Lapse of care as a predictor for morbidity in adults with congenital heart disease

Yeung, Elizabeth; Kay, Joseph; Roosevelt, Genie; Brandon, Mary J.; Yetman, Anji T.

doi:10.1016/j.ijcard.2007.02.023

Cited by 292 publications

(293 citation statements)

References 6 publications

(6 reference statements)

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“…Adverse health-related outcomes documented in the young adult population with diabetes include a decline in disease self-care behaviors and an increased risk for diabetes-related complications (Bryden et al 2001;Fredericks et al 2010;Yeung et al 2008). In addition, emerging adults with diabetes are at higher than average risk for psychosocial morbidity including social delays and isolation, impaired social competence, and emotional problems such as depression (Helgeson et al 2007).…”

Section: Type 1 Diabetes Mellitus (Dm)mentioning

confidence: 99%

Emerging Adulthood as a Critical Stage in the Life Course

Wood

Crapnell

Lau

et al. 2017

Handbook of Life Course Health Development

281

264

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Section: Type 1 Diabetes Mellitus (Dm)mentioning

confidence: 99%

Emerging Adulthood as a Critical Stage in the Life Course

Wood

Crapnell

Lau

et al. 2017

Handbook of Life Course Health Development

281

264

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“…The notion of a care gap includes concepts found in literature such as lapse(s) of care, 25 loss/lost to follow-up, 34,35 unsuccessful transfer or transition, [36][37][38] and cessation of follow-up. 21 …”

Section: Eligibility Criteriamentioning

confidence: 99%

“…21 This break in the delivery of health care (ie, care gaps) as adolescent patients leave pediatric care is associated with increased morbidity rates, longterm complications, number of hospitalizations, need for urgent interventions or reinterventions, and higher rates of health-risk behaviors. 17,[20][21][22][23][24][25][26][27][28][29][30] Therefore, developing measures to prevent such care gaps are of utmost importance.…”

mentioning

confidence: 99%

Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood

Goossens

Bovijn

Gewillig³

et al. 2016

Pediatrics

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CONTEXT: Breaks in the delivery of health care (ie, [health]care gaps) occur in a large proportion of young people transitioning to adulthood. Developing interventions that prevent adolescents from dropping out of the medical system, as they leave pediatric care, requires an understanding of determinants of care gaps. OBJECTIVE:To ascertain determinants of care gaps in young people with chronic conditions as they transition to adulthood by performing a systematic literature search.DATA SOURCES: MEDLINE, CINAHL, and Embase were queried for pertinent peer-reviewed publications.STUDY SELECTION: Primary quantitative or mixed methods studies that aimed to identify determinants of care gaps in young people (aged 10-25 years) diagnosed with complex chronic conditions and written in English, French, or Dutch were selected. Ten publications satisfied these criteria. DATA EXTRACTION:For each publication, determinants of care gaps and quantitative results were extracted. Determinants were categorized into 4 groups using thematic analysis. Quantitative results were standardized, and raw data were converted into odds ratios. RESULTS:Overall, 11 risk factors and 9 protective factors for care gaps were identified. All factors were related to patient characteristics. Demographics, disease-related characteristics, health care services use, and patient health behaviors and beliefs were significant determinants of care gaps in adolescents with chronic conditions. LIMITATIONS: Large variability in study methods, statistical techniques, and study populations resulted in inconsistent study findings. CONCLUSIONS:This systematic review identified patient-related determinants of care gaps. Unfortunately, the internal and external validity of the study findings are limited, warranting future prospective, multilevel studies that address remaining knowledge gaps.

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“…As a consequence, the concept of transition emerged, defined as a process of "a purposeful planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-orientated health care systems" [3]. Unfortunately, the transfer to AHC is still often the result of an ad hoc decision, and some adolescents even drop out of the health care system temporarily until they seek help for acute medical problems in the AHC system [17,18,23,30,32]. Such poor transition processes may have significant negative effects on morbidity and mortality in young adults [2,10,17].…”

Section: Ahc Adult Health Carementioning

confidence: 99%

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

2010

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The aim of this study was to assess the expectations of adolescents with chronic disorders with regard to transition from pediatric to adult health care and to compare them with the expectations of their parents. A cross-sectional study was carried out including 283 adolescents with chronic disorders, aged 14-25 years (median age, 16.0 years), and not yet transferred to adult health care, and their 318 parents from two university children's hospitals. The majority of adolescents and parents (64%/70%) perceived the ages of 18-19 years and older as the best time to transfer to adult health care. Chronological age and feeling too old to see a pediatrician were reported as the most important decision factors for the transfer while the severity of the disease was not considered important. The most relevant barriers were feeling at ease with the pediatrician (45%/38%), anxiety (20%/24%), and lack of information about the adult specialist and health care (18%/27%). Of the 51% of adolescents with whom the pediatric specialist had spoken about the transfer, 53% of adolescents and 69% of parents preferred a joint transfer meeting with the pediatric and adult specialist, and 24% of these adolescents declared that their health professional had offered this option. In summary, the age preference for adolescents with chronic disorders and their parents to transfer to adult health care was higher than the upper age limits for admission to pediatric health care in many European countries. Anxiety and a lack of information of both adolescents and their parents were among the most important barriers for a smooth and timely transfer according to adolescents and parents. Abstract The aim of this study was to assess the expectations of adolescents with chronic disorders with regard to transition from pediatric to adult health care and to compare them with the expectations of their parents. A cross-sectional study was carried out including 283 adolescents with chronic disorders, aged 14-25 years (median age, 16.0 years), and not yet transferred to adult health care, and their 318 parents from two university children's hospitals. The majority of adolescents and parents (64%/70%) perceived the ages of 18-19 years and older as the best time to transfer to adult health care. Chronological age and feeling too old to see a pediatrician were reported as the most important decision factors for the transfer while the severity of the disease was not considered important. The most relevant barriers were feeling at ease with the pediatrician (45%/38%), anxiety (20%/24%), and lack of information about the adult specialist and health care (18%/ 27%). Of the 51% of adolescents with whom the pediatric specialist had spoken about the transfer, 53% of adolescents and 69% of parents preferred a joint transfer meeting with the pediatric and adult specialist, and 24% of these adolescents declared that their health professional had offered this option. In summary, the age preference for adolescents with chronic disorders and their parents to tra...

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Lapse of care as a predictor for morbidity in adults with congenital heart disease

Cited by 292 publications

References 6 publications

Emerging Adulthood as a Critical Stage in the Life Course

Emerging Adulthood as a Critical Stage in the Life Course

Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood

Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents

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