La qualité de vie et ses mesures

Brousse, C.; Boisaubert, B.

doi:10.1016/j.revmed.2007.02.010

Cited by 19 publications

(6 citation statements)

References 11 publications

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“…Measurement of QOL was evidenced based on the idea that the general description of health ceased to be just the absence of disease; therefore, in research, attention was directed to both welfare practices and public policies, since QOL is one of the main measures of impact on the public health of different populations [6][7][8] .…”

Section: Introduction Methodsmentioning

confidence: 99%

Descriptions of Perceived Quality of Life of Residents from a Quilombo in North Brazil

Sousa

Maciel

Quaresma

et al. 2018

J. Hum. Growth Dev.

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Introdução: Os traços de iniquidade relacionados à cor da pele ainda são observados na população brasileira, deixando evidente os prejuízos na Qualidade de Vida e cuidados da saúde da população negra.Objetivo: Descrever a qualidade de vida dos quilombolas residentes na comunidade Barra do Aroeira no município de Santa Tereza, Tocantins, Brasil.Método: Estudo descritivo de caráter transversal, realizado entre os meses de outubro de 2015 e setembro de 2016 na comunidade quilombola Barra do Aroeira, localizada a 12 quilômetros da área urbana do Município de Santa Teresa e a 96 quilômetros de Palmas, capital do estado de Tocantins. Foi aplicado um instrumento para a avaliação da qualidade de vida das crianças, utilizando o questionário - Autoquestionnaire Qualité de Vie Enfant Imagé (Auqei), o qual possui 26 itens e uma escala composta por quatro fatores: Autonomia, Lazer, Função e Família que abrangem 18 itens, os de números 6, 7, 9, 12, 14, 20, 22 e 26 não estão incluídas nos fatores citados por não pertencerem a um domínio específico, com isso sua análise é de forma isolada. Para avaliação da qualidade de vida em adultos foi utilizado o World Health Organization Quality of Life (WHOQOL-bref) instrumento que possui 26 assertivas, divididas em quatro domínios: físico, psicológico, relações sociais e meio ambiente, mais 2 assertivas gerais de qualidade de vida. A análise descritiva dos dados qualitativos foi realizada por frequência absoluta e frequência relativa. Para as variáveis quantitativas, utilizou-se, média, desvio padrão, mínimo e máximo. O programa utilizado foi o Stata versão 11.0.Resultados: Em relação a qualidade de vida das crianças segundo o sexo, as meninas apresentaram média de 11,0 no fator Função, no fator Família, Lazer e Autonomia, se apresentou com média de 12,3, 8,2 e 4,8, respectivamente. Para os meninos o fator Função teve média de 11,0, o fator Família de 12,0, e os fatores Lazer e Autonomia de 7,6 e 5,6, nessa sequência. Entre os adultos os homens apresentaram menor valor no domínio Físico com média de 13,7, as mulheres tiveram menores médias nos domínios Físico e Meio ambiente, com valores iguais a 13,8. Nos escores gerais o sexo masculino obteve maior valor quando comparado ao sexo feminino, 14,0 e 13,6, respectivamente.Conclusão: O estudo demonstrou que entre as crianças o fator Familiar apresentou maiores valores médios, seguido dos fatores Função, Lazer e Autonomia, respectivamente. Ao estudar os adultos, o domínio com melhor escore foi o de Relações sociais, por outro lado, o domínio Físico apresentou o pior escore para homens e mulheres. Contudo, investigações realizadas referentes à qualidade de vida em quilombolas representam um número ainda baixo, dificultando a compreensão das possibilidades de melhoria da qualidade de vida nessa população.

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Section: Introduction Methodsmentioning

confidence: 99%

Descriptions of Perceived Quality of Life of Residents from a Quilombo in North Brazil

Sousa

Maciel

Quaresma

et al. 2018

J. Hum. Growth Dev.

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“…Records were included if QALYs or WTP were used to quantify the burden of tinnitus in individuals whose primary or secondary complaint was current tinnitus. We searched for (1)…”

Section: Eligibility Criteriamentioning

confidence: 99%

“…In chronic diseases, patient-centred care aims to capture patients’ perception and lived experience of the disease, associated handicap, treatment expectations, and adaptation mechanisms by assessing their health-related quality of life (HRQoL) [ 1 , 2 ]. Its measurement is crucial for healthcare decision-making as it allows the quantification of the burden of the disease and the assessment of the benefits of an intervention from the patient’s perspective [ 3 ].…”

