Keeping cancer patients informed: a challenge for nursing

Sainio, Carita; Eriksson, Elina

doi:10.1054/ejon.2002.0218

Cited by 46 publications

(41 citation statements)

References 49 publications

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“…These arguments are not in line with the results of this study where it is clear that the patients' experience that the HCPs underestimate their information needs; a fact that has also been shown in earlier studies (Andreassen et al, 2007;Wittmann et al, 2011). It is known that the patients wish to be given information about what to expect after surgery in relation to remaining symptoms and prognosis (Malmström et al, 2013;Sainio and Eriksson, 2003) but Stajduhar et al (2010) states that it is important to balance hope and honesty in the provision of information to patients with cancer. Lack of accurate information may be one reason why the patients in this study was found to interpreted normal symptoms during the recovery period as being signs of recurrence of the disease.…”

Section: Results Considerationscontrasting

confidence: 60%

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

Malmström

Klefsgård

Johansson

et al. 2013

European Journal of Oncology Nursing

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Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery -A focus group study. General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Take down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. Purpose: To illuminate patients' experiences of supportive care from a long-term perspective after oesophagectomy or oesofagogastrectomy for cancer.Method: Data collection was carried out using semi-structured focus-group interviews.Seventeen patients were included in the study, divided into 4 focus groups. Data was analysed with conventional qualitative content analysis. Results:The patients' experiences of supportive care were captured in the theme "The need for a guiding light in the new life situation" and it was shown that support from the health care system as well as from the social network was experienced as important. The patients need support that starts at the hospital and that continues throughout the transition to outpatient care. This support should focus on developing a plan for the future and on providing the patients with information that will enable them to understand their new life situation. Conclusion:The findings indicated that the patients need a plan for the future, help in navigating the healthcare system and the provision of clear and honest information as well as a healthcare system that better overarches the gap between in and out-patient care. This suggests the need of developing and testing a supportive care programme that is designed according to the patients' needs and with focus on the potential to enhance the patients QOL after this life-changing surgery.

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Section: Results Considerationscontrasting

confidence: 60%

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

Malmström

Klefsgård

Johansson

et al. 2013

European Journal of Oncology Nursing

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“…All survey questions were developed by the investigators or adapted from earlier studies [1,8,11,13,15,17,21]. Feasibility and comprehensibility of the survey instrument were pre-tested with 15 cervical cancer survivors.…”

Section: Subject Recruitment and Data Collectionmentioning

confidence: 99%

Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea

Noh

Lee

Yun

et al. 2009

Support Care Cancer

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“…The widespread use of technical jargon and a foreign language in the histopathologic reports have nullified this major intended purpose [see [1][2][3]6]]…”

Section: Discussionmentioning

confidence: 99%

“…has important professional, ethical and legal implications that impinge upon patients' perceptions and expectations. Providing patients with their health information is aimed at: facilitating an accurate perception of their situation and their illness; empowering them [1]; promoting their involvement in decision-sharing; minimizing anxiety levels [2] and improving their ability to cope [3]. Ideally this information should be accurate, comprehensible, timely, and employ compassionate and user-friendly language.…”

Section: Introductionmentioning

confidence: 99%

Written notification of test results: Meanings, comprehension and implication on patients’ health behavior

Karnieli‐Miller

Adler

Merdler

et al. 2009

Patient Education and Counseling

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Keeping cancer patients informed: a challenge for nursing

Cited by 46 publications

References 49 publications

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

Patients' experiences of supportive care from a long-term perspective after oesophageal cancer surgery – A focus group study

Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea

Written notification of test results: Meanings, comprehension and implication on patients’ health behavior

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