Knowledge mobilization to spread awareness of the ‘<scp>F</scp>‐words’ in childhood disability: lessons from a family–researcher partnership

Cross, Andrea; Rosenbaum, Peter; Grahovac, Danijela; Kay, Diane; Gorter, Jan Willem

doi:10.1111/cch.12249

Cited by 19 publications

(31 citation statements)

References 7 publications

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“…In 2014, an integrated research team, including parents and researchers, formed at CanChild to disseminate and study the uptake of the F‐words proactively. To date, the research team has published two papers on their dissemination work (Cross et al, ; Cross et al, ). The additional four sources in this category described the F‐words research team's work as an example of stakeholder‐driven and knowledge translation research (Longo, Galvão, Ferreira, Lindquist, & Shikako‐Thomas, ; Phoenix et al, ; Rosenbaum, ; Miller & Rosenbaum, ; Table ).…”

Section: Resultsmentioning

confidence: 99%

“…Since the publication of the F‐words paper in 2012, there has been increasing national and international interest and uptake by people around the world. In 2014, an integrated research team of parents and health services researchers was formed to promote and study systematically the dissemination and implementation of the F‐words in practice (Cross et al, ; Cross, Rosenbaum, Grahovac, Kay, & Gorter, ). Since then, the research team has worked with many stakeholders (including families, service providers, and administrators) to develop and share tools and resources to support the adoption of the F‐words in practice.…”

Section: Introductionmentioning

confidence: 99%

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Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Soper

Cross

Rosenbaum

et al. 2019

Child

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Background:The "F-words in childhood disability" (function, family, fitness, fun, friends, and future) were introduced in a concept paper in 2012 entitled, "The Fwords in childhood disability: I swear this is how we should think!". The "F-words" are grounded in, and aim to operationalize, the World Health Organization's (World Health Organization, 2001) International Classification of Functioning, Disability and Health (ICF) framework. A citation analysis was conducted to explore the extent of research uptake of the "F-words" concepts.Methods: Three databases-Google Scholar, Wiley Online, and Web of Sciencewere searched from July 2012 to December 2018 for sources that cited the original F-words paper. Dates of publication and countries of first authors were extracted from all cited articles, and a taxonomy was developed to categorize the type of usage.Results: The search yielded 157 sources from 26 countries, and the number of citations has continued to increase since the paper's publication. Sources were placed into three categories: cited/referenced (n = 109; i.e., the paper was simply cited), integrated/informed (n = 36; i.e., the F-words were stated within the text), and non-English (n = 12). Of the 36 integrated/informed sources, 34 (94.4%) applied the F-words to the ICF framework and five themes emerged with respect to the use of the F-words: (a) support of a holistic approach to childhood disability, (b) association of the F-words to physical activity and rehabilitation, (c) application and measurement of quality of life, (d) F-words research team-related papers, and (e) "other" category.Conclusion: This citation analysis shows that the F-words are mainly being used to operationalize the ICF, support a holistic approach to childhood disability, and inform physical activity and rehabilitation-based interventions. These perspectives will play an important role in informing the next steps with respect to moving the F-words into research and practice.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Soper

Cross

Rosenbaum

et al. 2019

Child

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“…This closeness with participants is commonly associated with qualitative research as researchers often invest significant time in building rapport with participants to better understand the depth and context of participant perspectives. Taking the time to interact and establish trust with patients from the start of a study can help to negotiate roles, balance power, and lead to meaningful patient collaboration [ 7 , 17 , 18 ]. Researchers who engage in participatory action research have established methods, histories and successes in joining citizens as equals to design and carry out research to meet the needs as identified by the citizen group in ways that enact change [ 19 , 20 ].…”

Section: Introductionmentioning

confidence: 99%

“…To show how these ideas can be applied, we present an example of the ‘F-words’ integrated knowledge translation research program that began at CanChild in 2014 to disseminate and support the adoption of the ‘F-words’ in Childhood Disability [ 17 , 30 ]. The ‘F-words’ (Function, Family, Fitness, Fun, Friends, and Future) are an operationalization of the World Health Organization’s International Classification of Functioning, Disability and Health (ICF) framework [ 31 ].…”

Section: Introductionmentioning

confidence: 99%

Using qualitative research perspectives to inform patient engagement in research

et al. 2018

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Plain English summaryIn Canada, and internationally, there is an increased demand for patient engagement in health care research. Patients are being involved throughout the research process in a variety of roles that extend beyond the traditional passive participant role. These practices, referred to collectively as ‘patient engagement’, have raised questions about how to engage patients in the research process. Specifically, researchers have noted a lack of theory underpinning patient engagement and are looking for guidance on how to select patients and engage patients throughout the research process. In this commentary, we draw on qualitative research perspectives to generate theoretical and methodological ideas that novice or experienced researchers can apply to facilitate patient engagement in research.AbstractDespite the recent advancements in patient engagement in health care research, there is limited research evidence regarding the best strategies for developing and supporting research partnerships with patients and caregivers. Three particular outstanding concerns that have been reported in the literature and that we will explore in this commentary are: (i) the lack of theoretical underpinning to inform the practice of patient engagement in research; (ii) the lack of knowledge regarding how to select patients to engage in research; and (iii) the lack of clear guidance about the best methods for engaging patients in research. We draw on qualitative research perspectives to reflect on these three areas of concern and propose insights into the theory and methods that we believe are useful for engaging patients in research.

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“…The uptake of the F-words among parents and families, and many colleagues around the world, has been gratifying, and variations of these ideas are now widely used (https://www.canchild.ca/en/search?utf8=% E2%9C%93&q=F-words&commit=Search). 2 Many of us are striving to move beyond categorical thinking (avoiding words like normal and abnormal) toward recognition of the individual realities of people, regardless of the extent of their biological or functional differences. Others, however, may still be caught in a time warp of yesterday's thinking.…”

mentioning

confidence: 99%

Changing the discourse: we all must be knowledge brokers

Rosenbaum¹

2016

Develop Med Child Neuro

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Knowledge mobilization to spread awareness of the ‘F‐words’ in childhood disability: lessons from a family–researcher partnership

Cited by 19 publications

References 7 publications

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Exploring the international uptake of the “F‐words in childhood disability”: A citation analysis

Using qualitative research perspectives to inform patient engagement in research

Changing the discourse: we all must be knowledge brokers

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