Knowledge deficit of patients with stage 1–4 <scp>CKD</scp>: A focus group study

Lopez‐Vargas, Pamela; Tong, Allison; Phoon, Richard K.S.; Chadban, Steven J.; Shen, Y.G.; Craig, Jonathan C.

doi:10.1111/nep.12206

Cited by 72 publications

(88 citation statements)

References 26 publications

(44 reference statements)

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“…Schöllgen et al (2011) showed that psychological resources such as self-esteem, hope, and optimism positively affect health. Lopez-Vargas et al (2014) studied a focus group and reported that the patients diagnosed with chronic kidney disease believed that a positive and optimistic perspective on life enabled them to better deal with their diseases and that hope for a better future led them to feel more encouraged to implement changes in their lifestyles (Hou et al, 2010; Schöllgen et al, 2011; Lopez-Vargas et al, 2014). …”

Section: Discussionmentioning

confidence: 99%

Optimism and Hope in Chronic Disease: A Systematic Review

et al. 2017

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There is a growing recognition that positive psychological functioning (which includes constructs such as optimism and hope) influences health. However, the understanding of these underlying mechanisms in relation to health is limited. Therefore, this review sought to identify what the scientific literature says about the influence of optimism and hope on chronic disease treatment. A search was conducted in the PsycINFO, Scopus, Pubmed, and Web of Science databases using the indexing terms optimism, hope, chronic diseases, randomized controlled trial, and treatment between 1998 and 2015. In the articles, we identified the most studied diseases in context, the assessment instruments used, the participant characteristics investigated, the results found, and the publication dates. From our analysis of the articles that met our inclusion criteria, it appears that the study of these constructs is recent and there is evidence that individuals with greater optimism and hope seek to engage in healthier behaviors, regardless of their clinical status, and that this contributes to chronic disease treatment. More research is needed so that targeted interventions can be carried out effectively in chronic disease treatment.

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Section: Discussionmentioning

confidence: 99%

Optimism and Hope in Chronic Disease: A Systematic Review

et al. 2017

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“…An interview guide was developed by the research team, with topics informed by prior work – with particular focus on questions not yet well-elucidated [5, 11, 12, 13, 14]. Content was refined for an interview length of ~ 30 minutes.…”

Section: Methodsmentioning

confidence: 99%

A diagnosis of chronic kidney disease: despite fears patients want to know early

Nunes¹,

Roney²,

Kerr³

et al. 2016

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Abstract. Aims: We elicited input from patients on their experience getting a chronic kidney disease (CKD) diagnosis to use for optimizing current CKD education interventions. Methods: We performed structured oneon-one patient interviews. Interviews were recorded, transcribed, and coded using modified grounded theory. Participants had CKD, were not on dialysis, and were recruited from general nephrology practices.

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“…Second, regardless of how CKD awareness questions are phrased, awareness of CKD is still lower than awareness of other chronic medical conditions among patients actively engaged in one health care system. While several studies have confirmed poor knowledge and general understanding about kidney disease (13)(14)(15), national estimates of CKD awareness have largely relied on measures of awareness that use language that may not resonate well with individuals with kidney disease (4).…”

Section: Discussionmentioning

confidence: 99%

Variation in Patients’ Awareness of CKD according to How They Are Asked

Tuot

Zhu

Velásquez³

et al. 2016

CJASN

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Background and objectives Awareness of CKD is necessary for patient engagement and adherence to medical regimens. Having an accurate tool to assess awareness is important. Use of the National Health and Nutrition Examination Survey (NHANES) CKD awareness question "Have you ever been told by a doctor or other health professional that you had weak or failing kidneys (excluding kidney stones, bladder infections, or incontinence)?" produces surprisingly low measures of CKD awareness. We sought to compare the sensitivity and specificity of different questions ascertaining awareness of CKD and other health conditions.Design, setting, participants, & measurements Between August of 2011 and August of 2014, an in-person questionnaire was administered to 220 adults with CKD, diabetes, hypertension, or hyperlipidemia who received primary care in a public health care delivery system to ascertain awareness of each condition. CKD awareness was measured using the NHANES question, and other questions, asking if patients knew about their "kidney disease", "protein in the urine", "kidney problem", or "kidney damage." Demographic data were self-reported; health literacy was measured. The sensitivity and specificity of each question was calculated using the medical record as the gold standard.Results In this diverse population (9.6% white, 40.6% black, 36.5% Hispanic, 12.3% Asian), the mean age was 58 years, 30% had a non-English language preference, and 45% had low health literacy. Eighty percent of participants had CKD, with a mean eGFR of 47.2 ml/min per 1.73 m 2 . The sensitivities of each CKD awareness question were: 26.4% for "kidney damage", 27.7% for "kidney disease", 33.2% for "weak or failing kidneys", 39.8% for "protein in the urine", and 40.1% for "kidney problem." Specificities ranged from 82.2% to 97.6%. The best two-question combination yielded a sensitivity of 53.1% and a specificity of 83.3%. This was lower than awareness of hypertension (90.1%) or diabetes (91.8%).Conclusions CKD awareness is low compared with other chronic diseases regardless of how it is ascertained. Nevertheless, more sensitive questions to ascertain CKD awareness suggest current under-ascertainment.

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Knowledge deficit of patients with stage 1–4 CKD: A focus group study

Cited by 72 publications

References 26 publications

Optimism and Hope in Chronic Disease: A Systematic Review

Optimism and Hope in Chronic Disease: A Systematic Review

A diagnosis of chronic kidney disease: despite fears patients want to know early

Variation in Patients’ Awareness of CKD according to How They Are Asked

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