‘Join us on our journey’: exploring the experiences of children and young people with type 1 diabetes and their parents

Abstract

Background. Despite the Internet and the WorldWideWeb providing ready access to

The Role of School Nurse Presence in Parent and Student Perceptions of Helpfulness, Safety, and Satisfaction With Type 1 Diabetes Care

“…In this study, one parent commented that she was able to work full-time solely because of her security with the school nurse’s T1D knowledge. School personnel are often unable or reluctant to help students with T1D in the absence of the school nurse (Johnson & Melton, 2014; Kime, 2014), finding the responsibility quite burdensome, thereby jeopardizing the safety of students with T1D. Utilizing NASN’s position statement on delegation in the school setting (2019) as a blueprint, the school nurse then has the responsibility to appropriately train nonmedical school personnel to recognize hypoglycemia and act accordingly, putting school nurses and other school personnel in situations that are neither desired nor comfortable (Lineberry et al, 2019; Schwartz et al, 2010).…”

“…In the United States, parents cite the following factors that contribute to safe T1D care in school: the presence of a school nurse, access to diabetes supplies and BGM, education of school nurses and school personnel, and accommodations for field trips and after-school activities (Driscoll et al, 2015; Jacquez et al, 2008; Johnson & Melton, 2014; Schwartz et al, 2010). Similarly, parents of students with T1D throughout Europe (Amillategui et al, 2007; Kime, 2014; Pinelli et al, 2011), Canada (Nurmi & Stieber-Roger, 2012), Taiwan (Lin et al, 2008), and Australia (Marks et al, 2014) echo parallel safety concerns, demonstrating that this is a worldwide concern.…”

“…Parents report that school nurse presence is important for safe and effective TID management in the school setting (Johnson & Melton, 2014; Kime, 2014; Marks et al, 2014; Skelley et al, 2013). The American Academy of Pediatrics (2016) recommends a minimum of one full-time school nurse in each building; likewise, NASN (2015) endorses using a multifaceted approach that includes care based on acuity and social determinants of health and a school nurse workload that affords students direct access to a school nurse.…”

Pediatric diabetes training for healthcare professionals in Europe: Time for change

“…Differences in the delivery of care and outcomes for CYP with T1DM are apparent throughout Europe and globally . While a significant number of CYP receive a high standard of care from appropriately skilled and trained HCPs, it is unacceptable that there are others who, because of inadequate HCP training, are failing to receive the highest levels of diabetes care available and are disadvantaged health‐wise because of inequitable training provision compared with international standards…”

Transitional care for young people with diabetes: a national registry is urgently needed

“…Kime and Carlin also undertook a three‐year study for NHS Diabetes to develop a model of care that would reflect the aspirations of ‘Making every young person with diabetes matter’ resulting in improvement in the care for children and young people with T1DM in England . They undertook process mapping in the nine sites across Yorkshire and Humber and used ‘talking groups’ (focus groups) and individual interviews to gain an understanding of current transition care and what was lacking.…”