Late Effects in Survivors After Hematopoietic Cell Transplantation in Childhood

Baker, K. Scott; Petryk, Anna; Fisher, V.L.; Duncan, Christine; Carpenter, Paul A.

doi:10.1007/978-3-642-39920-6_7

Cited by 3 publications

(1 citation statement)

References 298 publications

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“…Hypogonadism is common after HCT (Sklar et al 2001;Smith et al 2014). In both boys and girls, hypergonadotropic hypogonadism (primary gonadal failure) is more common than hypogonadotropic hypogonadism (due to hypothalamic pituitary dysfunction) (Baker et al 2009).…”

Section: Fertility Preservation In the Paediatric Populationmentioning

confidence: 99%

The European Blood and Marrow Transplantation Textbook for Nurses

Kenyon

Babic

2018

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Section: Fertility Preservation In the Paediatric Populationmentioning

confidence: 99%

The European Blood and Marrow Transplantation Textbook for Nurses

Kenyon

Babic

2018

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Transplant Preparation

Bompoint

Castagna²,

Hutt

et al. 2023

The European Blood and Marrow Transplantation Textbook for Nurses

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HSCT is a complex procedure, which involves a long and complicated pathway for the patient and the intervention of many health professionals. Within this multidisciplinary team, the transplant coordinator, usually a nurse, is the ‘essential marrow’, the heart and the vital backbone of this procedure; they are an essential transplant ingredient facilitating a fluidity of the pathway and a good transmission of information. Written information about the procedure is beneficial for patients either prior to clinic visit or during clinic to allow the patients and relatives to reflect on conversations. Transplantation carries a significant risk of morbidity and mortality, and these should be considered regarding the ‘need’ to transplant, based upon risk of disease, versus risk of the transplant. Pre-transplant assessments must also be undertaken, and the results of these along with suitable donor medical clearance and cell availability are essential to ascertain that transplant is a valid option and can proceed safely. Dealing with fertility preservation upon diagnosis of cancer is often challenging; this issue is even more complex for paediatric patients. PDWP recommends that counselling about fertility preservation opportunities should be offered to each patient receiving HSCT.This chapter also focuses on vascular access for optimal treatment of haematology patients because stem cell treatment cannot be performed without it. Constant advances in haematology have raised challenging ethical dilemmas concerning end of life, palliative care, patient information, donor concerns and impartiality and issues related to the risk we run to our patients. Nurses provide a key role in patient education, providing pre- and post-transplant advocacy and counselling, plan hospitalisations and consultations. They also act as educators and role models to nursing students and share knowledge in accordance with local policies and JACIE guidelines.

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