Section: Introductionmentioning

confidence: 99%

The Utility of Economic Measures to Quantify the Burden of Tinnitus in Affected Individuals: A Scoping Review

Daoud

Caimino

Akeroyd

et al. 2021

PharmacoEconomics Open

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Background and objectives Tinnitus is a chronic subjective condition that impacts patients' health-related quality of life (HRQoL) and requires multidisciplinary interventions. In health economics, quality-adjusted life years (QALYs) and willingness to pay (WTP) are essential for evaluating treatment effectiveness in cost-effectiveness, cost-utility, or cost-benefit analysis. The extent to which these economic measures have been used in tinnitus research has not been investigated. The objectives of this scoping review were to explore findings and limitations of existing studies and provide an insight into how these economic measures could be used to quantify the burden of tinnitus in affected individuals. Methods A scoping review was conducted following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) methodological framework. The search strategy involved four electronic databases. Records were included when QALYs or WTP were measured in individuals whose primary or secondary complaint was tinnitus. Results A total of 15 studies were identified: three WTP assessment studies and 12 QALY assessment studies using direct preference-based measures (PBMs) (n = 4), indirect PBMs (n = 7), and a disease-specific psychometric instrument (n = 1). The limited use to date of PBMs to assess HRQoL in tinnitus patients is an important finding. Conclusions Further studies using reliable economic methods and focusing on patients' WTP for treatment or their preference for their current health state are needed. Applying PBMs in tinnitus research is crucial not only for the healthcare decisionmaking process but also to improve patient-centred care.

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“…A challenge in the field of QOL research refers to its measurement. The strategy to measurement and selection of a particular instrument is largely a function of the definition of QOL [ 11 , 15 ]. There are two main approaches to measuring QOL: Using generic scales or using disease-specific scales.…”

Section: Introductionmentioning

confidence: 99%

Development and validation of a quality of life measurement scale specific to hereditary hemorrhagic telangiectasia: the QoL-HHT

Martinent

Dupuis‐Girod

et al. 2022

Orphanet J Rare Dis

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Background Hereditary hemorrhagic telangiectasia (HHT) disease is a rare genetic disorder with symptoms and complications that can significantly affect patients’ daily lives. To date, no scale has been validated to assess the specific symptoms of this disease on the quality of life (QOL) of HHT patients. This makes it difficult for clinicians to accurately measure the quality of life of patients with HHT. The present study aims to develop and validate a QOL measurement tool specific to HHT disease: the QOL questionnaire in HHT (QoL-HHT). Methods A quantitative, non-interventional, multi-center study involving HHT patients in twenty French HHT expert centers was conducted. A calibration sample of 415 HHT patients and a validation sample of 228 HHT patients voluntarily participated in the study. Data were analyzed using exploratory factor analysis (EFA), confirmatory factor analysis (CFA), Exploratory Structural Equation Modeling (ESEM) analyses, reliability analyses, and correlational analyses. Results The EFA, CFA and ESEM results allowed us to provide evidence of the factorial structure of a questionnaire composed of 24 items measuring 6 domains of QOL: Physical limitations, social relationships, concern about bleeding, relationship with the medical profession, experience of symptoms, and concern about the evolution of the disease. Cronbach’s alpha coefficients (> 0.70) demonstrated reliable internal consistency of all the QoL-HHT scores (dimensions). The results of the test–retest provided further evidence of the reliability of the QOL-HHT scores over time. Correlational analyses provided evidence for the convergent validity of the QoL-HHT scores. Conclusions We developed a simple and quick self-assessment tool to measure quality of life specific to HHT disease. This study demonstrated reliability and validity of our QoL-HHT scores. It is a very promising tool to evaluate the impact of HHT disease on all aspects of the quality of life of HHT patients in order to offer them individualized medico-psycho-social support. Trial registration: ClinicalTrials, NCT03695874. Registered 04 October 2018, https://www.clinicaltrials.gov/ct2/show/NCT03695874

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La qualité de vie et ses mesures

Cited by 19 publications

References 11 publications

Descriptions of Perceived Quality of Life of Residents from a Quilombo in North Brazil

Descriptions of Perceived Quality of Life of Residents from a Quilombo in North Brazil

The Utility of Economic Measures to Quantify the Burden of Tinnitus in Affected Individuals: A Scoping Review

Development and validation of a quality of life measurement scale specific to hereditary hemorrhagic telangiectasia: the QoL-HHT

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