Knowledge of prenatal screening and psychological management of test decisions

Dahl, Katja; Hvidman, Lone; Jørgensen, Finn Stener; Kesmodel, Ulrik Schiøler

doi:10.1002/uog.8856

Cited by 49 publications

(61 citation statements)

References 29 publications

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“…11,13,26,[28][29][30][31][32][33][34][35] Twenty-two studies were prospective, 12,28,[36][37][38][39][40][41][42][43][44][45][46][47][48][49][50][51][52][53][54][55] including cross-sectional, 41,42,49 quasi-experimental, 53 pilot, 50 and longitudinal study designs. 52 Of the RCTs, five involved an information or educational intervention, 28,29,[32][33][34] five randomised the screening offer, 11,13,26,30,35 and there was one decision aid trial.…”

Section: Summary Of Studiesmentioning

confidence: 99%

“…Three studies used the same cohort as in previous studies; 13,39,46 in subsequent studies the sample was stratified differently, 40 different measures were applied, 11 and additional validation data were reported. 45 Eight studies were conducted in continental Europe, 11,13,38,[43][44][45][46]53 and 14 were from the United Kingdom. 12,26,29,30,[32][33][34][35]37,[39][40][41]51,54 Seven studies were from Australia, 31,36,[48][49][50]52,55 three from the United States, 28,42,56 and one from Taiwan.…”

Section: Summary Of Studiesmentioning

confidence: 99%

“…47 Prenatal screening for DS was the most common screening programme evaluated (27 studies). [11][12][13]28,29,[31][32][33][34][35][37][38][39][40][42][43][44][45][46][47][48][49][51][52][53]55,56 Three studies offering population carrier screening in prenatal settings included screening single gene disorders: sickle cell disease and thalassaemia (haemoglobinopathies (Hb)) 26,41 and cystic fibrosis (CF). 30 Of the 33 studies reviewed, only one included partners of the pregnant women, 30 and one offered CF carrier screening to men as well as women.…”

Section: Summary Of Studiesmentioning

confidence: 99%

“…50 Uptake of screening varied in the DS studies from 13% 44 to 91.6%. 38 Six DS studies reported 100% uptake; 42,[45][46][47][48][49] however, these studies only included women who had accepted screening as they were recruited at their screening consultation. High rates of screening uptake were reported for prenatal Hb screening in two studies (100% 41 and 90.7% 26 ).…”

Section: Summary Of Studiesmentioning

confidence: 99%

See 3 more Smart Citations

Measuring informed choice in population-based reproductive genetic screening: a systematic review

et al. 2014

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Genetic screening and health-care guidelines recommend that programmes should facilitate informed choice. It is therefore important that accurate measures of informed choice are available to evaluate such programmes. This review synthesises and appraises measures used to evaluate informed choice in population-based genetic screening programmes for reproductive risk. Databases were searched for studies offering genetic screening for the purpose of establishing reproductive risk to an adult population sample, in which aspects of informed choice were measured. Studies were included if, at a minimum, measures of uptake of screening and knowledge were used. Searches identified 1462 citations and 76 studies were reviewed in full text; 34 studies met the inclusion criteria. Over 20 different measures of informed choice were used. Many measures lacked adequate validity and reliability data. This systematic review will inform future evaluation of informed choice in population genetic screening programmes.

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Section: Summary Of Studiesmentioning

confidence: 99%

Section: Summary Of Studiesmentioning

confidence: 99%

Section: Summary Of Studiesmentioning

confidence: 99%

Section: Summary Of Studiesmentioning

confidence: 99%

See 2 more Smart Citations

Measuring informed choice in population-based reproductive genetic screening: a systematic review

et al. 2014

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“…Moreover, studies showed that prenatal diagnosis provides pregnant women with information that may be associated with better psychological management. [9][10][11] The present study was conducted to assess level of awareness of Egyptian women in the reproductive age about prenatal screening for congenital malformations and to explore their attitude towards prenatal testing and termination of pregnancy if medically indicated. Moreover, factors that might be associated with acceptance including women's perceptions and beliefs were identified.…”

mentioning

confidence: 99%

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

Youssef

El-Weshahi

Ashry

2017

Int J Reprod Contracept Obstet Gynecol

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Background: The study was conducted to explore the Egyptian women’s attitudes toward the prenatal screening (PNS) for congenital malformations and termination of pregnancy if medically indicated and assessing their knowledge and beliefs regarding prenatal screening.Methods: A total of 351 Egyptian women in the reproductive age giving birth to at least one child completed a structured questionnaire to assess their knowledge of prenatal diagnosis and their willingness to undergo prenatal screening as well as their opinions on termination of pregnancy if medically indicated. Women's beliefs were also assessed.Results: More than half of studied women (52.71%) are lacking knowledge about the availability of the accurate tests for prenatal screening of congenital malformations. After giving information about PNS, more than three quarters (77.5%) of the studied women held positive attitudes toward the prenatal screening for congenital malformations. The other one quarter was either refusing or not sure about their opinion (4.6% and 17.9% respectively). Only 58.7% accepting termination of pregnancy if medically indicated. Positive attitude towards PNS was significantly higher among females with older age (P=0.019) as well as those of higher social class as indicated by higher level of education (p=0.026), urban residency (p=0.046) and working women (p=0.005). Perceived seriousness of congenital malformations and believing in the importance of early detection of such condition were the significant motives to undergo PNS.Conclusions: There is marked lack of knowledge about the prenatal screening tests among the studied women. After giving information about PNS, most of them shows a positive attitude towards carrying out these tests and about half of them reported their acceptance for termination of pregnancy if medically indicated based on prenatal diagnosis of sever congenital malformations. Emphasis national needs for health education programs about PNS importance and development of well-structured national program for PNS.

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The Psychological Well‐being of Pregnant Women Undergoing Prenatal Testing and Screening: A Narrative Literature Review

Biesecker¹

2019

Hastings Center Report

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Prenatal screening and testing are preference‐based health care options. They are offered so that pregnant women and their partners can learn genetic information about the developing fetus. In this literature review, I summarize studies of women’s and their partners’ psychological responses to prenatal testing and screening. These studies investigate the experiences of pregnant women, largely in the United States, who have access to health care services. Although the results indicate that these women are receptive to prenatal testing and screening and seem to have limited negative psychological consequences, pregnant women without access to these services are not represented and may have different experiences. With that caveat in mind, based on the evidence, women generally do well psychologically as they manage the options that arise for them in the prenatal context.

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Knowledge of prenatal screening and psychological management of test decisions

Abstract: Objectives 1.31 (95% CI,). An increased level of knowledge was also associated with higher levels of wellbeing (adjusted linear coefficient 0.51 (95% CI,

Cited by 49 publications

References 29 publications

Measuring informed choice in population-based reproductive genetic screening: a systematic review

Measuring informed choice in population-based reproductive genetic screening: a systematic review

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

The Psychological Well‐being of Pregnant Women Undergoing Prenatal Testing and Screening: A Narrative Literature Review

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