L'impact familial de la drépanocytose au Togo

Assimadi, J. K.; Gbadoé, Adama Dodji; Nyadanu, M.

doi:10.1016/s0929-693x(00)80128-1

Cited by 14 publications

(12 citation statements)

References 10 publications

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“…Sickle cell disease being a chronic illness, financial support remains heavy and often at the charge of the family especially those with socially disadvantaged background [17]. This financial support is most often done to the detriment of schooling; this could help to refer to the high proportion of secondary school level women in both series.…”

Section: Discussionmentioning

confidence: 99%

Delivery Outcome in Women with Major Sickle Cell Syndrome: A Comparative Study of the Homozygous Forms “SS” versus the Heterozygous “SC”

Adama-Hondegla¹,

Aboubakari²,

Logbo-Akey³

et al. 2015

OJOG

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Objectives: To determine the prevalence of women who delivered in the two major sickle cell syndromes, "SS" and "SC", and to identify maternal and early neonatal prognosis inherent to each form. Material and Methods: This is a comparative, descriptive and retrospective cross-sectional study of 226 files of women carrying major sickle cell syndrome (66 cases of "SS" form versus 160 cases of "SC" form), collected from May 2008 to May 2013 at the Gynecology and Obstetrics Clinic of the Sylvanus Olympio's University Hospital of Lomé. Data were processed by Epi Info 6 software. For comparison of variables, the Chi-2 test of Fisher with significance as p < 0.05 has been used, so is the calculation of Odds Ratio with its confidence interval at 95%. Results: Carriers of the two major sickle cell syndromes represent 0.8% of all the deliveries during the study period. Caesarean section, especially prophylactic one, was the dominant mode of delivery. The SS forms have been exposed to have more vaso-occlusive crises (22.7% vs. 13.1%; p = 0.04, OR = 0.31), more blood transfusion (57.6% vs. 29.4%; p = 7 × 10 −5 , OR = 3.2) and more puerperal infections (p < 0.05). Acute chest syndrome was not related to any of the two forms of sickle cell disease (13.6% vs. 8.1%; p = 0.15). The maternal mortality rate and the perinatal mortality among SS form against SC form were not significant (respectively 15.1% vs. 8.7%; 20.9% vs. 17.1%). Conclusion: Maternal and fetal complications were present in both forms of major sickle cell syndrome but the "SS" form gave exposure to greater maternal morbidity. Resuscitative measures in adults and newborns should be reinforced at the delivery time of these "at-risk-pregnancies".

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Section: Discussionmentioning

confidence: 99%

Delivery Outcome in Women with Major Sickle Cell Syndrome: A Comparative Study of the Homozygous Forms “SS” versus the Heterozygous “SC”

Adama-Hondegla¹,

Aboubakari²,

Logbo-Akey³

et al. 2015

OJOG

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“…Overprotection of the child causes parents to progressively neglect caring for their other children [31]. The latter experience emotional breakdowns resulting in feelings of rejection, marginalization and exclusion on the part of parents and the extended family [32,33]. They express jealousy towards the patient that they designate as the main person responsible for crises that destabilize the family financially and emotionally [34].…”

Section: The Experiences Of the Brothers And Sisters Of Sick Childrenmentioning

confidence: 99%

Sickle Cell Anemia, Representations and Care: Experience of a Brother of a Sick Child in Cameroon

Nsangou¹,

Scelles²

2021

Human Blood Group Systems and Haemoglobinopathies

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In Africa, families often with more than one child consult with both modern and traditional African medicine to treat their child with sickle cell anemia. This research aimed to understand how a child experiences both the medical and traditional care of his sister. We collected data from an interview and family drawing of a young boy growing up with an affected sister in Cameroon. Results showed this child persisted to feel as though his sister had fallen victim to a sorcerer and that he was at risk of the same fate even after the two of them received traditional treatment. He also felt neglected about his suffering because of his sister's disease by hospital professionals that were caring for her. It is therefore necessary to establish a support system for affected children and their family by providing a safe space in hospitals where they can express and contain their experiences with the disease.

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“…Overprotection of the child with sickle cell disease leads parents to gradually divest care of other children [26]. The latter experience an emotional breakdown resulting in a feeling of rejection, marginalization and exclusion on the part of parents and the extended family [13,15,16,27]. They show jealousy towards the patient whom they designate as the main person responsible for crises, which destabilize the family financially, and emotionally [15,28].…”

Section: General Information On the Experience Of Brothers And Sistermentioning

confidence: 99%

Sickle Cell Anemia and Family Taboo: The Experience of a Sister of a Sick Child in Cameroon

Nsangou¹,

Scelles²

2020

AJP

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L'impact familial de la drépanocytose au Togo

Cited by 14 publications

References 10 publications

Delivery Outcome in Women with Major Sickle Cell Syndrome: A Comparative Study of the Homozygous Forms “SS” versus the Heterozygous “SC”

Delivery Outcome in Women with Major Sickle Cell Syndrome: A Comparative Study of the Homozygous Forms “SS” versus the Heterozygous “SC”

Sickle Cell Anemia, Representations and Care: Experience of a Brother of a Sick Child in Cameroon

Sickle Cell Anemia and Family Taboo: The Experience of a Sister of a Sick Child in Cameroon

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