Job perspectives in facioscapulohumeral muscular dystrophy

Wevers, C.W.J.; Brouwer, Oebele F.; Padberg, George W.; Nijboer, Irene D.

doi:10.3109/09638289309165865

Cited by 26 publications

(32 citation statements)

References 6 publications

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“…TNO Arbeid validated their questionnaire in several research projects and reported good reliability of the test. 6,7 The employment situation was assessed both preinjury and after reintegration. Respondents were asked to report the changes in type of job and working hours, vocational retraining, job modifications, contacts with work professionals, income and their opinion on the working conditions and social atmosphere.…”

Section: Questionnairementioning

confidence: 99%

“…Respondents were asked to report the changes in type of job and working hours, vocational retraining, job modifications, contacts with work professionals, income and their opinion on the working conditions and social atmosphere. The TNO assessment includes an educational level scale (score [1][2][3][4][5][6][7][8]. Changes in the type of hobbies and sports were also assessed, as was the support of the rehabilitation team in developing new leisure activities.…”

Section: Questionnairementioning

confidence: 99%

“…From other studies we know that the chances to resume work are restricted for patients with chronic diseases and disabilities. [6][7][8] Working rates for people with SCI vary from 31 to 48% in recent studies. [9][10][11][12][13] Factors related to the success of vocational reintegration are age, education level, realistic expectations, preinjury type of job, type of lesion and disease-specific problems and disabilities.…”

Section: Introductionmentioning

confidence: 99%

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Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Schönherr

Groothoff

Mulder³

et al. 2004

Spinal Cord

101

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Participation and satisfaction after spinal cord injury Schonherr, Marleen C.; Groothoff, J.W.; Mulder, GA; Eisma, WH; Schönherr, M.C. Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. Objectives: Insight in (1) the changes in participation in vocational and leisure activities and (2) satisfaction with the current participation level of people with spinal cord injuries (SCIs) after reintegration in society. Design: Descriptive analysis of data from a questionnaire. Setting: Rehabilitation centre with special department for patients with SCIs, Groningen, The Netherlands. Subjects: A total of 57 patients with traumatic SCI living in the community, who were admitted to the rehabilitation centre two to 12 years before the current assessment. Main outcome measures: Changes in participation in activities; current life satisfaction; support and unmet needs. Results: Participation expressed in terms of hours spent on vocational and leisure activities changed to a great extent after the SCI. This was mainly determined by a large reduction of hours spent on paid work. While 60% of the respondents successfully reintegrated in work, many changes took place in the type and extent of the job. Loss of work was partially compensated with domestic and leisure activities. Sports activities were reduced substantially. The change in participation level and compensation for the lost working hours was not significantly associated with the level of SCI-specific health problems and disabilities. As was found in other studies, most respondents were satisfied with their lives. Determinants of a negative life satisfaction several years following SCI were not easily indicated. Reduced quality of life was particularly related to an unsatisfactory work and leisure situation. Conclusions: Most people with SCI in this study group were able to resume work and were satisfied with their work and leisure situation.Spinal Cord (2005) 43, 241-248.

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Section: Questionnairementioning

confidence: 99%

Section: Questionnairementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Participation and satisfaction after spinal cord injury: results of a vocational and leisure outcome study

Schönherr

Groothoff

Mulder³

et al. 2004

Spinal Cord

101

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“…TNO Arbeid validated their questionnaire in several research projects. 4,5 Data became available on the employment situation both preinjury and after the reintegration including having a job, the type of job, the job contract and number of working hours (appendix). Respondents were asked to report their income, educational level (grades 1-8), vocational retraining, job adjustments and contacts with reintegration professionals.…”

Section: Questionnairementioning

confidence: 99%

“…However, several studies have shown that reintegration interventions do not enable all people with chronic diseases and disabilities to resume work. [4][5][6][7] The purpose of this study was to extend our knowledge about the process and the outcomes of reintegration in paid work following a SCI.…”

Section: Introductionmentioning

confidence: 99%

Vocational reintegration following spinal cord injury: expectations, participation and interventions

Schönherr

Groothoff

Mulder³

et al. 2004

Spinal Cord

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Study design: Survey. Objectives: To explore the process of reintegration in paid work following a traumatic spinal cord injury (SCI), including the role of early expectations of individual patients regarding return to work, indicators of success of job reintegration and a description of reintegration interventions and barriers. Setting: Dutch rehabilitation centre with special department for patients with spinal cord injuries. Methods: Descriptive analysis of data gathered by a mailed questionnaire, which was returned by 57 persons (response 83%) with traumatic SCI, aged 18-60 years, and data of earlier expectations reported by the individual patients during the rehabilitation admission following SCI from 1990 to 1998. Results: Of 49 respondents who were employed at the moment of the SCI, 45% expected to be able to resume work. These positive expectations were associated with a higher educational level. In 67%, return to work was successful. The chance to reintegrate successfully was better if the patient expected to resume work. Logistic regression analysis did not reveal other significant indicators. About one-third of the 49 respondents working preinjury followed vocational retraining, which was successful for most of them so far. In the majority of work situations modifications have been made, such as job adaptations and reduction of working hours. Several unmet needs regarding reintegration interventions were also reported. Conclusions: Positive expectations regarding resumption of work after a SCI are an important indicator of successful reintegration in work. An active role of the rehabilitation team is recommended in drawing up a vocational reintegration plan to prepare the patient, the employer and professionals involved in the reintegration process.

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