Kroni̇k Hastaliğa Sahi̇p Çocuk-Ergen Ve Ebeveynleri̇ni̇n Yaşam Kali̇tesi̇ Algilari

Abstract

The aim of this study is to evaluate the perceptions of the children-adolescents with chronic diseases and their parents about the quality of life. Materials and Method: The study was conducted among 8-18 years old children and adolescents with chronic diseases (n: 71) and their parents (n: 71), who were admitted to the pediatric outpatient clinic of a university hospital and hospitalized between October 2011 and February 2012. Data were collected through a "Personal Information Form" and the "Pediatric Quality of Life Inventory (PedsQL)". The analysis of the data was performed using SPSS 15.0 package program. Findings: The mean total scores on the scale were 55,8 and 58,9 for children and adolescents, respectively. It was seen that there was a very strong linear relationship (r=0,908; p<0,01) between the perception of quality of life scores for 8-12 years old children and their parents and the optimal correlation was observed on psychosocial health subscale (r=0,895). A moderate relationship was identified between the scores for the adolescents aged 13-18 years and the scores for their parents (r=0,576; p<0,01). Conclusions: A strong positive correlation was found between the children's and their parents' perceptions of quality of life while a moderate relationship was identified between the perceptions of quality of life of the adolescents and their parents. Therefore, the study emphasized that the needs of the children-adolescents and parents should be revealed in the best way through nursing interventions aiming at improving the quality of life and also taking the parents into consideration.

Türkiye’de Bir İlde Okul Dönemindeki Çocuklarda Görülen Kronik Hastalıkların Belirlenmesi

“…Atalay, 2018;Özbay ve İlhan, 2013;Sezer ve Erkal İlhan, 2019;Yıldız, Çakın-Memik, ve Ağaoğlu, 2010;Yıldız Akkuş ve Bütün Ayhan, 2020;Yolbaşı, ve Gürkan, 2012). Ancak okuldaki çocuğu kronik hastalığı yönünden ele alan çalışmalar ne yazık ki sınırlıdır (Ercan 381) ve İl Milli Eğitim Müdürlüğü'nden izin alınmıştır.…”

Satisfaction with Life and Cope of Mothers with Epileptic Children

“…Çalışmalarda kronik hastalığı olan çocukların ebeveynlerinin stresle başa çıkmada etkili yöntemler olan kendine güvenli yaklaşım, iyimser yaklaşım ve sosyal destek arama yöntemlerini kullandıkları saptanmıştır (33,34). Ebeveynin duygu-odaklı başetme davranışı ve uyum bozucu başetme yollarının kullanımı ebeveyn stresini artırdığı için etkisiz bir başetme biçimidir (27,35).…”