Key methodological considerations for usability testing of electronic patient-reported outcome (ePRO) systems

Aiyegbusi, Olalekan Lee

doi:10.1007/s11136-019-02329-z

Cited by 73 publications

(77 citation statements)

References 38 publications

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“…Technological advances are rapidly addressing the traditional barriers to the integration of PROMs in clinical medicine. PROMs can now be administered on phones, tablets, and computers, with software to overcome low vision, literacy, and language barriers to completion, with computer-adaptive testing to reduce time response burden, and utilizing cloud-based data storage and integration platforms to link PROM outcomes into the electronic medical record for virtual review by physicians [14]. Iterative, patient-involved development of such PROM tools has the potential to transform both patient and physician experience, enhancing the potential for truly shared care.…”

Section: Physician Perspectivementioning

confidence: 99%

Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Braithwaite

Wiegerinck²,

Petzold

et al. 2020

Ophthalmol Ther

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This article, co-authored by a patient affected by bilateral, recurrent, atypical optic neuritis, and clinicians, discusses the mental burden of living with uncertainty and the possibility of further sight loss, along with the side effects of treatment. The patient shares some of the challenges, coping strategies, and the value they found in creating and participating in a patient support group. The physicians consider whether current clinical measures adequately capture the outcomes that matter to patients and discuss the role for patient-reported outcome measures (PROMs). We identify technological advances that are lowering traditional barriers to the use of PROMs in research and routine clinical care and look towards new PROM instruments enhancing shared patient-physician care in the future.

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Section: Physician Perspectivementioning

confidence: 99%

Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Braithwaite

Wiegerinck²,

Petzold

et al. 2020

Ophthalmol Ther

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“…Participants in study 1 were recruited via posters and flyers advertising the study, with recruitment continuing until data saturation was reached, that is, once new participants were no longer revealing new data, information, or usability issues. [ 33 ]. For study 2, physicians were approached to recruit participants from among their patients based on the study’s eligibility criteria.…”

Section: Introductionmentioning

confidence: 99%

Using a Commercially Available App for the Self-Management of Hypertension: Acceptance and Usability Study in Saudi Arabia

Alessa¹,

Hawley²,

Alsulamy³

et al. 2021

JMIR Mhealth Uhealth

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Background The use of smartphone apps to assist in the self-management of hypertension is becoming increasingly common, but few commercially available apps have the potential to be effective along with adequate security and privacy measures in place. In a previous study, we identified 5 apps that are potentially effective and safe, and based on the preferences of doctors and patients, one (Cora Health) was selected as the most suitable app for use in a Saudi context. However, there is currently no evidence of its usability and acceptance among potential users. Indeed, there has been little research into the usability and acceptance of hypertension apps in general, and less research considers this in the Gulf Region. Objective This study aims to evaluate the acceptance and usability of the selected app in the Saudi context. Methods This study used a mixed methods approach with 2 studies: a usability test involving patients in a controlled setting performing predefined tasks and a real-world usability study where patients used the app for 4 weeks. In the usability test, participants were asked to think aloud while performing the tasks, and an observer recorded the number of tasks they completed. At the end of the real-world pilot study, participants were interviewed, and the mHealth App Usability Questionnaire was completed. Descriptive statistics were used to analyze quantitative data, and thematic analysis was used to analyze qualitative data. Results In total, 10 patients completed study 1. The study found that app usability was moderate and that participants needed some familiarization time before they could use the app proficiently. Some usability issues were revealed, related to app accessibility and navigation, and a few tasks remained uncompleted by most people. A total of 20 patients completed study 2, with a mean age of 51.6 (SD 11.7) years. Study 2 found that the app was generally acceptable and easy to use, with some similar usability issues identified. Participants stressed the importance of practice and training to use it more easily and proficiently. Participants had a good engagement level with 48% retention at the end of study 2, with most participants’ engagement being classed as meaningful. The most recorded data were blood pressure, followed by stress and medication, and the most accessed feature was viewing graphs of data trends. Conclusions This study shows that a commercially available app can be usable and acceptable in the self-management of hypertension but also found a considerable number of possibilities for improvement, which needs to be considered in future app development. The results show that there is potential for a commercially available app to be used in large-scale studies of hypertension self-management if suggestions for improvements are addressed.

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“…The demographic characteristics of the convenience sample of library patrons participating in the first round of usability testing are shown in Table 4 . Based on observations that five participants are required per formative test cycle to detect over 80% of issues in usability testing [ 26 ], we conducted two iterative cycles of usability testing with totaling 13 (Round 1) and 11 (Round 2) participants.…”

Section: Resultsmentioning

confidence: 99%

Development of a web tool to increase research literacy in underserved populations through public library partnerships

et al. 2021

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Objective Inadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhance underserved minority participation in clinical research. Methods We used our research literacy support flashcard tool as the initial prototype for human-centered design and usability testing of the web tool Health for All in public library settings. After forming partnerships with leadership from Chicago Public Libraries (CPL), local medical libraries, and the Chicago Department of Public Health, we conducted seven iterative design sessions with focus groups of library patrons and library staff from six CPL branches serving underserved communities followed by two rounds of usability testing and website modification. Results Based on the qualitative research findings from Design Sessions 1–7, we enacted the design decision of a website that was a hybrid of fact-filled and vignette (personal stories) paper prototypes divided into 4 modules (trust, diversity, healthy volunteers, pros/cons), each with their own outcome metrics. The website was thus constructed, and navigation issues identified in two rounds of usability testing by library patrons were addressed through further website modification, followed by the launch of a beta version of a hybridized single-scrolling and guided module prototype to allow further development with website analytics. Conclusions We report the development of Health for All, a website designed to enhance racial/ethnic minority participation in clinical trials by imparting research literacy, mitigating distrust engendered by longstanding racism and discrimination, and providing connections to clinical trials recruiting participants.

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Key methodological considerations for usability testing of electronic patient-reported outcome (ePRO) systems

Cited by 73 publications

References 38 publications

Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Vision Loss from Atypical Optic Neuritis: Patient and Physician Perspectives

Using a Commercially Available App for the Self-Management of Hypertension: Acceptance and Usability Study in Saudi Arabia

Development of a web tool to increase research literacy in underserved populations through public library partnerships

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