Knowledge and Myths about Palliative Care among the General Public and Health Care Professionals in Portugal

Abstract

Background: International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member’s palliative care. Method: A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. Results: The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with palliative care mentioned by NHCPs were chronic and progressive disease (n = 76), while HCPs mostly mentioned quality-of-life promotion (n = 29). Women, the elderly, and HCPs had a higher level of knowledge regarding palliative care (p < 0.001). Conclusions: Results clearly show gaps in knowledge of palliative care, especially among NHCPs. An integrated approach is needed to inform and clarify the philosophy and goals of palliative care in different settings in order to improve knowledge.

Study to Assess the Effectiveness of Simulation Technique to Overcome Misperceptions of Undergraduate Nursing Students’ About Paediatric Palliative Care

“…There is strong evidence in the literature that unresolved misconceptions about palliative care create barriers to the provision of this type of care. [15,18] Therefore, it is of crucial importance to discuss and deal with it for a good palliative care provision. [15] Strategies addressing misperceptions surrounding PPC are needed to reduce barriers affecting the delivery of this type of care and improve its accessibility.…”

“…[15,18] Therefore, it is of crucial importance to discuss and deal with it for a good palliative care provision. [15] Strategies addressing misperceptions surrounding PPC are needed to reduce barriers affecting the delivery of this type of care and improve its accessibility. [16] However, a few studies suggested strategies to overcome these erroneous representations.…”

“…There is strong evidence in the literature that unresolved misconceptions about palliative care create barriers to the provision of this type of care. [ 15 , 18 ]…”

“…[9] Nevertheless, there remain several barriers to the provision of an optimal PPC, [4,10] including the lack of educational programs on PPC, the low level of knowledge among health-care professionals, the lack of clear policies on PPC, the limited availability of PPC services, the lack of essential medications and the erroneous representations 1 attached to PPC. [3,[10][11][12][13][14][15] During a training programme about palliative and end of life care, at the level of the Higher Institute of Health Sciences (HIHS), we have noted that undergraduate nursing students' often confuse palliative care with gerontology and, geriatric medicine. Not only that but also some students think that children cannot receive palliative care, as they are too young for such care.…”

“…[ 9 ] Nevertheless, there remain several barriers to the provision of an optimal PPC, [ 4 , 10 ] including the lack of educational programs on PPC, the low level of knowledge among health-care professionals, the lack of clear policies on PPC, the limited availability of PPC services, the lack of essential medications and the erroneous representations 1 attached to PPC. [ 3 , 10 - 15 ]…”