La participation des patients à l'évaluation des mesures alternatives à la contention et à l'isolement

Dipankui, Mylène Tantchou; Gagnon, Marie‐Pierre; Desmartis, Marie; Piron, Florence; Gagnon, Johanne; Rhainds, Marc; Coulombe, Martin

doi:10.3917/spub.138.0217

Cited by 4 publications

(1 citation statement)

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“…Particular attention is given to the author’s experience of being involved as a PhD student in the research team project, recruited to evaluate patient involvement in this HTA. The evaluation had three components: patient participation in the working group activities set up to assess this HTA 16 ; the effects of patient involvement in this HTA 17 ; and the collaboration between researchers and decision-makers. The present article focuses on the last component.…”

Section: Introductionmentioning

confidence: 99%

Collaboration Between Researchers and Knowledge Users in Health Technology Assessment: A Qualitative Exploratory Study

Dipankui

2016

Int J Health Policy Manag

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Background: Collaboration between researchers and knowledge users is increasingly promoted because it could enhance more evidence-based decision-making and practice. These complex relationships differ in form, in the particular goals they are trying to achieve, and in whom they bring together. Although much is understood about why partnerships form, relatively little is known about how collaboration works: how the collaborative process is shaped through the partners’ interactions, especially in the field of health technology assessment (HTA)? This study aims at addressing this gap in the literature in the specific context of HTA. Methods: We used a qualitative descriptive design for this exploratory study. Semi-structured interviews with three researchers and two decision-makers were conducted on the practices related to the collaboration. We also performed document analysis, observation of five team meetings, and informal discussion with the participants. We thematically analyzed data using the structuration theory and a collective impact framework. Results: This study showed that three main contextual factors helped shape the collaboration between researchers and knowledge users: the use of concepts related to each field; the use of related expertise; and a lack of clearly defined roles in the project. Previous experiences with the topic of the research project and a partnership based on "a give and take" relationship emerged as factors of success of this collaboration. Conclusion: By shedding light on the structuration of the collaboration between researchers and knowledge users, our findings open the door to a poorly documented field in the area of HTA, and additional studies that build on these early observations are welcome.

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Section: Introductionmentioning

confidence: 99%

Collaboration Between Researchers and Knowledge Users in Health Technology Assessment: A Qualitative Exploratory Study

Dipankui

2016

Int J Health Policy Manag

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Patient and public involvement in health technology assessment: update of a systematic review of international experiences

Gagnon

Dipankui

Poder

et al. 2021

Int J Technol Assess Health Care

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Objective To summarize current evidence on patient and public involvement (PPI) in health technology assessment (HTA) in order to synthesize the barriers and facilitators, and to propose a framework to assess its impact. Methods We conducted an update of a systematic review published in 2011 considering the recent scientific literature (qualitative, quantitative, and mixed-methods studies). We searched papers published between March 2009 (end of the initial search) and December 2019 in five databases using specific search strategies. We identified other publications through citation tracking and contacting authors of previous related studies. Reviewers independently selected relevant studies based on prespecified inclusion and exclusion criteria. We extracted information using a pre-established grid. Results We identified a total of 7872 publications from the main search strategy. Ultimately, thirty-one distinct new studies met the inclusion criteria, whereas seventeen studies were included in the previous systematic review. PPI is realized through two main strategies: (i) patients and public members participate directly in decision-making processes (participation) and (ii) patients or public perspectives are solicited to inform decisions (consultation or indirect participation). This review synthesizes the barriers and facilitators to PPI in HTA, and a framework to assess its impact is proposed. Conclusion The number of studies on patients or public involvement in HTA has dramatically increased in recent years. Findings from this updated systematic review show that PPI is done mostly through consultation and that direct involvement is less frequent. Several barriers to PPI in HTA exist, notably the lack of information to patients and public about HTA and the lack of guidance and policies to support PPI in HTA.

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Bibliographie

2017

Démocratie Sanitaire

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La participation des patients à l'évaluation des mesures alternatives à la contention et à l'isolement

Cited by 4 publications

References 16 publications

Collaboration Between Researchers and Knowledge Users in Health Technology Assessment: A Qualitative Exploratory Study

Collaboration Between Researchers and Knowledge Users in Health Technology Assessment: A Qualitative Exploratory Study

Patient and public involvement in health technology assessment: update of a systematic review of international experiences

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