Knowledge exchange throughout the dementia care journey by Canadian rural community-based health care practitioners, persons with dementia, and their care partners: an interpretive descriptive study

Forbes, Dorothy; Finkelstein, Sara A.; Blake, Catherine; Gibson, Matthew C.; Morgan, Debra; Markle‐Reid, Maureen; Culum, Ivan; Thiessen, Emily J

doi:10.22605/rrh2201

Cited by 23 publications

(28 citation statements)

References 15 publications

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“…This not only aligns with Canadian recommendations 13,14 but also with the evidence that patients generally value continuity of care 23 and might prefer being diagnosed and treated by their family physicians. [24][25][26] The Quebec Alzheimer Plan employed a multifaceted strategy to address primary dementia care, 27 dementia care. This comprehensive approach was successful in improving dementia care.…”

Section: Discussionmentioning

confidence: 99%

Primary care clinicians’ knowledge, attitudes, and practices concerning dementia

Arsenault‐Lapierre

Henein²,

Rojas-Rozo³

et al. 2021

Can Fam Physician

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he number of persons living with dementia is expected to approximately double in Canada 1 and around the world 2 by 2030, making it a public health priority. 2 In 2012, the World Health Organization recommended that governments develop plans to better tackle key issues related to dementia, such as awareness, timely diagnosis, health care service quality, and caregiver support, among others. 2 As a result, many countries and other jurisdictions have put plans in place to address Alzheimer disease. 3 There is ongoing debate as to which of primary care or specialty care should manage dementia. Some Alzheimer disease plans give the primary responsibility for managing patients with dementia to specialists, such as the plans for France, England, and Spain, countries in which family physicians do not diagnose or manage dementia. [4][5][6][7] Other plans, such as those from Australia, Belgium, Finland, Denmark, and Canada (and from some of Canada's provinces), recommend that in most cases the responsibility to manage the care of dementia patients, from diagnosis to treatment and follow-up, be given to primary care clinicians, with the support of specialized services.While there is a growing interest in developing and implementing Alzheimer plans in primary care, we do not have a complete picture of their impact on the quality of care, partly because of the uncertainty surrounding the knowledge, attitudes, and practices (KAP) of primary health care professionals. More specifically, it remains unclear whether family physicians and nurses are prepared to manage patients with dementia. 8,9 While the challenges of caring for patients with dementia in primary care are influenced by a variety of factors-setting, remuneration methods, and training being a few-there is a belief that many primary care clinicians are unprepared, not confident, and even reluctant to care for these patients in their practices, 10,11 and that, depending on geographic differences in resources (eg, training, support, and remuneration), they prefer to refer patients to specialists immediately.This article has been peer reviewed.

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Section: Discussionmentioning

confidence: 99%

Primary care clinicians’ knowledge, attitudes, and practices concerning dementia

Arsenault‐Lapierre

Henein²,

Rojas-Rozo³

et al. 2021

Can Fam Physician

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“…Les réponses des cliniciens de soins primaires à nos questionnaires ont démontré que les médecins de famille, les infirmières et les autres professionnels de la santé qui avaient participé à la mise en oeuvre du Plan Alzheimer du Québec avaient des CAP bonnes ou positives 13,14 , mais aussi avec les données probantes voulant que les patients valorisent généralement la continuité des soins 23 , et pourraient préférer recevoir le diagnostic et leurs traitements de leur médecin de famille [24][25][26] . Le Plan Alzheimer du Québec utilisait une stratégie à multiples facettes pour aborder les soins primaires de la démence 27 , notamment : des ressources cliniques, financières et en gestion du changement; le recours à des équipes multidisciplinaires; de même que de la formation et de l'encadrement en soins pour la démence.…”

Section: Discussionunclassified

Les connaissances, les attitudes et les pratiques des cliniciens de soins primaires concernant la démence

Arsenault‐Lapierre

Henein²,

Rojas-Rozo³

et al. 2021

Can Fam Physician

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“…Five studies (17%) discussed current KT and patient engagement initiatives designed to support cognitively impaired patients and their circle of care in ACP (Arcand et al, 2013; Bayly, Blake, Peacock, Morgan, & Forbes, 2018; Forbes et al, 2012; van der Steen et al, 2012; Waxman, Russell, Iu, & Mulsant, 2018). Two studies examined the usefulness, quality, and acceptability of information booklets on dementia and end-of-life care (Arcand et al, 2013; van der Steen et al, 2012).…”

Section: Resultsmentioning

confidence: 99%

“…Finally, a study by Forbes et al (2012) explored the information needs of multiple Southwestern Ontario stakeholders in dementia care as well as how these needs changed over time and how the aforementioned parties accessed, assessed, and applied dementia care knowledge. In this study, six stages to the dementia care journey were identified: “(1) recognizing the symptoms, (2) receiving a diagnosis, (3) loss of independence, (4) initiating and using home care and respite services, (5) LTC placement, and (6) decisions related to end-of-life care.” Rural care partners communicated that each stage required unique knowledge and that persons living with dementia rarely recognized a personal need for dementia care information.…”

Section: Resultsmentioning

confidence: 99%

Advance Care Planning for Seniors Diagnosed with Dementia: A Scoping Review of the Canadian Literature

et al. 2022

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Advance care planning (ACP) is commonly recommended for persons living with dementia. Increasing age and uncertain disease trajectory add complexity to this process. A scoping review of the Canadian literature was completed to assess the feasibility and acceptability of ACP for seniors (≥ 65 years of age) diagnosed with dementia and to provide practice, policy, and research recommendations towards ACP as a critical aspect of care. Twenty-nine articles were grouped into five themes: (1) feasibility of patient engagement in ACP; (2) opinions regarding medical assistance in dying (MAiD) for incompetent patients; (3) knowledge translation to support persons living with dementia, professionals, and caregivers; (4) barriers to and facilitators of the delivery of holistic dementia care; and (5) Indigenous health considerations. Additional research should consider socio-demographic and social/cultural factors associated with older persons living with dementia’s engagement in ACP. Future policies warrant a multidisciplinary approach when reviewing legalities. Finally, ACP knowledge translation should become a routine aspect of dementia care.

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Knowledge exchange throughout the dementia care journey by Canadian rural community-based health care practitioners, persons with dementia, and their care partners: an interpretive descriptive study

Cited by 23 publications

References 15 publications

Primary care clinicians’ knowledge, attitudes, and practices concerning dementia

Primary care clinicians’ knowledge, attitudes, and practices concerning dementia

Les connaissances, les attitudes et les pratiques des cliniciens de soins primaires concernant la démence

Advance Care Planning for Seniors Diagnosed with Dementia: A Scoping Review of the Canadian Literature

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