Knowledge and perceptions of Joint Hypermobility and Joint Hypermobility Syndrome amongst paediatric physiotherapists

The evidence‐based rationale for physical therapy treatment of children, adolescents, and adults diagnosed with joint hypermobility syndrome/hypermobile Ehlers Danlos syndrome

“…The outcome of surgical and physical therapy treatment is largely disappointing, which illustrates the need for a stronger evidence base [Rombaut et al, ]. Education for health professionals [Billings et al, ; Rombaut et al, ; Terry et al, ; Lyell et al, ; Russek et al, ] is paramount in order to optimize physical therapy provision. A recent feasibility study of a six session package of treatment demonstrates future potential [Palmer et al, ,] and further research is required to explore the specific therapeutic actions of physical therapy for managing JHS/hEDS.…”

“…The reported prevalence of JHS/hEDS in adult physical therapy outpatient musculoskeletal settings has been reported to be between 30% [Connelly et al, ] and 55% [Clarke and Simmonds, ]. Despite the relatively high incidence of JHS/hEDS, recent research has found that many physical therapists and other clinicians are not familiar with the diagnostic criteria, prevalence, or common clinical presentation of affected individuals [Billings et al, ; Lyell et al, ; Russek et al, ], whereas clinicians also experience a lack of awareness of this condition [Billings et al, ; Rombaut et al, ; Terry et al, ; Lyell et al, ]. This guideline aims to provide physical therapists and other clinicians with the state of the art regarding the assessment and management of children, adolescents, and adults with JHS/hEDS.…”

United States Physical Therapists' Knowledge About Joint Hypermobility Syndrome Compared with Fibromyalgia and Rheumatoid Arthritis

“…Therapists treating patients most likely to present with complaints related to JHS (orthopaedics, sports, paediatrics and pain management) were more familiar with the Beighton Scale than the group overall (rejecting this null hypothesis) but no more familiar with the Brighton Criteria (not rejecting this null hypothesis). A study of British paediatric physical therapists reported much higher rates of knowledge about diagnostic criteria, with 89% reporting that they actively use the Beighton Scale, and 53.8% use the Brighton Criteria (Billings et al, 2013). Few (24.1%) US therapists reported learning about JHS in school (24.1%) or in continuing education (13.8) compared with Britain where 12% reported learning about JHS in school and 40% in post-graduate training (Deane et al, 2008).…”

“…A 2008 study of British physiotherapists found that 88% had not received undergraduate training in JHS, and 60% had no post-graduate training (Deane et al, 2008). A study of British paediatric physiotherapists found that 51% had received no training related to JHS (Billings et al, 2013), and another study found a significant delay in diagnosis of JHS among symptomatic children (Adib et al, 2005;Ross and Grahame, 2011). Recognition of JHS may be even lower in the United States (Tinkle, 2008), which seems to generate few publications on the topic.…”

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“…Currently, studying the state of health of child population has become one of the most important tasks for researchers. The results of the research indicate the increase in chronic pathologies and negative tendencies in morphofunctional development of children [3,5,9,13,22].…”