L'annonce de diagnostics graves en pédiatrie

Lambotte, Isabelle; Gheest, Françoise De; Courtois, Anne; Delvaux, Nicole; Detemmerman, Dominique

doi:10.3917/jdp.254.0029

Cited by 3 publications

(4 citation statements)

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“…Thus, the announcement of a chronic disease such as sickle cell anaemia is experienced as a catastrophe, generating terrible anxiety and moral suffering for the parent. This moment, defined as a cataclysm in the eyes of the parents, provokes several changes in their lives and involves a process of adaptation [30]. Generally speaking, it is thought that the emotional impact caused by the revelation of a diagnosis of serious illness can be divided into three main phases: the initial collapse, the development of defence mechanisms and finally acceptance of the diagnosis.…”

Section: The Mother's Psychological and Social Experiencementioning

confidence: 99%

Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital

Alamun,

Hélène,

Christian

et al. 2024

OJPed

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Introduction: Sickle cell disease has physical and emotional repercussions on the child and his family. The aim of this study was to describe the psychosocial experiences of mothers of children with sickle cell disease in order to improve the overall care of the child. Methods: This was a descriptive crosssectional study carried out in the pediatrics department of Bouaké University Teaching Hospital from June to September 2023. It focused on mothers of major sickle-cell-affected children followed up in the pediatrics department of the Bouaké University Teaching Hospital. The variables studied were sociodemographic, psychological, social and economic. Results: Of the 40 mothers surveyed, 15% were not in school and 32.5% were unemployed. For them, sickle cell disease was of natural (genetic) origin in 90% and supernatural in 10%. They stated that the child had an average age of 36 months (extremes 7 and 108 months) when the disease was discovered. And 52% of them were satisfied with the way the disease was clearly and completely announced. Following the announcement, the questioned mothers said they had felt shock (35%), sadness (31.7%), guilt (23.3%) and discouragement (10%). Anxiety and depression were experienced by 77.5% and 22.5% respectively. In 60% of cases, they stated that the disease was incurable, and the outcome was fatal in 2.5% of cases. The child's illness was a source of problems in the home in 25% of cases, represented by arguments in 92% and divorce in 8%. In 97.5% of cases, the mother told her family and friends about the child's illness. In 90% of cases, the mother and child benefited from psychological support from family and friends. Conclusion: Sickle cell disease is a serious illness with a

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Section: The Mother's Psychological and Social Experiencementioning

confidence: 99%

Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital

Alamun,

Hélène,

Christian

et al. 2024

OJPed

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“…À chaque fois, les internes y associent exclusivement la notion de diagnostic grave. Or, bien que l'annonce diagnostique soit « l'un des moments fondateurs de la dynamique relationnelle » [4], permettant l'installation d'une relation de confiance et d'étayage, il existe en médecine bien d'autres annonces importantes à soigner.…”

Section: Les Internes Se Prennent Au Jeuunclassified

“…Les médecins devancent parfois les temps de la maladie, en transmettant un maximum d'informations au patient qui n'est pas toujours prêt à les entendre 4 . Certaines annonces peuvent ainsi être traumatiques et provoquer un état de sidération chez ceux qui les reçoivent (la personne et sa famille), ne leur permettant pas d'entendre l'ensemble du discours.…”

Section: Temps Médical Et Temps Psychiqueunclassified

“…Penser les protagonistes présents : les médecins ont également perçu le caractère anxiogène d'un trop grand nombre de témoins (blouses blanches, proches, voisin de chambre ), le minimum en pédiatrie étant : l'enfant, le(s) parent(s) et le médecin référent. Il est, par ailleurs, toujours préférable que les deux parents soient présents afin de leur permettre un soutien mutuel et d'éviter que l'un des deux devienne à son tour annonceur [4]. Le médecin ne doit pas oublier que son interlocuteur principal est bien souvent l'enfant.…”

Section: Pour Conclureunclassified

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Annoncer une mauvaise nouvelle. Les en-jeux de la relation médecin-patient

Belval¹,

Oderda²

2018

Psychologues Et Psychologies

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Distribution électronique Cairn.info pour Syndicat National des Psychologues. © Syndicat National des Psychologues. Tous droits réservés pour tous pays.La reproduction ou représentation de cet article, notamment par photocopie, n'est autorisée que dans les limites des conditions générales d'utilisation du site ou, le cas échéant, des conditions générales de la licence souscrite par votre établissement. Toute autre reproduction ou représentation, en tout ou partie, sous quelque forme et de quelque manière que ce soit, est interdite sauf accord préalable et écrit de l'éditeur, en dehors des cas prévus par la législation en vigueur en France. Il est précisé que son stockage dans une base de données est également interdit.

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Parcours diagnostic de l’ostéogenèse imparfaite : les soignants source d’informations

Lyautey

Prince

Strauss

2023

Kinésithérapie, la Revue

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L'annonce de diagnostics graves en pédiatrie

Cited by 3 publications

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Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital

Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital

Annoncer une mauvaise nouvelle. Les en-jeux de la relation médecin-patient

Parcours diagnostic de l’ostéogenèse imparfaite : les soignants source d’informations

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L'annonce de diagnostics graves en pédiatrie

Cited by 3 publications

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Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouak&#233; University Teaching Hospital

Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouak&#233; University Teaching Hospital

Annoncer une mauvaise nouvelle. Les en-jeux de la relation médecin-patient

Parcours diagnostic de l’ostéogenèse imparfaite : les soignants source d’informations

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Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital

Psychological Experience of Mothers of Children with Sickle Cell Disease Followed at the Pediatric Department of Bouaké University Teaching Hospital