Knowledge about epilepsy and factors associated with attitudes toward marrying, employing, and driving people with epilepsy: A cross-sectional survey of Asokore Mampong community dwellers in Ghana

Diby, Thomas; Khumalo, Phinda; Anokyewaa-Amponsah, Gifty; Mustapha, Rafiyatu; Ampofo, Ama Gyamfua

doi:10.1016/j.yebeh.2020.107646

Cited by 9 publications

(9 citation statements)

References 53 publications

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“…20 In additional studies conducted in other countries such as Ghana, participants reported negative behaviors toward marrying and employing PWE. 21 All these acts and stigmatization go against the social inclusion that all societies aim to achieve. In fact, in a study conducted in Slovenia where PWE were interviewed to better understand the status of their social inclusivity, participants reported fear, loneliness, self-confinement as well as some sort of social isolation as consequences of epilepsy and social factors.…”

Section: Discussionmentioning

confidence: 99%

Awareness and Attitude among Nonmedical University Students on Epilepsy in Lebanon: A Cross-Sectional Study

Berjaoui,

Atrouni,

Doumiati

et al. 2022

International Journal of Epilepsy

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Background Several studies addressed the awareness and knowledge of epilepsy among students and teachers that indicated unfavorable levels of awareness, but none in Lebanon. Aim The aim of this study is to determine the level of awareness and attitude toward epilepsy among nonmedical university students. Methods A survey-based questionnaire was conducted among 1,000 nonmedical students. SPSS was used for data analysis. Results Participants claimed 78.5% having some knowledge about epilepsy (78.5%), with only 20.1% of the participants attaining their knowledge through university courses. Alarmingly, negative beliefs were noticed in our study such as considering person with epilepsy (PWE) as disabled (34.9%), epilepsy is a genetic disorder (40.9%), and it would lead to insanity (43.1%). Moreover, participants think that a PWE is unable to get married (29.5%), nor have children (25.2%), and they would even refuse to marry someone with epilepsy (35.7%). On the other hand, participants showed some positive behaviors such as the fact that epilepsy is not contagious (81%), would accept to accompany a colleague with epilepsy (72.1%), and believing that PWE can succeed at jobs (82.2%). When it comes to providing first aid, wrong practices were reported such as believing that something should be placed in the mouth during a seizure to avoid biting their tongue (58.1%). Conclusion Lack of knowledge, acceptance, and first aid practices have been observed in our study. Thus, efforts in including epilepsy within university curriculums, as well as raising awareness different platforms and campaigns should be done, as the social burden is even higher on PWE.

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Section: Discussionmentioning

confidence: 99%

Awareness and Attitude among Nonmedical University Students on Epilepsy in Lebanon: A Cross-Sectional Study

Berjaoui,

Atrouni,

Doumiati

et al. 2022

International Journal of Epilepsy

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“…In this study, three previously validated questionnaire items were adapted and employed. Young et al and Diby et al used two previously developed questionnaires to examine public knowledge about epilepsy [ 23 , 24 ]. Students at Fanshawe College in London, Ontario, Canada, were given the questionnaire instrument by Young et al We used eight questions from Young et al’s questionnaire instrument.…”

Section: Methodsmentioning

confidence: 99%

Knowledge of and Attitude towards Epilepsy among the Jordanian Community

Abuhamdah

Naser

2022

Healthcare

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Background: Epilepsy is a disorder characterized by recurring seizures that do not have an immediate identifiable cause. It is a disorder with complex symptoms and a wide range of risk factors, with age, genetics, and origin being the most prevalent variations. This study aimed to evaluate the knowledge of and attitude towards epilepsy among the Jordanian community. Method: An online cross-sectional study using a self-administered questionnaire was conducted between 29 March and 15 May, 2022 in Jordan. In this study, three previously validated questionnaire items were adapted and employed. Binary logistic regression was applied to identify predictors of good knowledge and a positive attitude. Results: A total of 689 participants were involved in this study. A weak level of knowledge about epilepsy was observed among the study participants (35.3%). The participants showed a moderately positive attitude towards epilepsy (63.3%). Being female, holding a bachelor’s degree, knowing anyone who had epilepsy and seeing anyone having an epileptic seizure were factors that positively affected participants’ knowledge about epilepsy. Being aged between 24 and 29 years or being divorced were factors that affected the participants’ attitudes negatively towards epilepsy. Conclusion: The study’s participants had limited knowledge of epilepsy and a favorable attitude toward it. The community’s understanding of epilepsy and attitude toward epilepsy patients should be improved by an informed educational effort on the part of various media platforms. All facets of the community, including parents, should be the focus of these initiatives.

