Latino Caregiver Coping With Children's Chronic Health Conditions: An Integrative Literature Review

Desai, Priti P.; Rivera, Abigail Torres; Backes, Emily M.

doi:10.1016/j.pedhc.2015.06.001

Cited by 17 publications

(21 citation statements)

References 35 publications

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“…Emotional and service-related support from partners, extended family, and friends were common findings in the literature (Cashin, Small, & Solberg, 2008;Desai et al, 2016). However, the ʻohana in the study appeared to be a much larger network of involved relatives than listed in the literature (Cashin et al, 2008).…”

Section: Discussionmentioning

confidence: 58%

“…In the face of uncertainty, the findings in this study and existing literature described several coping strategies used by participants such as vigilance (Cashin et al, 2008) and information seeking (Cashin et al, 2008;Desai et al, 2016;Swallow et al, 2011). Also, the study identified two types of therapies utilized by native Hawaiians: Western therapies and CAM remedies.…”

Section: Discussionmentioning

confidence: 67%

“…Similar findings in the literature related to provider characteristics and expectations, stereotyping of parents, and use of ineffective communication skills (Hines, 2011). Notably, when providers demonstrated personalismo [a warm and personal approach], Latino parents were more inclined to trust what was being communicated (Desai, Rivera, & Backes, 2016). Like personalismo, aloha [compassion] and kōkua [helpfulness] are equally significant to Hawaiian parents in receiving information (The Native Hawaiian Health Research Consortium, 1985).…”

Section: Discussionmentioning

confidence: 68%

“…It is similarly found in other cultures such as Latino (la familia; Desai et al, 2016), Mexican (familismo; Arcoleo et al, 2015), and Māori (whānau; Jones, Ingham, Cram, Dean, & Davies, 2013). In these cultures, the family is the primary source of social relationships and assistance crucial to one's sense of identity and self-worth (Desai et al, 2016;Jones et al, 2013). Family support (Scheckner, Arcoleo, & Feldman, 2015) and higher levels of family connectedness and stronger ethnic identity appear to be protective factors against asthma-related limitations (Koinis-Mitchell et al, 2012).…”

Section: Discussionmentioning

confidence: 83%

Section: Discussionmentioning

confidence: 86%

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Mālama nā makua i nā keiki me ka hānō: Native Hawaiian parents caring for their children with asthma

Kealoha¹,

Kataoka‐Yahiro²

2017

Asian/Pacific Island Nursing Journal

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Native Hawaiian children have the highest prevalence rate of asthma among all ethnicities in the State of Hawai'i. Literature is limited regarding native Hawaiian parents' perception and experience caring for their children with asthma. The purpose of this study is to explore contemporary native Hawaiian parents' perspective and experience of caring for their children with asthma in the context of uncertainty. We applied a descriptive qualitative approach by means of directed content analysis using focus groups. Directed content analysis applied Mishel's Uncertainty in Illness Theory to guide data collection, organization, and analysis. We found that parents' personal stories about their children to be rich and enlightening. Findings verified that native Hawaiian parents experience uncertainty regarding asthma care as commonly described in the literature. Contextual influences including indigenous worldview and cultural values affected native Hawaiian parents' perceptions and experiences with conventional asthma care. Unique findings involved the etiology of asthma, features of social support ('ohana), and differentiation between Western medicine and traditional healing practices. As nurses focus on supporting the family's cultural values and preferences related to asthma care and alternative remedies, native Hawaiian parents' care of their children with asthma will be strengthened.

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Section: Discussionmentioning

confidence: 58%

Section: Discussionmentioning

confidence: 67%

Section: Discussionmentioning

confidence: 68%

Section: Discussionmentioning

confidence: 83%

Section: Discussionmentioning

confidence: 86%

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Mālama nā makua i nā keiki me ka hānō: Native Hawaiian parents caring for their children with asthma

Kealoha¹,

Kataoka‐Yahiro²

2017

Asian/Pacific Island Nursing Journal

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Parental coping with childhood cancer and its relationship with self‐construal: A survey in southeast Iran

Ghorbani

Iranmanesh

Razban

et al. 2020

Health Science Reports

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Background Childhood cancer is a major challenge for parapets. Parents are one of the main sources of emotional support for their child, but their ability to provide proper care during their child's illness and treatment depends entirely on the way they manage to cope with diagnosis and its outcomes. Parents' coping pattern seems to be affected by their perception of themselves or their surroundings. Aim To investigate parents' coping strategies with childhood cancer and its relation with self‐construal. Methods A total of 127 eligible parents participated in this descriptive correlational study. Results Medical, social support, and family strategies were respectively helpful for parents. The interdependent self‐construal score was higher than the independent self‐construal score. A significant relationship was found between interdependent self‐construal and social support (P = .01). Discussion It seems that individualists and collectivists' cultural context influence the usefulness of coping strategies. These differences should be considered in training of coping strategies.

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Perceptions and experiences of living with type 1 diabetes among Latino adolescents and parents with limited English proficiency

Joiner

DeJonckheere

Whittemore

et al. 2020

Research in Nursing & Health

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We explored perceptions and experiences of living with type 1 diabetes mellitus (T1DM) among U.S. Latino adolescents (age 12-19 years) with T1DM and parents with limited English proficiency. We used a qualitative descriptive approach with semi-structured interviews of adolescents together with their parents. Interview data were reviewed, coded, and combined into themes about participant experiences with T1DM. Twenty-four adolescents (mean age: 15.4 years) and 23 parents participated. Analysis resulted in three themes: (a) Understanding and adapting to T1DM (i.e., initial fear and misunderstandings of T1DM; adolescents' reflections on living with a chronic health condition); (b) Coming to terms with social and environmental influences on T1DM self-management (i.e., T1DM as disruptive to school and social activities; dealing with stigma and judgments related to diabetes); and, (c) Integrating T1DM self-management expectations with components of Latino cultures (i.e., orientation toward family well-being; parent concerns about cultural preferences that influence food choices, positive influence of spirituality and religiousness; parental views of their current health care in comparison to that available in their place of birth). Adolescents and their parents reported experiences that are universal to adolescents with T1DM in addition to challenges that are unique to Latinos. Efforts aimed at improving T1DM self-management during adolescence with this population need to be tailored to meet the unique social and cultural contexts and delivered in a culturally and linguistically congruent manner. K E Y W O R D S adolescent, Hispanic Americans, parents, self-care, self-management, type 1 diabetes mellitus | 271 ORCID Kevin L. Joiner

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Latino Caregiver Coping With Children's Chronic Health Conditions: An Integrative Literature Review

Cited by 17 publications

References 35 publications

Mālama nā makua i nā keiki me ka hānō: Native Hawaiian parents caring for their children with asthma

Mālama nā makua i nā keiki me ka hānō: Native Hawaiian parents caring for their children with asthma

Parental coping with childhood cancer and its relationship with self‐construal: A survey in southeast Iran

Perceptions and experiences of living with type 1 diabetes among Latino adolescents and parents with limited English proficiency

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