Knowledge of disease and health information needs of the patients with inflammatory bowel disease in a developing country

Abstract

Despite the overt inclination of Iranian IBD patients to know more about their disease, their knowledge levels were significantly lower than the IBD patients in developed countries. The more profound knowledge deficit in IBD complications may lead to disastrous aftermaths such as late diagnosis of colorectal cancer induced by prolonged IBD. Vigorous patient education programs for the Iranian IBD patient are suggested focusing on areas of knowledge deficit and their favorite topics.

Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease

“…We observed similar IBD-specific patient knowledge scores to prior studies in non-United States populations, ranging from a median CCKNOW score of 4 in Iran, to 7-10 in the United Kingdom, to 13 in Canada [18][19][20] . Caucasian race was associated with higher disease related knowledge in our study.…”

Assessment of disease‐related knowledge and possible factors associated with the knowledge level among Chilean patients with inflammatory bowel disease

“…The median CCKNOW score in this study was 9 (11 in EC and 9 in CU patients). Other studies that have been conducted in developing and developed countries have also demonstrated low levels of knowledge in patients (Rezailashkajani et al 2006, Baars et al 2010, Subasinghe et al 2010, Butcher et al 2011, Colombara et al 2015, Yoo et al 2015. The results obtained in this study are better than those from developing countries but are similar to those from developed countries.…”

“…Great variability in the level of knowledge among IBD patients has been reported in the literature, but the majority of studies agree that knowledge levels are low and that education is of paramount importance in these patients. Studies in England, Singapore, the Netherlands and Iran have reported low levels of knowledge (<40% in a questionnaire administered to patients with CD and CU) (Rezailashkajani et al 2006, Baars et al 2010, Subasinghe et al 2010.…”

Patient knowledge in inflammatory bowel disease: CCKNOW, how much do they know?

“…There is a relative dearth of literature on patient information and scoring systems to evaluate fundamental knowledge of patients with IBD. Other studies have also shown a similar lack of sufficient knowledge [3][4][5][6] with one study showing mean and median scores of only 4.65 and 4.0, respectively.…”