Jordanian parents’ beliefs about the causes of disability and the progress of their children with disabilities: insights on mainstream schools and segregated centres

Al-Dababneh, Kholoud Adeeb; Al‐Zboon, Eman; Baibers, Haitham

doi:10.1080/08856257.2016.1240341

Cited by 10 publications

(12 citation statements)

References 19 publications

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“…The causes of autism are complex and multi-factorial (Lai et al, 2013); most cases of autism are idiopathic and this uncertainty may add to the plethora of perceived causes reported by parents of children with ASD. Examples of biological or medical explanations attributed to ASD are hereditary factors (Gona et al, 2015;Heys et al, 2017), infectious disease (Gona et al, 2015;, an accident (Al-Dababneh, Al-Zboon, & Baibers, 2016;Minhas et al, 2015;Shaked & Bilu, 2006;Tilahun et al, 2016), complications during pregnancy or birth (Al-Dababneh et al, 2016;Gona et al, 2015;Heys et al, 2017;Shaked & Bilu, 2006;Shyu, Tsai, & Tsai, 2010;Tilahun et al, 2016) or malnutrition (Gona et al, 2015;Heys et al, 2017). In the USA the most common perceived causes reported by parents are genetics/heritability and environmental risk factors, including heavy metals, food, pesticides, pollution and other exposures (Chaidez et al, 2018;Zuckerman, Lindly, & Sinche, 2016).…”

Section: Explanatory Models Of Recognised Atypical Behaviourmentioning

confidence: 99%

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

2020

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Autism research is heavily skewed towards western high-income countries. Culturally appropriate screening and diagnostic instruments for autism are lacking in most low-and middle-income settings where the majority of the global autism population lives. To date, a clear overview of the possible cultural and contextual factors that may affect the process of identifying and diagnosing individuals with ASD is missing. This study aims to outline these factors by proposing a conceptual framework. A multidisciplinary review approach was applied to inform the development of the conceptual framework, combining a systematic review of the relevant autism research literature with a wider literature search spanning key texts in global mental health, cultural psychiatry, cross-cultural psychology and intellectual disability research. The resulting conceptual framework considers the identification, helpseeking and diagnostic process at four interrelated levels: i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms, and describes the cultural and contextual factors associated with each of these levels, including cultural norms of typical and atypical behaviour, culture-specific approaches to parenting, mental health literacy, cultural beliefs, attitudes and stigma, as well as the affordability, availability, accessibility and acceptability of services. This framework, mapping out the cultural and contextual factors that can affect the identification, help-seeking and diagnosis of ASD, may function as a springboard for the development of culturally appropriate autism screening and diagnostic instruments, and inform future cross-cultural autism research directions. The framework also has relevance for clinicians and policy makers aiming to improve support for underserved autism populations worldwide. Lay summaryThe vast majority of autism research is conducted in western high-income settings. We therefore know relatively little of how culture and context can affect the identification, helpseeking and diagnosis of autism across the globe. This paper synthesises what is known from the autism research literature and a broader literature and maps out how culture and context may affect i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms.

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Section: Explanatory Models Of Recognised Atypical Behaviourmentioning

confidence: 99%

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

2020

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“…Ratings of the methodological quality of the qualitative studies are provided in Table 4. Six of the seven qualitative studies were rated as valuable research (Al-Dababneh et al 2017;Alqahtani 2012;Dababnah and Parish 2013;Fox et al 2017;Kediye et al 2009;Perepa 2014). The main area of weakness for the qualitative studies was in providing enough information of how ethical issues had been taken into consideration.…”

Section: Quality Appraisal Resultsmentioning

confidence: 99%

A Systematic Scoping Review of Social, Educational, and Psychological Research on Individuals with Autism Spectrum Disorder and their Family Members in Arab Countries and Cultures

Alallawi

Hastings

Gray

2020

Rev J Autism Dev Disord

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Cultural dimensions of autism spectrum disorder (ASD) are relatively unexplored in the research literature. The current study is a systematic scoping review describing social, educational, and psychological research focused on individuals with ASD and their family members in Arab countries and cultures. Seventy studies met eligibility criteria. Most of the studies were from Jordan, Saudi Arabia, and Lebanon. Most of the identified research addressed three major domains: the prevalence of ASD and diagnosis issues, the experiences and outcomes for Arab caregivers of individuals with ASD, and social and communication behaviour of Arab individuals with ASD. There were significant gaps in research evidence base, including research on interventions and on ASD services. Overall, the included research was appraised as being of weak quality.

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Section: Explanatory Models Of Recognised Atypical Behaviourmentioning

confidence: 99%

A conceptual framework for understanding the cultural and contextual factors on autism across the globe

Leeuw¹,

Happé²,

Hoekstra³

2019

Preprint

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Autism research is heavily skewed towards western high-income countries. Culturally appropriate screening and diagnostic instruments for autism are lacking in most low- and middle-income settings where the majority of the global autism population lives. To date, a clear overview of the possible cultural and contextual factors that may affect the process of identifying and diagnosing individuals with ASD is missing. This study aims to outline these factors by proposing a conceptual framework. A multidisciplinary review approach was applied to inform the development of the conceptual framework, combining a systematic review of the relevant autism research literature with a wider literature search spanning key texts in global mental health, cultural psychiatry, cross-cultural psychology and intellectual disability research. The resulting conceptual framework considers the identification, help-seeking and diagnostic process at four interrelated levels: i) the expression, ii) recognition, iii) interpretation and iv) reporting of autism symptoms, and describes the cultural and contextual factors associated with each of these levels, including cultural norms of typical and atypical behaviour, culture-specific approaches to parenting, mental health literacy, cultural beliefs, attitudes and stigma, as well as the affordability, availability, accessibility and acceptability of services. This framework, mapping out the cultural and contextual factors that can affect the identification, help-seeking and diagnosis of ASD, may function as a springboard for the development of culturally appropriate autism screening and diagnostic instruments, and inform future cross-cultural autism research directions. The framework also has relevance for clinicians and policy makers aiming to improve support for underserved autism populations worldwide.

show abstract

Jordanian parents’ beliefs about the causes of disability and the progress of their children with disabilities: insights on mainstream schools and segregated centres

Cited by 10 publications

References 19 publications

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe

A Systematic Scoping Review of Social, Educational, and Psychological Research on Individuals with Autism Spectrum Disorder and their Family Members in Arab Countries and Cultures

A conceptual framework for understanding the cultural and contextual factors on autism across the globe

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