Knowledge and Fears Among Asian Americans Chronically Infected with Hepatitis B

Carabez, Rebecca; Swanner, J. Anthony; Yoo, Grace J.; Ho, Meng Wei

doi:10.1007/s13187-013-0585-7

Cited by 40 publications

(59 citation statements)

References 16 publications

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“…Similar to other studies, hepatitis B patients had the fear of infecting their loved ones in addition to fear of liver cancer and their lives being threatened by the disease (33).…”

Section: Discussionsupporting

confidence: 72%

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

Hassani

Ezbarami

Tafreshi

et al. 2017

Iran Red Crescent Med J

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Background: Hepatitis B is a life-threatening viral infection that is mainly transmitted through blood; due to the presence of this virus in semen, vaginal fluids, and saliva, the possibility of transmission among couples during marital life still exists. Objectives: This study was conducted to specify the patients' perception of their marital problems. Methods: In this descriptive qualitative research conducted in Iran, 32 patients with chronic hepatitis B were selected through purposive sampling. The data were collected through semi-structured interviews and field notes during 23 months in 2015 and 2016. The interview transcripts were coded by using MAXQDA10 software®. The utilization of thematic analysis approach was to extract categories and themes. Results: Participants of this study were in the chronic and inactive phase of hepatitis B. Participants' age varied from 24 to 57 years. Three major themes were extracted: premarriage challenges, conjugal life with suffering, and lack of marital adjustment. Conclusions: Like other chronic diseases, chronic hepatitis B causes numerous marital challenges for the carriers of the disease. The partners of patients with hepatitis B can be used as self-care facilitating agents in the family to promote self-care of these patients and help better manage their marital challenges.

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“…Similar to other studies, hepatitis B patients had the fear of infecting their loved ones in addition to fear of liver cancer and their lives being threatened by the disease (33).…”

Section: Discussionsupporting

confidence: 72%

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

Hassani

Ezbarami

Tafreshi

et al. 2017

Iran Red Crescent Med J

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“…[39] Fear of HBV infection is the most common cause of HBV stigma. [242733353843] A lack of knowledge and awareness of HBV often resulted in a misunderstanding of the disease and results in the stigmatization of one's own self or stigmatization of people infected with HBV. [15242728293241] The findings of both quantitative and qualitative studies revealed that most Asian or Asian Americans including health-care providers stated that sharing of contaminated food and eating utensils was the most common route of HBV transmission.…”

Section: Resultsmentioning

confidence: 99%

Correlates of hepatitis B virus-related stigmatization experienced by Asians: A scoping review of literature

Lee

Fawcett

Kim

et al. 2016

Asia-Pacific Journal of Oncology Nursing

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Objective:Although remarkable progress in the pharmacological components of the prevention and treatment of hepatitis B virus (HBV) and liver cancer has been achieved, HBV-related stigma is recognized as a major barrier to HBV management. The purpose of this Revised Social Network Model (rSNM)-guided review was to examine the existing research literature about HBV-related stigma among Asians and Asian immigrants residing in other countries.Methods:A scoping review of literature was conducted to determine the depth and breadth of literature. Totally, 21 publications were identified. The review findings were linked with the concepts of rSNM to demonstrate how individual factors and sociocultural contexts shape and affect the experience of HBV-related stigma.Results:Most studies were quantitative cross-sectional surveys or qualitative methods research that had been conducted among Chinese in China and in the USA. The three concepts in rSNM that have been identified as important to stigma experience are individual factors, sociocultural factors, and health behaviors. The major factors of most studies were on knowledge and attitudes toward HBV; only three studies focused on stigma as the primary purpose of the research. Few studies focused on the measurement of stigma, conceptual aspects of stigma, or interventions to alleviate the experience of being stigmatized.Conclusions:The scoping review revealed the existing depth and breadth of literature about HBV-related stigma. Gaps in the literature include lack of research address group-specific HBV-related stigma instruments and linkages between stigma and stigma-related factors.

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“…Other hepatitis B-related fears and concerns have also been reported among people with CHB in several other studies (3, 5, 10, 13, 17-19, 21-23) with these psychological stressors possible predisposing factors to developing psychiatric disorders, particularly depressive disorders. In one study among people with CHB, having hepatitis B-related concerns were associated with the presence of major depression (3).…”

Section: Discussionmentioning

confidence: 57%

Hepatitis B-Related Concerns and Anxieties Among People With Chronic Hepatitis B in Australia

et al. 2016

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BackgroundThe psychological wellbeing of people with chronic hepatitis B (CHB) may be negatively affected due to the chronic and transmissible nature of the disease, and possible serious complications (e.g. cirrhosis and liver cancer). There are limited data investigating concerns and anxieties among people living with CHB.ObjectivesThis study examined feelings about having hepatitis B among people with CHB, including hepatitis B-related concerns and anxieties.Patients and MethodsUsing convenience sampling, people with CHB attending four public liver clinics and one general practice in three Australian jurisdictions between April and September 2013 completed a self-administered questionnaire about their feelings about having hepatitis B.ResultsNinety-three people completed the survey. Mean age was 45 years, 57% were men, and 93% were born overseas (75% from Asia). Seventy-six percent of participants reported having hepatitis B-related concerns and anxieties. The most common concerns were of developing liver cancer (57%), and infecting other people (53%). Thirty-five percent of participants were unwilling to talk to anyone about their hepatitis B while 25% changed how they lived as a result of having hepatitis B. Lower educational level was associated with feeling scared of hepatitis B (adjusted Odds Ratio [OR]: 4.04; 95%CI: 1.09, 14.90; P = 0.04), and an unwillingness to talk to anyone about hepatitis B (adjusted OR: 4.41; 95%CI: 1.09, 17.83; P = 0.04). Very good English proficiency was associated with a higher likelihood of participants changing how they lived (adjusted OR: 12.66; 95%CI: 2.21, 72.42; P < 0.01), and seeing life differently as a result of having hepatitis B (adjusted OR: 21.10; 95%CI: 3.70, 120.19; P < 0.01). Health professionals were the key person for 34% of participants in helping them cope with having hepatitis B, while 18% reported that no one supported them.ConclusionsHepatitis B-related concerns and anxieties are prevalent among people with CHB. Clinical management of people with CHB must address their psychological support needs as an essential component of comprehensive care.

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Knowledge and Fears Among Asian Americans Chronically Infected with Hepatitis B

Cited by 40 publications

References 16 publications

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

Correlates of hepatitis B virus-related stigmatization experienced by Asians: A scoping review of literature

Hepatitis B-Related Concerns and Anxieties Among People With Chronic Hepatitis B in Australia

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