Knowledge, attitude and traditional practices towards epilepsy among relatives of PWE (patients with epilepsy) in Marrakesh, Morocco

Kissani, Najib; Moro, Meryem; Arib, Safa

doi:10.1016/j.yebeh.2020.107257

Cited by 8 publications

(6 citation statements)

References 16 publications

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“…As far as we know, caregivers of children with epilepsy have insufficient information about epilepsy disorders. In one study, only 5% of caregivers knew the first-aid basics to apply in the case of a seizure ( 36 ). Unmet information needs led to greater stress, poorer psychosocial outcomes and lower satisfaction with healthcare services ( 37 ).…”

Section: Discussionmentioning

confidence: 99%

The experiences of caregivers of children with epilepsy: A meta-synthesis of qualitative research studies

Shao

Hou

et al. 2022

Front. Psychiatry

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ObjectiveEpilepsy is one of the most common chronic neurological disorders in children. The caregivers of these children bear heavy burden of care in the process of taking care of them. The objective of this metasynthesis was to explore the experiences and needs of caregivers of children with epilepsy.Methods and data sourcesEight databases (PubMed, CINAHL, EMBASE, Web of Science, CNKI, Wanfang Data, VIP database, and CBM) were searched for qualitative studies from each database's inception to 31 June 2021. Studies were critically appraised using the Joanna Briggs Institute (JBI) Critical Appraisal Checklist for Qualitative Research. Qualitative data were extracted, summarized, and meta-synthesized.Results13 studies were included, covering the data of 316 participants. 36 research results were extracted from these studies, which were combined into 11 categories, and finally formed 4 themes: (a) heavy burden of care; (b) emotional experience; (c) coping strategies; (d) care needs.ConclusionCaregivers beared a heavy burden of care and psychological burden. Despite the adoption of different coping strategies, their emotional distress was still very serious. Caregivers had unmet care needs. In order to improve caregivers' care capacity, the society and healthcare workers need to provide them with information support, psychological support, and take measures to create a friendly medical and living environment for them.ImpactUnderstanding the experiences of caregivers of children with epilepsy will inform future research and practice. Healthcare workers could develop interventions to reduce caregiver burden and improve the level of caregivers' mental health. On the other hand, effective programs should be designed to improve caregivers' knowledge of the disease and enhance their ability to care. Society needs to take steps to improve the medical environment and the social stigma that is not friendly to epilepsy.

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Section: Discussionmentioning

confidence: 99%

The experiences of caregivers of children with epilepsy: A meta-synthesis of qualitative research studies

Shao

Hou

et al. 2022

Front. Psychiatry

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“…PLWEs are discriminated against and isolated because of the conditions' misconceptions. Some of the misconceptions that have been revealed in different studies are that epilepsy is witchcraft or a demonic disease that is contagious [6][7][8].…”

Section: Introduction / введениеmentioning

confidence: 99%

Perceptions of teachers regarding the inclusion of epilepsy education in life skills for primary learners and teachers in Limpopo and Mpumalanga provinces (South Africa)

Makhado

Lebese

Maputle

2023

Èpilepsiâ paroksizmalʹnye sostoâ.

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Background. Epilepsy is a frequent neurological condition with complicated effects, and it is characterized by seizures that can last quite a long time. It is important that people around treat epilepsy patients with understanding and be able to help them during seizures.Objective: to determine the perceptions of teachers regarding epilepsy education being included in life skills education considering that teachers spend a great deal of time with school students.Material and methods. The study employed an exploratory-descriptive design to explore primary school teachers' perceptions regarding the need to include epilepsy in life skills education. It was conducted in Limpopo and Mpumalanga provinces in South Africa. Data were collected from 20 primary school teachers in Limpopo and Mpumalanga using semi-structured interviews. Only primary school teachers who teach life skills were interviewed to reach data saturation.Results. The respondents revealed their knowledge that epilepsy is a disease associated with falling, shivering movements/ seizures, releasing saliva in a bubble foam, and being unconscious. However, they showed insufficient understanding regarding some aspects and expressed the opinion that there is a need of including epilepsy in life skills education, because it will assist the learners and teachers in knowing more about epilepsy. The participants consider that since epileptic seizure is an unpredictable condition that can happen to anyone, at any time, they feel it is important that learners and teachers are educated about it. For this purpose, they suggested various teaching methods and the necessary areas of knowledge about epilepsy.Conclusion. The findings of the study revealed that the inclusion of epilepsy in life skills education will enhance the knowledge and understanding of epilepsy through learning the aspects that have been suggested by the participants.

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“…A review of all published literature using PubMed found only six studies on this topic, none of which was performed in India. In the available studies, either the caregivers of adults (CG-A) and the caregivers of children (CG-C) were grouped together [9] , [10] , [11] or the CG-C alone were studied [12] , [13] , [14] . We hypothesized that CG-C would be more apprehensive and would put greater effort into gaining knowledge about the disease and its treatment to facilitate parenting their children diagnosed with epilepsy.…”

Section: Introductionmentioning

confidence: 99%

Knowledge gap exists among caregivers of adults compared to caregivers of children with epilepsy: A comparative analysis from a low resource setting

Iyer

Pharm

Jaranraj

et al. 2022

Epilepsy & Behavior Reports

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Knowledge, attitude and traditional practices towards epilepsy among relatives of PWE (patients with epilepsy) in Marrakesh, Morocco

Cited by 8 publications

References 16 publications

The experiences of caregivers of children with epilepsy: A meta-synthesis of qualitative research studies

The experiences of caregivers of children with epilepsy: A meta-synthesis of qualitative research studies

Perceptions of teachers regarding the inclusion of epilepsy education in life skills for primary learners and teachers in Limpopo and Mpumalanga provinces (South Africa)

Knowledge gap exists among caregivers of adults compared to caregivers of children with epilepsy: A comparative analysis from a low resource setting

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