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“…[21][22][23] Other research has shown that people with little awareness and knowledge about epilepsy tend to have negative attitudes toward PWE and misperceptions about the disease. [24][25][26] Furthermore, studies exploring the understanding of T. solium yielded limited knowledge of this as a cause of epilepsy and high levels of misconceptions. 27,28 The present study aimed to further determine the epilepsy-related knowledge, perceptions, and experiences among PWE and their caregivers attending mental health clinics in T. solium endemic areas of Tanzania.…”

Section: Introductionmentioning

confidence: 99%

“…Studies in Ethiopia and the Kilimanjaro region of Tanzania have examined knowledge about, perception of, and experience with epilepsy in PWE, and both reported limited knowledge and many misconceptions 21–23 . Other research has shown that people with little awareness and knowledge about epilepsy tend to have negative attitudes toward PWE and misperceptions about the disease 24–26 . Furthermore, studies exploring the understanding of T .…”

Section: Introductionmentioning

confidence: 99%

Knowledge and misconceptions about epilepsy among people with epilepsy and their caregivers attending mental health clinics: A qualitative study in Taenia solium endemic pig‐keeping communities in Tanzania

et al. 2023

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Objective: Taenia solium (T. solium) neurocysticercosis (NCC) affects the central nervous system and is associated with 30% of acquired epilepsy in some endemic areas. Epilepsy is a stigmatizing disease in many societies and people with epilepsy (PWE) and their families experience discrimination. This study aimed to explore the knowledge, perceptions, and experiences of epilepsy among PWE and their caregivers attending mental health clinics.Methods: In T. solium endemic areas of Tanzania, PWE and their caregivers attending mental health clinics were identified and their informed consent was sought prior to study participation. In-depth interviews were conducted in Swahili language and analyzed thematically. The coding was undertaken by two independent researchers using NVivo (Version 12, QSR International).Results: Thirty-eight participants were interviewed. Three themes were identified during the analysis, namely, knowledge about epilepsy; perception of epilepsy; and experience with epilepsy among PWE and their caregivers. Participants commonly defined epilepsy as a "falling disease," perceived to be caused by witchcraft, and were unaware of the association between T. solium and epilepsy.Stigmatization of epilepsy was reported as a problem. Reported treatment patterns after the initial onset of epilepsy varied widely; however, patients usually began treatment with traditional healing methods, and only later opted for biomedical treatment. Patients had generally poor adherence to antiseizure medication, which could be caused by inadequate knowledge or irregular supply.Significance: Level of knowledge about epilepsy was low, and NCC was not mentioned as a cause of epilepsy among participants. Epilepsy was generally perceived to be the result of witchcraft, evil spirits, or curses. Health education is How to cite this article: Makasi CE, Kilale AM, Ngowi BJ, Lema Y, Katiti V, Mahande MJ, et al. Knowledge and misconceptions about epilepsy among people with epilepsy and their caregivers attending mental health clinics: A qualitative study in Taenia solium endemic pig-keeping communities in Tanzania.

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Knowledge about epilepsy and factors associated with attitudes toward marrying, employing, and driving people with epilepsy: A cross-sectional survey of Asokore Mampong community dwellers in Ghana

Cited by 9 publications

References 53 publications

Awareness and Attitude among Nonmedical University Students on Epilepsy in Lebanon: A Cross-Sectional Study

Awareness and Attitude among Nonmedical University Students on Epilepsy in Lebanon: A Cross-Sectional Study

Knowledge of and Attitude towards Epilepsy among the Jordanian Community

Knowledge and misconceptions about epilepsy among people with epilepsy and their caregivers attending mental health clinics: A qualitative study in Taenia solium endemic pig‐keeping communities in Tanzania

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