Lay people’s experiences with reading their medical record

Wibe, Torunn; Hellesø, Ragnhild; Slaughter, Laura; Ekstedt, Mirjam

doi:10.1016/j.socscimed.2011.03.006

Cited by 23 publications

(30 citation statements)

References 13 publications

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“…Although some PHR evaluations seem to show enhanced patient uptake when patients had a lack of trust in their clinician,51 52 other information seems to indicate that encouragement of PHR uptake by a patient's clinician has a positive influence on patient use and that patient and clinician PHR use enhances their relationship 53. Our findings support Nazi's findings53 and extend them to show, as in figure 1, that the patient–clinician relationship explicitly supports all critical components of patient engagement in the IPHRs.…”

Section: Discussionmentioning

confidence: 99%

How patients want to engage with their personal health record: a qualitative study

et al. 2013

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ObjectiveTo assess factors related to use and non-use of a sophisticated interactive preventive health record (IPHR) designed to promote uptake of 18 recommended clinical preventive services; little is known about how patients want to use or be engaged by such advanced information tools.DesignDescriptive and interpretive qualitative analysis of transcripts and field notes from focus groups of the IPHR users and of patients who were invited but did not use the IPHR (non-users). Grounded theory techniques were then applied via an editing approach for key emergent themes.SettingPrimary care patients in eight practices of the Virginia Ambulatory Care Outcomes Research Network (ACORN).ParticipantsThree focus groups involved a total of 14 IPHR users and two groups of non-users totalled 14 participants.Outcomes/resultsFor themes identified (relevance, trust and functionality) participants indicated that endorsement and use of the IPHR by their personal clinician was vital. In particular, participants’ comments linked the IPHR use to: (1) integrating the IPHR into current care, (2) promoting effective patient–clinician encounters and communication and (3) their confidence in the accuracy, security and privacy of the information.ConclusionsIn addition to patients’ stated desires for advanced functionality and information accuracy and privacy, successful adoption of the IPHRs by primary care patients depends on such technology's relevance, and on its promotion via integration with primary care practices’ processes and the patient–clinician relationship. Accordingly, models of technological success and adoption, when applied to primary care, may need to include the patient–clinician relationship and practice workflow. These findings are important for healthcare providers, the information technology industry and policymakers who share an interest in encouraging patients to use personal health records.Trial RegistrationClinicaltrials.gov identifier: NCT00589173

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Section: Discussionmentioning

confidence: 99%

How patients want to engage with their personal health record: a qualitative study

et al. 2013

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“…Patient initiatives to ensure information flow between different providers are also described in other studies [18]. By offering direct contact with the specialist unit in the tertiary hospital, the OPNC service can contribute to reassuring the patient that the staff of the local, secondary hospital, or the primary care physician has sufficient information and knowledge to take care of him.…”

Section: Discussionmentioning

confidence: 99%

How Does an Online Patient-Nurse Communication Service Meet the Information Needs of Men with Recently Diagnosed Testicular Cancer?

et al. 2012

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Online communication has become a potential means of communication between patients and health care providers, but so far few studies are published about online communication as part of nursing care. The aim of this study was to explore how an online patient-nurse communication (OPNC) service meets the information needs of men with newly diagnosed testicular cancer. We applied a qualitative approach by examining the content of online messages sent by patients to nurses in a specialist cancer unit. In addition, individual interviews were conducted with patients who had used the OPNC service. Four themes became distinct through a synthesis of the material from the interviews and the messages: “a means for managing illness-related concerns at home,” “a means for ensuring information flow,” “a means for strategic information seeking,” and “not yet available when needed most.” Individualized information provided by nurses with access to their medical record was shown to be important to these patients. The findings of this study indicate that not only may access to an OPNC service help patients fulfill their otherwise unmet information needs, but also it may prevent delays and discontinuity in care due to informational gaps and lead to improved patient safety.

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“…Recent research strives for a holistic understanding of childbirth experiences, based on women’s perceptions of risk (Sharma et al, 2011), the myriad of meanings underlying notions of ‘control’ (Namey & Lyerly, 2010), pain (Declercq et al, 2008), previous delivery outcomes (David et al, 2010; Kaimal & Kuppermann, 2010; Pang et al, 2008), race (Getahun et al, 2009; Rosenthal & Lobel, 2011; Selo-Ojeme et al, 2008), medical record information (Wibe et al, 2011), midwifery practices (Danerek et al, 2011), and community factors (Leone et al, 2008). These influences are increasingly viewed as interacting, and are replacing the antagonistic view of defensive medicine that dominated earlier literature (Bassett et al, 2000).…”

Section: Introductionmentioning

confidence: 99%

Misrecognition of need: Women's experiences of and explanations for undergoing cesarean delivery

Tully

Ball

2013

Social Science & Medicine

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International rates of operative delivery are consistently higher than the World Health Organization determined is appropriate. This suggests that factors other than clinical indications contribute to cesarean section. Data presented here are from interviews with 115 mothers on the postnatal ward of a hospital in Northeast England during February 2006 to March 2009 after the women underwent either unscheduled or scheduled cesarean childbirth. Using thematic content analysis, we found women’s accounts of their experiences largely portrayed cesarean section as everything that they had wanted to avoid, but necessary given their situations. Contrary to popular suggestion, the data did not indicate impersonalized medical practice, or that cesareans were being performed ‘on request.’ The categorization of cesareans into ‘emergency’ and ‘elective’ did not reflect maternal experiences. Rather, many unscheduled cesareans were conducted without indications of fetal distress and most scheduled cesareans were not booked because of ‘choice.’ The authoritative knowledge that influenced maternal perceptions of the need to undergo operative delivery included moving forward from ‘prolonged’ labor and scheduling cesarean as a prophylactic to avoid anticipated psychological or physical harm. In spontaneously defending themselves against stigma from the ‘too posh to push’ label that is currently common in the media, women portrayed debate on the appropriateness of cesarean childbirth as a social critique instead of a health issue. The findings suggest the ‘need’ for some cesareans is due to misrecognition of indications by all involved. The factors underlying many cesareans may actually be modifiable, but informed choice and healthful outcomes are impeded by lack of awareness regarding the benefits of labor on the fetal transition to extrauterine life, the maternal desire for predictability in their parturition and recovery experiences, and possibly lack of sufficient experience for providers in a variety of vaginal delivery scenarios (non-progressive labor, breech presentation, and/or after previous cesarean).

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Lay people’s experiences with reading their medical record

Cited by 23 publications

References 13 publications

How patients want to engage with their personal health record: a qualitative study

How patients want to engage with their personal health record: a qualitative study

How Does an Online Patient-Nurse Communication Service Meet the Information Needs of Men with Recently Diagnosed Testicular Cancer?

Misrecognition of need: Women's experiences of and explanations for undergoing cesarean delivery

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