. This study aims to understand the experiences of an adolescent in Cameroon living with this disease and residing with her grandparents. Through in-depth interviews, we reveal how therapy non-compliance—particularly evident in medication delays—and the ambivalent behavior of her grandparents impact her disease management. The grandparents exhibit behaviors that are sometimes overprotective and at times aggressive, which not only affect how this adolescent understands and manages her condition but also hinder the process of subjectivation of her disease. These findings highlight the need to provide a space for grandparents to express their understanding of their granddaughter's illness and to assume their role in the care process. This study extends our understanding of family dynamics in managing sickle cell disease and demonstrates the importance of supporting grandparents as crucial resources in healthcare within this context.

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