Know me – A new person-centered approach for dementia-friendly emergency department care

Parke, Belinda; Hunter, Kathleen F.; Schulz, Mary; Jouanne, Lillia

doi:10.1177/1471301216675670

Cited by 16 publications

(25 citation statements)

References 30 publications

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“…In addition, family members' experiences have seldom been taken into account (5,17). Moreover, patient interviews were usually conducted either during the ED visit (18,19), which would give incomplete information on transitional care, or 6 to 12 months following the ED visit (9,17,20), which might have led to recall bias.…”

Section: Introductionmentioning

confidence: 99%

Experiences of an Emergency Department Visit Among Older Adults and Their Families: Qualitative Findings From a Mixed-Methods Study

Cetin-Sahin

Ducharme

McCusker

et al. 2019

Journal of Patient Experience

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Background: Emergency department (ED) visits are critical events for older adults, but little is known regarding their experiences, particularly about their physical needs, the involvement of accompanying family members, and the transition back to the community. Objective: To explore experiences of an ED visit among patients aged 75 and older. Methods: In a mixed-methods study, a cohort of patients aged 75 and older (or a family member) discharged from the ED back to the community was recruited from 4 urban EDs. A week following discharge, structured telephone interviews supplemented with open-ended questions were conducted. A subsample (76 patients, 32 family members) was purposefully selected. Verbatim transcripts of responses to the open-ended questions were thematically analyzed. Results: Experiences related to physical needs included comfort, equipment supporting mobility and autonomy, help when needed, and access to drink and food. Family members required opportunities to provide patient support and greater involvement in their care. At discharge, patients/families required adequate discharge education, resolution of their health problem, information on medications, and greater certainty about planned follow-up medical and home care services. Conclusions: Our findings suggest several areas that could be targeted to improve patient and family perceptions of the care at an ED visit.

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Section: Introductionmentioning

confidence: 99%

Experiences of an Emergency Department Visit Among Older Adults and Their Families: Qualitative Findings From a Mixed-Methods Study

Cetin-Sahin

Ducharme

McCusker

et al. 2019

Journal of Patient Experience

View full text Add to dashboard Cite

show abstract

“…Themes from both single-and multicomponent studies mapped onto the COM-B model of behaviour change. COM-B, Capability Opportunity Motivation-Behaviour; HCP, healthcare professional; PID, personal information document; PLWD, people living with dementia capability, the manifestations of dementia were identified as a barrier to PID use by carers 37 and HCP training improved PID use. 38 Carers described difficulties understanding the language of the PID.…”

Section: Multicomponent Interventionsmentioning

confidence: 99%

“…36 PIDs were perceived as normalizing dementia care. 37 The documents would also enable carers to feel included in care. 37 Carers were concerned about information required for the PID 32 and whether the tool would be used.…”

Section: Multicomponent Interventionsmentioning

confidence: 99%

Barriers and facilitators to the use of personal information documents in health and social care settings for people living with dementia: A thematic synthesis and mapping to the COM‐B framework

Clark

Wood

2022

Health Expectations

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Introduction: People living with dementia experience communication difficulties. Personal information documents, or healthcare passports, enable communication of information essential for the care of a person with dementia. Despite the potential for providing person-centred care, personal information documents are not ubiquitously used. The Capability Opportunity Motivation-Behaviour (COM-B) model can be used to understand factors determining individuals' behaviours.Objectives: This study aimed to identify the barriers to and facilitators of the use of healthcare passports for people living with dementia through a systematic review methodology.Methods: A systematic search of six electronic databases was undertaken. Grey literature was searched using three databases. All study types reporting barriers to or facilitators of the use of personal information documents in the care of adults living with dementia in high-income countries were included. Study quality was assessed using the NICE Quality Appraisal Checklist. Thematic synthesis was used to develop descriptive themes, which were subsequently mapped to the COM-B framework.Results: Nineteen papers were included. Themes included training, awareness, embedding the process in norms and appreciating the value of the personal information documents. A broad range of barriers and facilitators was identified within each COM-B domain. Conclusion:This framework provides a starting point for evidence-informed initiatives to improve the use of personal information documents in the care of people with dementia.Patient and Public Contribution: This is a review of studies and did not involve patients or the public. Review results will guide evaluation of a local personal

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“…Enabling individualised, person-centred geriatric emergency care through empowered communication might improve that currently delivered through existing single-problem pathways. Clinicians could offer better person-centred healthcare if armed earlier with greater awareness of their patients' preferences and priorities [20]. Availability of data at the time people access ED care could inform clinical conversations and enhance shared decision-making.…”

Section: Proms and Prems For Older People With Frailty And Emergency Care Needsmentioning

confidence: 99%

Patient-reported outcome and experience measures in geriatric emergency medicine

et al. 2020

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Older people with frailty and health crises have complex physical and social needs. Modern emergency care systems are fast-flowing, using protocols optimised for singleproblem presentations. Systems must incorporate individualised care in order to bestserve people with multiple problems.Healthcare quality is typically appraised with service metrics such as department length of stay and mortality. Worldwide, Patient-Reported Outcome Measures (PROMs) and Experience Measures (PREMs) are increasingly used in research, service development and performance evaluation, paving the ground for their use to support individual clinical decision-making. PROMs and PREMs are person-centred metrics which at individual level inform healthcare decisions and which at strategic level drive improvement through inter-provider effectiveness comparison. To date, there is no PROM or PREM specifically developed for older people with frailty and emergency care needs. Response to Reviewers:Thank you the reviewers for their comments on our article. In our revised manuscript, we have made the necessary corrections to our references.

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Know me – A new person-centered approach for dementia-friendly emergency department care

Cited by 16 publications

References 30 publications

Experiences of an Emergency Department Visit Among Older Adults and Their Families: Qualitative Findings From a Mixed-Methods Study

Experiences of an Emergency Department Visit Among Older Adults and Their Families: Qualitative Findings From a Mixed-Methods Study

Barriers and facilitators to the use of personal information documents in health and social care settings for people living with dementia: A thematic synthesis and mapping to the COM‐B framework

Patient-reported outcome and experience measures in geriatric emergency medicine

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