Keeping courage during stem cell transplantation: A qualitative research

Development and initial validation of a questionnaire to assess patients’ perception of protective isolation following haematopoietic stem cell transplantation

“…On the other hand, relationship with oneself was mainly represented by thinking about oneself and looking at life from a new perspective. In addition, the item about feeling safe in isolation loaded on this factor, in line with scholars considering the ability to give a protective meaning to isolation as part of the patient’s inner resources (Biagioli et al, ; Coolbrandt & Grypdonck, ; Farsi, Nayeri, & Negarandeh, ). However, this item cross‐loaded on the factor isolation‐related suffering, suggesting that the perception of safety can be inversely proportional to the suffering experienced in the isolation room (Persson, Anderberg, & Kristensson Ekwall, ).…”

“…In particular, item 2, "I miss contact with the outside world," and item 8, "I need someone close to me to talk with," were previously considered to account for the dimension relationship with others, while item 3, "I can stay in the isolation room with serenity," was generated for the dimension relationship with oneself. These unexpected loadings might be explained by the greater factorial strength of the first factor when compared with the others, but also considering that suffering in isolation can be a multifaceted experience including missing contact with the outside world, missing someone close to talk with, and being unable to stay in the isolation room with serenity (Lee, et al, 2011;Vottero & Rittenmeyer, 2012 feeling safe in isolation loaded on this factor, in line with scholars considering the ability to give a protective meaning to isolation as part of the patient's inner resources (Biagioli et al, 2016;Coolbrandt & Grypdonck, 2010;Farsi, Nayeri, & Negarandeh, 2012). However, this item cross-loaded on the factor isolation-related suffering, suggesting that the perception of safety can be inversely proportional to the suffering experienced in the isolation room (Persson, Anderberg, & Kristensson Ekwall, 2015).…”

The experiences of protective isolation in patients undergoing bone marrow or haematopoietic stem cell transplantation: systematic review and metasynthesis

“…This happens when patients regulate their emotions and attitudes towards threatening circumstances (Shuster et al . ), such as remaining positive and cultivating a belief in a happy ending (Coolbrandt & Grypdonck ). The relationship with oneself also occurs when patients try to find meaning, purpose, and value in their protective isolation.…”

Having a sibling as donor: Patients' experiences immediately before allogeneic hematopoietic stem cell transplantation

“…Earlier studies of patients' experiences of undergoing HSCT have shown a sense of loss of control, related both to control over life in general and one's own health status (Coolbrandt & Grypdonck, 2010;Cooper & Powell, 1998;Haberman, 1995;Larson et al, 1993;Steeves, 1992). However, Study III is the first, to our knowledge, to elucidate HSCT patients' feeling of loss of control related to having a sibling as donor.…”