La lutte contre le sida : le face à face des associations et de l’État

Saout, Christian

doi:10.3917/seve.046.0025

Cited by 2 publications

(1 citation statement)

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“…Citizen knowledge of LD prevention and care can modify their own behavior but also that of their relatives because people who are sick are very sensitive to advise from relatives. Our work highlights citizen involvement as a tool to move from confrontation to cooperation ( 86 , 87 ). From data collection to the co-design of prevention or plan of care with expert patients, all these examples of citizen involvement open a new realm of questions that are particularly important in health sciences.…”

Section: Discussionmentioning

confidence: 99%

Design theory to better target public health priorities: An application to Lyme disease in France

Vourc’H

Berthet

et al. 2022

Front. Public Health

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In the context of complex public health challenges led by interdependent changes such as climate change, biodiversity loss, and resistance to treatment, it is important to mobilize methods that guide us to generate innovative interventions in a context of uncertainty and unknown. Here, we mobilized the concept-knowledge (CK) design theory to identify innovative, cross-sectoral, and cross-disciplinary research and design programs that address the challenges posed by tick-borne Lyme disease in France, which is of growing importance in the French public health and healthcare systems. Within the CK methodological framework, we developed an iterative approach based on literature analysis, expert interviews, analysis of active French research projects, and work with CK experts to contribute to design “an action plan against Lyme disease.” We produced a CK diagram that highlights innovative concepts that could be addressed in research projects. The outcome is discussed within four areas: (i) effectiveness; (ii) environmental sustainability in prevention actions; (iii) the promotion of constructive involvement of citizens in Lyme challenges; and (iv) the development of care protocols for chronic conditions with an unknown diagnosis. Altogether, our analysis questioned the health targets ranging from population to ecosystem, the citizen involvement, and the patient consideration. This means integrating social and ecological science, as well as the multidisciplinary medical patient journey, from the start. CK theory is a promising framework to assist public health professionals in designing programs for complex yet urgent contexts, where research and data collection are still not sufficient to provide clear guidance.

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Section: Discussionmentioning

confidence: 99%