Jail-Based Data-to-Care to Improve Continuity of HIV Care: Perspectives and Experiences from Previously Incarcerated Individuals

Buchbinder, Mara; Blue, Colleen; Brown, Martha McClellan; Bradley-Bull, Steve; Rosen, David L.

doi:10.1089/aid.2020.0296

Cited by 4 publications

(9 citation statements)

References 24 publications

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“…Written informed consent was obtained by all research participants. From March 2019 to March 2020, we conducted semi-structured qualitative interviews with PLWH formerly incarcerated in a North Carolina jail to understand the ethical and practical considerations of using publicly available jail records, court records, and state health department HIV diagnosis records to improve the continuity of care for PLWH previously incarcerated in jails in North Carolina [ 23 ]. As part of this larger study, we conducted a sub-study to understand the experiences of PLWH accessing HIV care in North Carolina jails.…”

Section: Methodsmentioning

confidence: 99%

“…The study protocol was approved by the Wake County Human Services Institutional Review Board, the North Carolina Department of Public Safety, and the Institutional Review Board of the University of North Carolina at Chapel Hill. More extensive details about the research design, methods, and analysis have been reported elsewhere [ 23 ].…”

Section: Methodsmentioning

confidence: 99%

“…[ 24 ] The research team identified a set of 24 inductively generated thematic codes, and codes were assigned to relevant portions of the transcript or summary. Analytic procedures are described more thoroughly elsewhere [ 23 ]. After coding was completed, we reviewed relevant coding reports to identify salient sub-themes and patterns for further analysis.…”

Section: Methodsmentioning

confidence: 99%

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Access to HIV care in jails: Perspectives from people living with HIV in North Carolina

et al. 2022

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Most incarcerations for people living with HIV (PLWH) occur in jails, yet studies of HIV care during jail incarceration are limited. As part of a larger study to explore the ethical considerations in extending public health HIV surveillance to jail settings, we conducted semi-structured interviews with twenty-three PLWH with more than 300 distinct jail incarcerations post HIV diagnosis in 21 unique North Carolina jails. Interviews included questions about HIV disclosure in jail, the type of HIV care received in jail, and overall experiences with HIV care in jail. We report on participants’ experiences and perspectives in four domains: access to HIV care in jail; impact of jail incarceration on continuity of HIV care; privacy and stigma; and satisfaction with HIV care in jail. Although most participants received HIV medications and saw providers while in jail, almost half reported that their greatest challenge in regard to HIV care was obtaining their HIV medications in the face of limited jail resources or policies that made access to medications difficult. Findings from this study suggest that jail leadership should review internal policies regarding HIV medications to ensure that PLWH can receive them quickly upon entry into jail. Findings also suggest that more external resources are needed, for example from state and local health departments, so that jails can provide timely HIV medications for PLWH incarcerated in their facilities.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Access to HIV care in jails: Perspectives from people living with HIV in North Carolina

et al. 2022

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“…The results of our qualitative interviews have been reported and discussed elsewhere [10][11][12], but we briefly summarize here. Expert stakeholder interviewees included 30 participants from North Carolina; the remainder lived in other US states (n = 15) or outside the United States (n = 2).…”

Section: Qualitative Stakeholder Interviewsmentioning

confidence: 99%

“…The workshop design was informed by a set of qualitative interviews conducted in 2018-2019 with 47 expert stakeholders and 18 recently incarcerated PLWH. These qualitative interviews examined the public health benefits, ethical challenges, and practical opportunities in using publicly available jail records, court records, and state health department HIV registry records to improve the continuity of care for PLWH experiencing incarceration [10][11][12]. In this report, we review this background interview study and the discussion of its results by the stakeholders from the field who participated in the 2020 workshop.…”

Section: Original Researchmentioning

confidence: 99%

Improving the Continuity of Care for People Living with HIV Experiencing Incarceration in North Carolina Jails: Stakeholder Perspectives

Juengst¹,

Buchbinder²,

Blue³

et al. 2022

North Carolina Medical Journal

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background Jail detention can disrupt the continuity of care for people living with HIV/AIDS (PLWH). Using a state's "Data to Care" (D2C) program might help overcome this barrier, but raises important questions of data security, personal privacy, resource allocation, and logistics. methods As part of a study involving in-depth expert stakeholder interviews, a 1-day workshop was convened to identify and discuss potential ethical challenges in extending North Carolina's D2C program to jail settings. Workshop participants included public health officials, community advocates, HIV clinicians, jail administrators, privacy experts, criminal justice researchers, and a formerly incarcerated PLWH. Workshop participants discussed the results of earlier stakeholder interviews with the goal of identifying the most important points to consider in assessing the merits of extending D2C surveillance to jail settings. results Although the workshop participants expressed support for improving the continuity of HIV care for jail detainees, they had mixed perspectives on whether a jail-based D2C program should include in-jail or post-release follow-up interventions. Their positions were influenced by their views on 4 sets of implementation issues: privacy/data-sharing; government assistance/overreach; HIV criminalization/ exceptionalism; and community engagement. limitations The limitations of this stakeholder engagement exercise include its purposive recruitment, relatively small number of participants, and limited duration. conclusions Improving the continuity of HIV care in particular jail settings will depend on a number of local considerations. In deciding between models featuring in-jail and post-release follow-up care, the most important of these considerations will be the possibility of establishing good partnerships between the jail, the health department, and the community. Additional research on the dynamics and impact of different models is needed.

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Advancing a Data Justice Framework for Public Health Surveillance

Buchbinder

Juengst

Rennie

et al. 2022

AJOB Empirical Bioethics

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Jail-Based Data-to-Care to Improve Continuity of HIV Care: Perspectives and Experiences from Previously Incarcerated Individuals

Cited by 4 publications

References 24 publications

Access to HIV care in jails: Perspectives from people living with HIV in North Carolina

Access to HIV care in jails: Perspectives from people living with HIV in North Carolina

Improving the Continuity of Care for People Living with HIV Experiencing Incarceration in North Carolina Jails: Stakeholder Perspectives

Advancing a Data Justice Framework for Public Health Surveillance

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